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    Old 09-07-2009, 10:06 PM   #211
    LowTane
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    Re: Low Dose Accutane

    Well Pagss, welcome. First I am not a doctor or a research chemist. So my opinion is worthless. I can give a laymans opinion tho.... plasma levels will be different at different times with each of the methods of dosing you are describing. In other words the amount present in you blood and tissues would vary. I have looked at studies that have tried varying dosing regimens. Individuals in each of the studies had success no matter how the dosing was handled. Dermatologists will tell you that no one knows exactly how this drug works. Isn't that a trip. We all know from our own experiences that different drugs affect different people in different ways. I consider Accutane extremely dangerous and caution should be warranted. Others disagree. Blood tests must happen at any dose to monitor the effects of this wonderful controversial drug that gave me my life back....... I don't know if that helped. Definitely consult a physician with your questions, and never self medicate. Don't order black market drugs either, its dangerous. Good luck...


    LT

    PS. Hey OL hows it going????

    Last edited by LowTane; 09-07-2009 at 10:10 PM.

     
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    Old 09-08-2009, 12:41 PM   #212
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    Re: Low Dose Accutane

    Well, LT, I am glad you are doing so well. I have 19 doses of 40mg left to take over the next 38 days, and I too am happy with the results. As for side effects, I am happy to report none. No joint pain, no concentration lapses, no short temper (well, no shorter than usual for a type A). Confidence is and has been better than ever. Still keep my drinking to a minimum...a bit more than while I was on it everyday, but I drink less when I do drink once a week or so. I am anxious to be off completely, with 9600mgs in over 10months. I really hope I am cured. If not, I will go back on and try again, maybe at a low dose. I may try some vitiman A suppliments first. After almost 40 years of oil, it is remarkable that I have had almost none whatsoever for over 9 months. My nose is smaller. There are no enlarged oil glands on my forehead (had only a few anyway) and I don`t need to look in the mirror in freightened anticipation when I get up in the morning. So far, it is all good.

     
    Old 09-09-2009, 12:08 PM   #213
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    Re: Low Dose Accutane

    LT,OL,

    I'm really glad to hear how well you guys are doing. As a sufferer of chronic oil for the past 30 years I understand what you went through before treatment.

    The thing that baffles me is why accutane was never approved for the treatment of oil. I wish you all the best and please keep updating us on your progress.

    exxon

     
    Old 09-13-2009, 07:41 AM   #214
    LowTane
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    Re: Low Dose Accutane

    It is amazing that the low dose approach for lesser maladies has not taken precedence. I have read that celebrities have been using this low dose oil control approach for years. Can't confirm this however.... I can speculate that the strict controls on this drug stem from the birth defects that this drug can and has caused. Horrible, babies with no ears, noses etc.... getting pregnant on this drug at any level of dosing is dangerous. When you think about the birth defects and the fact that the exact mechanism that causes Accutane to work is not fully known you can see why the FDA has such a tight grip on this drug. I do believe it will always be available somehow. It is manufactured in other countries. Low dosing is very much accepted in other countries. See referenced links in this thread for Pubmed and Medscape to confirm. Changing subjects here, I have no excessive oil or Acne at this point. I went in for my first Laser treatment (YAG Laser) and my veins in my nose have already started to disappear and my pores are smaller yet. 250$ a treatment. I have 3 more treatments to go. By my last treatment I will have been off of Accutane for around 5 months. Just to remind you readers out there of my past dosing. I started at 20mg daily for a 200lb male of 48 years of age. I tapered that dose in an almost linear fashion over 6 months down to 10mg every two weeks. So, I went very low dose. I have had Acne, Rosacea and Sebaceous Hyperplasia (oil) for quite some time before trying Accutane. All have come under control on extreme low dosing. My Acne was not deep cyst type acne. Affected areas were nose and chin. Accutane change my life. I recommend printing low dose studies referenced in this thread at Pubmed and Medscape and take them to your Dermatologist. They may or may not play ball. Don't blame them, licenses are at stake for off label treatments. They are more likely to prescribe high dose therapies. I still believe that less of a drug is not a bad thing if the results are the same. But that is each persons personal choice. Its not a good idea to keep your doctor in the dark. I told my doctor every appointment that I was taking less Accutane. He went with it..... When you approach your doctor with internet information they will freeze up. Make sure they know that what your reporting to them is gleaned from official reasearch databases. Pubmed and Medscape. They may be familiar with these sites. Even armed with this information you should know your doctor is restricted by FDA. I guarantee you that if you were trying sell your doctor on higher dosing you would have no chance of success. So far low dose has worked miracles for me. All drugs affect different people differently. Low dose that works for one may not work for another. Don't take this drug under the table, you need blood work. You could die. Cholesterol, Triglycerides and Liver enzymes need to be monitored. Also know that some individuals have trouble long after discontinuing Accutane usage that may or may not have been caused by this drug. I think this drug can be extemely dangerous for some. However 14 million have been served in the USA. So, the number of lawsuits is small compared to this huge number. Worldwide even more have taken this drug. I wish you the best, if low dosing is something you wish to try, go plead your case and see if you can get your Dermatologist to bite. Best Wishes

    LT

    Last edited by LowTane; 09-13-2009 at 07:52 AM.

     
    Old 09-13-2009, 07:57 AM   #215
    LowTane
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    Re: Low Dose Accutane

    Well OL, this was the point I was waiting for...... You have had a more conventional dosing regimen. I have had a pretty short term low dose regimen. We both are clear of Acne. I am having no Rosacea problems as well. After your last dose I hope you will start to report as will I the results on a regular basis. I am glad all is going well for you.

    Best
    LT

    Last edited by LowTane; 09-13-2009 at 07:57 AM.

     
    Old 09-24-2009, 03:35 PM   #216
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    Re: Low Dose Accutane

    Still here and still clear, did it with an incredibly low dose regimen. The jury is still out though. I will continue to monitor and report the results of 6 months of very low dose Accutane therapy.

    LT

     
    Old 09-29-2009, 06:40 AM   #217
    LowTane
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    Re: Low Dose Accutane

    49 year old male.
    Rough estimates of dosages follow:
    Started 20mg daily Accutane (Isotretinoin) Feb of 2009
    Reduced to 20mg every other day after 2 months
    Reduced to 10mg daily for one month
    Reduced to 10mg every 3 days for one month
    Reduced to 10mg once a week for 2 months
    Quit Accutane

    I have (had) Rosacea that flared with pustules along with Acne Vulgaris on the nose and chin. Sebaceous Hyperplasia (max oil) afflicted me as well. I researched low dose Accutane and found multiple studies in other countries where outcomes were extemely positive. I found these studies on legitimate sites that report research outcomes. Pubmed and Medscape mainly. I took the studies to my Dermatologist and showed him the results. He tried it with me and I have had great results. Its true that the low dose approach may not work for everyone. Its also true that the high dose approach may not work for everyone. Ingesting a drug until your nose bleeds and your eyes dry out doesn't appeal to me, it never did. I wouldn't commit to high dose therapies. It was never an option.... It should be noted that millions have tried the high dose therapy and have had success. In light of the bad press Accutane has had, a low dose movement would be welcome. When you approach your Derm don't mention blogs. Ask him or her about research papers that you found on Pubmed and Medscape published from Dermatologists in other countries. See if you can get them interested or at least talking about it. You can always go high dose later if low dose doesn't cut it. Accutane changed my life for the better, no doubt. I have had success so far and zero side effects. I didn't even have dry lips. My pores have closed up, my oil had dropped to normal levels. My Rosacea has abated. My dosage was extemely minimal. I pray they don't pull this drug from the market. It has saved my life, my career and restored my self image. I may need it again, its to early to tell. I have been off of it for a couple of months now. I am getting laser treatments for pores and veins in my nose. I will continue to report the post Accutane results until it doesn't matter anymore. Please read this entire blog for more hints and tips to my approach. The fact is, very low dose therapy worked great for me so far, and no side effects. Less risk. Dermatologist will tell you that the exact mechanism that causes Accutane to work is unknown. Understand that Doctors are going off label and risking licenses even though they are giving less of a drug. Seems strange, but its true. The FDA has stringent guidelines for this paticular drug. Know for a fact that this drug can cause severe birth defects at any dose. Know also that some people suffer horribly from the use of this drug even years after ceasing usage. Although this hasn't been conclusively proven some court cases have been won. These patients swear this drug caused their problems. I believe it to be possible. I also have an opinion that high dose is what caused these individuals to have long term problems. However, millions have taken this drug high dose with no problems reported. Drugs affect different people differently. My results may not be your results. Never self medicate with illegal drugs from the internet. You must have blood work when using this drug, you could die. See your doctor and ask for a low dose approach. See what happens.


    I wish you the best.

    Last edited by LowTane; 09-29-2009 at 06:48 AM.

     
    Old 10-08-2009, 07:00 AM   #218
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    Re: Low Dose Accutane

    Hello all. Just got back from the derm. Just to remind you, after 8400mg over 6 months, I was given 1200mg to take over 2 months. About 4 weeks after my dosage was cut, I had a very minor breakout...3 spots that did not last long and 1 that did, all on the nose. The doc could not explain it, but cautioned that accutane does not insure you will never have a zit again, even if you are on it. Anyway, the oil has not returned at all, the redness which was minor is gone and my trunk has been completely clear for 7 months. I have a few pills left, which will bring my total to 9840mg over 8.5 months and then I am done. I have an appointment for early December, but was told to call before if there are any problems. I was also told I could take another course of treatment. The only side effects I had were chapped lips...but not real bad...and a slightly sore back which corrected when the dosage was reduced. I am cautiously optimistic, but thrilled with the current results. 40 years of oil and breakouts is way too long. Best of luck to you all.

     
    Old 10-08-2009, 07:10 AM   #219
    LowTane
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    Re: Low Dose Accutane

    Hello all... I have been off low dose Accutane for about 2 1/2 months now. I have had a couple of zits on my chin and nose. They were small and cleared pretty quickly. I was alarmed. But I am still staying clear at this point. I have had noticeable oil at the end of a long day. After washing it didn't come back or pool up like it used to before Accutane therapy. My Rosacea has been in check. I talked to my dermatologist about this and he said there is no precedent for Accutane and Rosacea. Well, there really is, multiple studies exist that were completed by vaild researchers. Consult Pubmed and Medscape for recorded studies. I wish Doctors in the US would consider low dose alternatives more frequently. It has been a short time for me since I have ceased Accutane. So the other shoe may drop shortly. The best I can do is to continue to describe what occurs in the coming months. I will do this..... I believe that low dose may be the answer for some people. Everyone is different. I have heard many reports from individuals who have been on Accutane serveral times, while others only once. I have read reports where acne has come back and others where it never returned. Still, Accutane is the only thing that has ever helped me. Its fair to say, that down the road I may have health issues from my experience with this drug. However, many people have reported that they have not had long term problems, even from high dosing. To all of you who land on this page, please remember to tell anyone of concern about low dose possibilities. Direct them to vaild reseach studies found on Pubmed and Medscape. These items may help them with their dermatologist. Maybe some day low dose therapies will be commonplace with this controversial drug. Rememeber don't self medicate with illegal drugs obtained on the internet. Accutane really does require bloodwork monitoring to be safe.

    LT

    Last edited by LowTane; 10-08-2009 at 07:11 AM.

     
    Old 10-09-2009, 09:58 PM   #220
    Sir Hats a lot
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    Re: Low Dose Accutane

    Hi there,
    I'd like to thank you for your updates, Lowtane and Old Lawyer. They have been most informative. I wanted to show you what you have inspired in me and my story. I have included dates from when I started recording this.
    Weight:75Kg
    Sex:Male
    Age:35
    Case: Moderate acne since 14 controlled by daily vigorous exercise and over-the-counter treatments and extremely low fat and suger intake.
    By controlled I mean only a bad pimple every couple of weeks instead of every day. This has been continous and my skin, although clear on some days, still had the healing marks of the pimples from a few weeks ago, so I never was clear in that sense. Luckily for me, my skin heals quick quickly and with little scarring. This year I made up my mind that, even if it kills me, I will rid myself of acne. The OTC stuff never really helped keep my pimples at bay.
    My First success!
    Aug 7 2009: My first success was with the treatment using large B5 dosages, 6 grams a day. The long term affects of this are unknown, but I can tell you that the short term affects are miraculous.
    Aug 21 2009: My skin was clear of new pimples and the old ones have alomst healed up. This cleared me up quite quickly and finally gave my skin time to heal (to the point that one girl who had just met me, on finding out I had a brain, said "I thought you were just a pretty boy". I have never been a pretty boy before!)
    After a lot more reading about it I found that this is not a permanant cure and it's long term affects are largely unknown. There are some case studies of individual paitients suffering terrible side effects after a few years of this, however they were individual cases and not a study on a group. They could be isolated cases (1 in a million chance of happening) or it could be unrelated, however the odds are unknown and I decided to seek a cure more proven.
    15 Sep 2009 : Introduced 20 mg a day of accutane, 6 grams of B5. This decision was mostly inspired by this thread the Lowtane and Old Lawyer have been posting too.
    17 Sep 2009: Wasn't ready for the dry lips and face of accutane. I dropped to 10 mg a day, 6 grams of B5.
    20 Sep 2009: Feeling better and more prepared (with lip balm) and back to 20 mg a day, 6 grams of B5.
    26 Sep 2009: Dropped to 4 grams of B5 a day, keeping at 20 mg accutane. Face is getting a bit red.
    28 Sep 2009: Accutane is holding well with the drop in B5. Very dry skin but not too much flaking.
    30 Sep 2009: One small whitehead, the first since 2 weeks after I started B5.
    6 Oct 2009: Down to 2 grams of B5, 20 mg of accutane.
    9 Oct 2009: Down to 1 gram of B5 a day, increased to 40 mg of accutane for the weekends. I believe that I can take extra accutane over the weekends as I am not going out much. I have basically shut my life down and I am living like a bit of a hermit (well, no big parties) until I have my face under control again.

    To get to my conclusion, so far a low dose accutane regime seems to have almost taken over the role of B5 in 3 and a half weeks. Both methods target dropping the production of skin oils although in different ways. B5 takes away the fuel (makes fat just under the skin break down), whereas accutane makes the engine smaller (makes the skin oil glands smaller). Accutane, being the only permanent cure seems like the obvious choice.
    Can I gather that you found that you acne was controlled by low dose accutane in about a month? Although you are 15 years older I believe that our problems are closer related than I would have to a 15 year old.
    I hope to one day be able to update a thread with "Off accutane, face clear".

    Last edited by Sir Hats a lot; 10-12-2009 at 02:31 AM.

     
    Old 10-12-2009, 02:58 AM   #221
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    Re: Low Dose Accutane

    Hi All,
    I was on accutane, (Roaccutane as its called in Australia) 11 years ago, back when i was in high school. I cant remember the dosage that i was on, but it wasnt a low dose. It did the job, cleared my skin up great, how ever, im now starting to get rosacea, would say its mild, just the red face, cheeks and nose. Its not mild to me of course the constant blushing is so hard to live with. Im wondering if accutane, my have triggered this and or now could even be the cure. I'm wondering if a low dose my help.
    When my skin flares up it is oily, which i guess shouldnt be happening, but maybe its my bodys way of fighting back.
    I guess im asking has anyone taken a low dose to help with rosacea (red face, cheeks, nose and ears)
    And has anyone had there symptoms return, 11 years later?
    Thank you.

     
    Old 10-12-2009, 01:54 PM   #222
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    Re: Low Dose Accutane

    LT,

    It's interesting that some oil is returning now that you are off the low dose. I think that is to be expected. What I'm really curious about is the oil the same as pre-tane? Oily skin in itself is no big deal, I do notice people with a little shine on their skin. Their pores are normal and there is no clogging of those pores.

    Problem oil like I have clogs the pores, enlarges them and causes redness and inflamation. I'm wondering if your oil does come back to pre-tane levels if it will cause skin problems or be normal skin oil.

    I think I read somewhere that tane does cure or fix the oil so it no longer is as sticky and therefore doesn't clog pores and cause all the problems associated with the pre-tane oil.

    I really appreciate all your posts, they have been very informative.

    exxon

     
    Old 10-12-2009, 02:02 PM   #223
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    Re: Low Dose Accutane

    beggsy,

    I've read about people treating rosacea with low dose accutane, but I think it seems to return as soon as you stop treatment.

    This is unfortunate for those of us who are cursed with this problem. If I were you, I'd go to a dermatologist and have him/her evaluate my condition and suggest treatment.

    exxon

    Last edited by moderator2; 10-12-2009 at 03:02 PM. Reason: please do not post websites except as described in the Posting Policy

     
    Old 10-13-2009, 03:08 AM   #224
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    Re: Low Dose Accutane

    According to me treating rosacea with low dose accutane, doent help much and after a certain period of time it comes back.

     
    Old 10-18-2009, 12:57 AM   #225
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    Re: Low Dose Accutane

    Hello everyone! I can tell you that my oil is not the same as pre-accutane oil. I used to blot 20 times a day. I sometimes now find oil on my face in the very early morning or late in the evening after a long work day. I am still Acne free except for an occasional pimple. It has only been about 3 months off of Accutane now. I was a pretty low doser. I don't know what to expect from here on out. My Derm says come on back at the first sign of trouble. Accutane has been a godsend for me. I have had two laser treatments since my Accutane cessation. They are doing a great job on my pores. My Rosacea has been in remission since the start of Accutane. I had a few flares in the first month of Accutane usage and then it subsided. I am not sure how long I will stay clear at this point. I will continue to post periodically to let readers know how I am doing for the sake of curiosity. I will go back on low dose Accutane if need be..... Remember, I support low dosing of this drug and have a great fear of high dosages. I do believe that high dosages have harmed some people. However, some individuals seem to do fine on the high dosages. I just don't want to be made to bleed from ingesting a drug. Doesn't seem like a good idea. Be sure to use Pubmed and Medscape while building your case if you feel like going low dose. Remember that Doctors are skeptical of anything that has to do with the internet or anecdotal blogging. You got to sell them on the legitimacy of the studies that you will find on these sites. Accutane may of may not work for everyone. It was a miracle for me. I still wonder if down the road I will pay some sort of price for using it. You need blood work with this drug for sure. Don't self medicate. Try to convince your Derm that low dose is for you. Remember that even giving less of this drug is still off label. Doctors resist off label treatments to protect their licenses and I don't blame them.....

    PS. I had oil during Accutane treatment, just not a lot. I am about the same now post Accutane.

    Best of Luck
    LT

    Last edited by LowTane; 10-18-2009 at 01:01 AM.

     
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