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    Old 06-22-2009, 09:02 PM   #31
    FLFLOWERGIRL
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    Re: b12?

    Thanks Audrey-B for explaining the Trans Vag US, looks like I forgot that part. Take care. FLFG

    Help wanted--How are you getting along? FLFG
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    Old 06-27-2009, 05:02 PM   #32
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    Re: b12?

    thanks guys.
    im still on the b12 and iron pills and will be getting the levels retested in a few months. i will also be getting my thyroid retested but i dont know how much of an indepth test that will be.

    im going to book for an internal exam next week as im still having the period problems.
    Audrey its interesting that you mention the pancreas, as my pancriatic function was a little low on my last blood test, but this was when i was in hopsital with appendicitis so it may have something to do with that.
    The only other abnormal result ive had is antibodies in the gut but i hsave to wait to see the gastro doctor about this as the doctor didnt know if it meant anything.

    so my plan of action at the moment is to get the internal exam to rule out anything there... if they dont find anything im guessing it has to be hormones casuing my period problems so ill push to get them tested even tho my doc is adament they will be normal becasue im on the pill.

    i will see what my b12 and feretin levels are and discuss the folate level although im sure shell say its fine as it must be within range.

    i need to see the gastro doctor about the abormal blood result. at least when i was in hospital i had xrays and a ct scan and ive also had an ultrsound, so i know now that there is nothing physically wrong with my digestive system.

    untill then its struggling through each day as it comes.

    if i cant get any answers from this i really am out of suggestions as to whats caused me to be ill all these years and i may well have to give up on life

     
    Old 06-30-2009, 02:30 AM   #33
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    Re: b12?

    No problem FLFLOWERGIRL I'm not charging for proof reading quite yet

    Helpwanted - Just a cautionary word, being on the pill does not mean you can't have hormone issues. In fact the pill can make a hormone issue worse in some cases. A lot of the modern day birth control pills are high estrogen and some new versions are even totally estrogen. If you already have excess estrogen, being on the pill is adding even more estrogen. This can lead to a lot of problems.

    The thing is that your estrogen to progesterone ratio needs to be correct and balanced. If the estrogen just gets a higher than the progesterone then it will lead to estrogen dominance symptoms, one of which can often be irregular, heavy, painful periods.

    Actually in my research i've found low thyroid and adrenal issues to be listed as moderate estrogen dominance side effects.

     
    Old 06-30-2009, 05:15 AM   #34
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    Re: b12?

    Audrey..
    yes! thats exactly what i thought, but evertime i mention hormone imbalance my doctor is adement that my hormones will be balanced becasue of the pill... surely thats not the case as my periods are going nuts!

     
    Old 06-30-2009, 04:34 PM   #35
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    Re: b12?

    help wanted-- Hi there! I have a friend that was diagnosed with low B-12 and iron without a cause found. She also has very heavy periods but this doesn't effect the B-12. Her GYN told her to go on birth control until her ablation and she bleed like crazy from the pill and had to go off it. It also took her a while to have a some what normal cycle. Her ablation was not successful either. They want her to repeat it. That is usually the first step. In your case you are waaayy too young for this procedure which makes it even more difficult for you. Perhaps your thyroid will reveal something. This same friend was told that she didn't have a thyroid problem because her numbers were normal and I sent her to another doc for a trial dose of synthroid as a chance because her symptoms were the same as mine and she ended up having a goiter that her original doc missed. So you have to really know your symptoms and labs. First, you really need to get your B-12 up and see how you are feeling. Take care and do keep us posted. We are thinking of you! FLFG
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    Old 10-01-2009, 06:01 AM   #36
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    Re: b12?

    Hi guys, me again!

    time for an update as im still getting nowhere and am really sick of it now.

    ok so my ferretin went from 67 last year to 20 this May. Doctor wasnt bothered as it was within the normal range. but i pursuaded her to prescribe me iron tablets which i took for a few months... and my latest test result (18th Sept) my ferretin had gone up to 37, still not great. as for the b12, it started off at 272, then 280 and has gone up to 301 (18th Sept) after a few months of b12 tablets . Someone mentioned earlier in the thread about my folate level... that was 6 in may and is now 4.3 ( range 2-20)

    Ive also talked about the possiblity of thyroid problems with some of you. i dont know what my last test results were as i was just told they were normal, but i asked for a full thyroid panel at my last blood test, and all thats in the results is serum TSH which is 2.3 (range 0.10 - 5). So this is normal aswell.

    I dont really know what to do now..
    my b12 and ferretin levels still arnt at a high enough level for me to know if they are casuing my fatigue.
    I dont know whats causing the levels to be low. The last time i went to the doc she said that everything was normal and asked me 'what else i thought it mite be'.. basically trying to convinve me theres nothing wrong.
    Im still having period problems.. havnt been for an exam yet, but she doesnt seem very interested in investigating that.
    Only benefit i got from the apendix removal is not having the odd day of diabling stomach pain that i used to get. but still get all the other digestive problems, fatigue, temperature sensitivity, vision disturbances etc. Ive been on anti depressents for several months now which help control my anxiety a bit, but im getting more and more depressed each month of not getting better.

    HELP! what should i do now?
    thanks guys x

     
    Old 10-01-2009, 03:13 PM   #37
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    Re: b12?

    What you need to do is keep at it with the iron supplements. It's taken me over 3 years to get from 8 to 89 with quite a lot of set backs along the way. I can't afford to go a day without my iron supplements.

    Secondly, are you on sublingual B12? That is the surest way to get your numbers up and i think FLFLOWERGIRL made that suggestion to you ages ago.

    Thirdly, no, TSH is not a thyroid panel test and TSH is useless in most cases. My TSH was normal for 9 years and i had Hashimoto's the whole time.

    For thyroid you must request this: TSH, Free T3, Free T4 and Thyroid Antibodies. You actually need to say that you want these specific test to your doctor. Dont just walk in and say you want a thyroid panel test or a thyroid test as all they ever do then is a TSH test and nothing else.

    With your ferritin being up to 37 you should be feeling much better, but if there are other things which are low, such as your B12, or thyroid issues, that can be causing your recurring symptoms. B12 tablets or multi B tablets wont do the trick. You need sublingual B12 to get anywhere fast.

    Have you checked your vitamin D levels? they are likely low too.

    Have you had a gluten intolerance test as a lot of people appear to be intolerant to gluten and that also causes havoc with ferritin and other things.

     
    Old 10-05-2009, 04:05 AM   #38
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    Re: b12?

    Hi Audrey,
    The trouble is i dont know if its the ferreting, b12, both or something else. i agree i need to take the iron to get my levels up but i cant keep getting tested so i wont know if its gone up. i feel no different now than i did when my ferretin was 20, or in the 60s. i think my b12 and ferretin both need to come up for me to feel a difference. and even then i dont know if theres something else contributing to it. i need to know whats casuing my levels to be low in the first place, i dont know how to find that out anymore.

    Yeh i know sublingual b12 is better but it doesnt seem to be that big here in the UK. i was just given b12 pills.. i dont know if i can get sublingual.
    Yeh its so annoying... i asked for a full thyroid test becasue they just did the tsh last time, and theyve just done that again, i wanted a more in depth test of my thyroid.

    I havnt had my vitamin D tested, ill ask about that. And no, im not gluten intolarant.
    thanks.

     
    Old 10-06-2009, 12:07 AM   #39
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    Re: b12?

    You could most likely take one course of sublingual B12's without it sending your B12 levels through the roof. You need adequate daily B12 to help absorb folate. So better B12 levels mean better folate levels.

    Your ferritin doesn't appear to be rising like a rocket. Most people who have slow rising ferritin only get tested once every 3 - 6 months.

    With the thyroid panel test, you actually need to demand it and tell them if it's just TSH then you dont want the test. Tell them it's important as you are constantly tired etc etc, even if you have to 'exagerate' some of your symptoms.

    It's bad these days, so many people i know are being refused the Free T3 and Free T4 by the doctor, or the doctor is requesting it and the lab is refusing to do it if your TSH is considered 'normal'. It's very frustrating. The lab refused to test my thyroid antibodies on 3 occasions and finally the 4th time they did and it showed up that i had very high thyroid auto immune antibodies. Just goes to show that they dont know it all when they think they do.

    Another lady i know who worked for a lab said if they couldn't read the doctors writing on the lab slip they simply skipped that particular test. Fat lot of good that does to the patient!!

    Anyway, keep at it. No use giving up.

     
    Old 10-06-2009, 07:02 AM   #40
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    Re: b12?

    Do try the b12 pills that disolve under the tongue. My husband has hemolytic anema and is new hemotologist said even though his B12 was in the normal range it was in the low end and suggested with the pills or shots. She said the over the counter b12 pills are slow and not as effective.

     
    Old 04-16-2010, 10:45 AM   #41
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    Re: b12?

    Hi everyone...
    Sorry but im going to have to drag this thread up again as things have still not improved for me, infact, they are worse. My anxiety and depression is worse than ever becasue i cannot get answers for why i feel so ill. I am really on my last legs, if i dont get well soon, well... theres no point me being here.

    Ive had all the basic tests - everything is always normal.
    The only thing that shows up to me is that ferretin and b12 are always low normal. I took iron and b12 tablets and they levels went up a bit but i felt no different. My b12 seems to flutuate between mid 200s to low 300s wether im taking pills or not.

    Tried every IBS med theyve thrown at me and nothing has worked. Had all sorts of xrays, ultrasounds, nothing was found.

    My doctor keeps implying its in my head and basically just asks me what i think it is when i go in... wont even suggest any new avenues to try. she also tries to say i have health anxiety.

    I have been on anti depressants for around 18 months now, and apart from taking the edge off the panic attacks, they havnt done anything. Surely if that doesnt prove my problems arnt DUE TO the anxiety or all in my mind then what will? There has to be something else casuing it. Doc has only done fairly basic tests and becasue these were 'normal' i apparently feel like hell for no reason? Whatever she says... i know this isnt right.

    Im 22 years old i should be out having fun living life.. instead i spend everyday on this constant foogy dream depressed anxious state feeling so tired i could die.

    Things im still considering from all my research...
    - Thyroid - she still has only tested TSH (which is always normal) and says becasue this is fine my thyroid is fine... i know i need T3, T4 etc tested!!

    - Auto immine diseases

    - Dysautonomia

    - CANDIDA (she refuses to ackowledge this exists)

    - mitochondrial diease

    - CFS - this seems to be what theyre leaning towards but when i saw the specialist she was wary of diagnosing it bcasue she thought it could be more of a digestive problem. im going back to see her soon.
    - also need to consider viruses that could cause CFS such as epstein bar, hhv6 etc (as they dont really know what casues CFS yet or how it works) - it ould just be the symptoms of something else.

    - Adrenal fatigue,lyme disease have been suggested to me.

    - hormone imbalances (she wont test this as im on the pill so she says they should be balanced..rubbish!!)

    - some other digestive problem they havnt found... maybe something to do with absorption.
    ...and i dont know how much the b12/ferretin is conributing to my problems.
    Does anyone have any thoughts on that?
    My latest b12 was 335 which is better (havnt taken pills for ages) and ferretin was 23 which still isnt great.

    I have ruled out..
    ceoliacs, whaeat and dairy intolerance, chrons, blood count, calcium, blood glucose and liver and kidney function is fine. Rheumatoid factor was normal.

    Would love some support and suggestions from you guys.. i've got nowhere else to go.

     
    Old 04-19-2010, 02:07 AM   #42
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    Re: b12?

    Hey,
    Sorry to hear about your probs and personally i have gone through many of the issues which you are facing now. But by GOD's grace i found a nice doctor, who knew how to tackle B12 deficiency well.
    B12 deficiency can have so weird symptoms that it is hard to believe that a vitamin deficiency is the cause of all sorrows.
    Really dull memory , always having anxiety , feeling heavy after meals, gastro issues, allergies, nervousness, heart palpitations , thyroid and the list goes on and on. I had most of these . But 3 months back after figuring out the deficiency ,my doc put me on a B12 supplement ( an active form of B12 - methylcobalamin) and now i see a ray of hope. I see a lot of improvement.
    What i wud suggest you is to ask your doc to put u on a B12 dose for a stipulated time frame and monitor your response to it, coz it takes time ( may be 2-3 months) to slowly show positive results.
    I hope this works out for you ! GOD BLESS !

    Last edited by Avin; 04-19-2010 at 02:10 AM.

     
    Old 04-20-2010, 01:28 PM   #43
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    Re: b12?

    Hi Avin
    I have most of the symptoms but my doc will just not accept that my level is too low and could be causing problems. They sell some sublingual b complex drops at a health food store.. they contain 1200ug of b12. Think this will be enough to make a difference?
    What were your levels? How much b12 have you been taking

     
    Old 04-21-2010, 03:33 AM   #44
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    Re: b12?

    help wanted - why do you persist with a doctor who isn't interested or doesn't have the knowledge and has tunnel vision?? If i had stuck with my same old doctor i would never have gotten the help which i ended up getting, mind you it took 9 years. I regret wasting 9 years, but at the time i didn't have the help from people on healthboards and so simply kept taking my doctor's word for everything.

    In the end i found a great doctor who discovered that i did have adrenal problems and did have a thyroid autoimmune disease. Absolutely all my range of symptoms stemmed from these issues eg: my tiredness, low/difficult to raise ferritin, hormone problems, menstrual problems, digestive problems, low vitamin D.

    I would encourage you to keep searching for the right doctor for you. There are good doctors out there, i know they are far and few between, but they are out there. So take the knowledge you have gained and you will know when you have found the righ doctor. Good luck

     
    Old 04-21-2010, 01:24 PM   #45
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    Re: b12?

    Hi audrey, good to hear from you.

    I wish i could just find that magical doctor that can help me but it doesnt work like that here. Ive seen other doctors in my practice and theyre the same. I dont know how to tranfer practices and its a pain... pretty much all standard doctors are going to have the same lack of knowledge i think. I cant see any special doctor without being referred by my doc and private doctors dont really seem to exist, and if they do they are stupidly expensive.. so im stuck. Plus i dread to think what my doc has written on my notes...

     
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