It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Neuropathy Message Board

  • Small fiber neuropathy ?????

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 10-15-2009, 04:17 PM   #1
    moparman70440
    Junior Member
    (male)
     
    moparman70440's Avatar
     
    Join Date: Oct 2007
    Location: Illinois
    Posts: 40
    moparman70440 HB User
    Small fiber neuropathy ?????

    Hello all. I have been told that my problems "could be" small fiber neuropathy but not enough syudies have been done on this. In all my research it usually affects the limbs. All my problems are in the front torso and sides. My pain moves around and gets worse and worse with any activity. I also almost completely stopped having bowel movements and could barely walk due to pain in hips. I take 4800mg of Neurontin a day and my bowel movements came back,my gait and balance improved and my pain levels decreased somewhat. It still gets worse with any activity. If I lay on my side after a few minutes it feels like lying on a big kindergarten pencil jabbing into my ribs. Anyone out there have it in there torso. Most of the testing has been done on my arms and legs which I don't understand since the problem is in the torso. I have read that a ssimple skin biopsy can be done but the "super specialist" they eventually sent me to said that procedure hasn't been approved yet. I have been unable to do anything worthwhile in 4 years but denied disability again and again due to no test showing a diagnosis. I have undergone many test but they say they are all normal. The disability judge actually said I don't use pain medication yet I have been taking very high dosage of neurontin since Dec of 05. thanks in advance for any help.

     
    Sponsors Lightbulb
       
    Old 10-15-2009, 10:10 PM   #2
    byoung6
    Senior Member
    (female)
     
    byoung6's Avatar
     
    Join Date: Jan 2009
    Location: Martinsville,Ohio,us
    Posts: 122
    byoung6 HB Userbyoung6 HB Userbyoung6 HB Userbyoung6 HB User
    Re: Small fiber neuropathy ?????

    Moparman, I don't know if I can help but, I have had pain in my flank and side for years. I don't have it all the time but made 4 trips to the emergency room over the years thinking I had kidney stones. they never found any but OMG, it hurts. You can't even breath. And yes, laying on my side I get the horrible jab in the ribs, the jabs are on the left side though, the crushing pain starts way down deep on my right side and makes me sweat bullets. I also burn and feel like I'm being electrocuted sometimes. I don't know what yours is from but I have been diagnosed with alot of neuropathies including in my guts. Don't give up, keep going to the doctors and keep telling them and telling them until somebody listens. Drugs like neurontin don't mask the pain like a narcotic. You have to cooperate with the docs and don't expect anything to happen very fast, they take everything one step at a time.
    Good luck.
    __________________
    Fibro,neuropathy,TN, failed acdf 3 level, stenosis of the spine, cvid

     
    Old 10-29-2009, 06:32 PM   #3
    dianne04
    Member
    (female)
     
    dianne04's Avatar
     
    Join Date: Feb 2009
    Location: westfield ny usa
    Posts: 63
    dianne04 HB User
    Re: Small fiber neuropathy ?????

    Moparman, Hello, was just reading through these posts and saw yours....guess we are all hopeful for answers and help. I did have a skin punch biopsy, and they usually do it in three spots on one leg. ankle, knee and hip. Mine was positive, but the strange thing is mine is more apparent (to me at least) in the upper torso. Mine isn't pain per say, but more burning sensations, and mine actually improves somewhat with activity. This is one bizarre condition. It seems no 2 people are alike, nor do any doctors agree on the treatment. It's very individual, and I say if you find something that helps you to function and be at peace..then go for it!

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Hi, I am new to this forum. I have a question about small fiber neuropathy pain. Kim H Neuropathy 9 06-28-2011 07:36 AM
    recently dx small fiber neuropathy LoriAllen Neuropathy 8 09-12-2010 03:34 PM
    Small Fiber Neuropathy Gang anwis67 Neuropathy 29 08-22-2010 05:56 PM
    Small Fiber Neuropathy#2 will54 Neuropathy 110 05-10-2010 11:07 AM
    Who has small fiber neuropathy! Gummybarb Neuropathy 14 10-09-2008 10:44 AM
    small fiber neuropathy dcrisp Neuropathy 5 12-02-2007 06:13 AM
    Just diagnosed with small fiber neuropathy woo97 Neuropathy 6 05-20-2007 01:26 AM
    Small Fiber Neuropathy!! Help... sianmaloney Neuropathy 6 11-17-2006 02:56 AM
    Small Fiber PN--Worse Fear Eased a Bit SarahNina Neuropathy 1 10-14-2006 09:31 AM
    I think I may have small nerve fiber neuropathy? please help??? rekha Neuropathy 1 08-20-2004 03:29 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 02:07 PM.





    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!