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  • seriouslly, i have ms and scoliosis, i need help!

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    Old 02-25-2009, 08:27 PM   #16
    sauce 007
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    Re: seriouslly, i have ms and scoliosis, i need help!

    Quote:
    Originally Posted by lindkaye3 View Post
    Hi there;

    I have both, scoliosis and MS. My scoliosis started when I was about 10. I ended up wearing a brace for several years and it did help some. I have an "s" curve. After having my 1st daughter, my upper curve started getting worse to the point I had a 50 degree curve and needed surgery. I had rods put in and a couple years after taken out as I was having issues with them. At this time, I have a few problems with my back aching at times, and not being able to bend, but thats about it. As for the MS, I was just recently diagnosed with this. I also have RSD (reflex sympathetic dystrophy) in my leg after my total knee replacement -which gives me a great deal of pain and issues with lack of mobility. I am hoping the MS does not proceed in this area also. I know scoliosis can be painful. Are you under a dr's care for the soliosis? Wish you luck and if you need to talk - please feel free to contact me. Hang in there.
    dr.'s just want me to do phy.thearpy. it's kinda hard when you have no energy. thanks for reply, good luck also

     
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    Old 02-25-2009, 08:42 PM   #17
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    Re: seriouslly, i have ms and scoliosis, i need help!

    I am using a passive exerciser. My first day lasted all but 5 minutes, but I have extended my time up to an hour. I purchased an Exercycle on an online auction.

    Pool exercise might also help if the water is not too warm.

     
    Old 02-26-2009, 08:32 AM   #18
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    Re: seriouslly, i have ms and scoliosis, i need help!

    Quote:
    Originally Posted by MSJayhawk View Post
    I am using a passive exerciser. My first day lasted all but 5 minutes, but I have extended my time up to an hour. I purchased an Exercycle on an online auction.

    Pool exercise might also help if the water is not too warm.
    I should try this because I'm 1 of those MS'ers that gets over heated easily. They say water exercise is good for both MS ans back pain. Thanks!

     
    Old 02-26-2009, 10:11 AM   #19
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    Re: seriouslly, i have ms and scoliosis, i need help!

    Pool exercises are also good for RSD/CRPS....
    Gosh, I feel so bad that you are going through all this..
    If not too personal, may I ask if you use DMD's???? I just need to know what my options will be since we aren't suppossed to feel pain

     
    Old 02-26-2009, 11:31 AM   #20
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    Re: seriouslly, i have ms and scoliosis, i need help!

    If you injured your back, your pain may have nothing to do with your scoliosis. (I've dealt with back injuries before as well.) What kind of back injury do you have? If it's a sprain, it really will get better with time. You may need to try a different kind of physical therapy. I went to an office that used Myofascial therapy. It involved a lot of back massage, heat treatment, a tens unit, and even some chiropractic like manipulations, and then went on to strengthening exercises after the pain had subsided.

    Swimming is also a good exercise when you've got back pain. You can also do water aerobics, which doesn't hurt as much in the water as the same motions on the ground. If you have a back injury, there are also medications that can help with the pain. One thing I was put on was a week long steroid treatment pack that helps reduce swelling around your spinal cord and reduce pain that way. If you have a very minor degree of curvature, the scoliosis itself is not likely the cause of your pain, it's the back injury. There were some other prescription anti inflammatories I was prescribed as well.

    What kind of doctor have you seen for for your back injury? Just a GP may not be the best to go to, you should try an orthopedic specialist, even one that deals with sports injuries. The exercises the physical therapist gives you shouldn't hurt, and shouldn't be extremely taxing...but mainly consist of stretching and core muscle strengthening.

    Your back pain and MS may have nothing to do with each other. You need to make sure your doctor don't just attribute your pain to MS, and not try to figure out what else is going on. Unfortunately, having MS doesn't preclude you from having other unrelated medical issues as well.

    Good luck to you,

    Kay

     
    Old 02-26-2009, 05:04 PM   #21
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    Re: seriouslly, i have ms and scoliosis, i need help!

    I have both, scoliosis since about 12. I wore a body cast for about a year, did not help. I have back pain all the time, in fact that's how I found out I had ms. Went to an orthopedic specialist, he ordered mri of cervical and lumbar, found a lesion in cervical spine which suggested ms. Then had the brain mri and have several lesions typical of ms. Spinal tap negative for o bands but high protein levels. Ms diagnosis was in 2005.

    My neurologists prescribes vicodin for pain, which helps. I recently saw a ms specialist and he didn't think the 2 were related. I have a lot of numbness in my fingers and always thought that was due to scoliosis, but now I guess that is ms.

    I kept doubting the ms diagnosis, because I felt like my symptoms were from my back problems, but the ms specialist said that it would not cause the weakness I have in my leg. I have an s curve with the most severe in the thorasic spine.

    I am not taking any of the dmds for ms, I have used both copaxone and avonex. But now they say my ms is progressive, so I decided to give up the injections because of all of the side effects. I'm only taking vicodin and provigil which really helps with fatigue.

    Good luck to you.

     
    Old 08-15-2009, 10:05 AM   #22
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    Re: seriouslly, i have ms and scoliosis, i need help!

    I too have ms,scoliosis, and perepheral neuropathy. I had the harrington rod surgery x3 because the hardware failed. I am 65yrs old and now looking at a terrible revision surgery. I don't know if I should have it or not?? Anyone?? I just received ms diagnosis 2 yrs ago
    Thanks Kate

    Last edited by kate j; 08-15-2009 at 10:07 AM. Reason: forgot

     
    Old 08-15-2009, 01:42 PM   #23
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    Re: seriouslly, i have ms and scoliosis, i need help!

    Quote:
    Originally Posted by kate j View Post
    I too have ms,scoliosis, and perepheral neuropathy. I had the harrington rod surgery x3 because the hardware failed. I am 65yrs old and now looking at a terrible revision surgery. I don't know if I should have it or not?? Anyone?? I just received ms diagnosis 2 yrs ago
    Thanks Kate
    Welcome Kate. As the post to which you linked is old and this is your first post, perhaps your own new thread would be more beneficial to you? As to any surgery, what will your quality of life be following the surgery and what risks are there? If your quality of life will improve and the risk is not high, then I would have the surgery.
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