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    Old 01-06-2009, 02:02 AM   #16
    kmarshy
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    Re: does a white cell count of 12 mean leukemia

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    Mine was 13 a few years ago and I was sent to a blood specialist and he did a differential and it came back with no abnormalities at the time. I had a left shift and neutrophilia. I have had a high white count now for 4 years and a couple of weeks ago it was 15 and now back to 13. I have had autoantibody tests cause my platelets are high too and my clotting was out. I have been back today and still none the wiser as all these other tests are normal. I am in the UK and my doc is writing to the hospital to see if they want to do any more tests but highly unlikely they would do a marrow test at this stage. I do ache a lot and very tired all the time too. I have not got a clue what mine is..

    I asked this morning about CML though..
    Just an update. I was wrong, they are sending me to hematologist and appointment is through 28th Jan but don't know what tests (if any!!) they are going to do. I was told by my doctor that she would write to see if they want to do any more tests and if they do not then we would leave it at that but out of the blue I have had an appointment. She also asked me if I wanted to go to see an hematologist but i said that I would not want to go if I did not need to go and also she said that she did not want to send me for them to do nothing again. I assume its another blood test to say "your whites are high but we do not know what it is". It drives me crazy. I have had another bleed in the eye over the weekend. I have abnormal bruising but i do feel the bruising as it hurts like crazy and then I get a vein burst. (had 7 eye bleeds over the last few years and also fingers and toes but nothing excessive) They told me something was most probably up with the small vessells as clotting was out too.

     
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    Old 01-06-2009, 08:23 AM   #17
    kmarshy
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    Re: does a white cell count of 12 mean leukemia

    Can someone have leukemia with just a high white count. Even high being 15000 and is the only test a bone marrow when all other tests are negative... I mean when they have tested for everything else that could be raising it...I am getting worried now myself. Can't they tell just by doing a differential test??

     
    Old 01-11-2009, 12:07 PM   #18
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    Re: does a white cell count of 12 mean leukemia

    DNA flow cytometry is a good blood test to request.

     
    Old 01-12-2009, 12:37 AM   #19
    kmarshy
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    Re: does a white cell count of 12 mean leukemia

    I really don't think now they will do anything other than tell me that its normal for me. That is what they have said in the past. They have said that I am not ill as such. I feel that this appointment with the specialist is purely to reiterate what my doctor has already said in that "its quite normal to have a high white count and nothing be wrong".

    Thanks for that about the DNA cytometry. We have to put up with what tests they offer don't we. If they felt the need then they would do one and at 15000 I don't think its that high for them to do anything...In the UK they say its quite normal for some..

    Last edited by kmarshy; 01-12-2009 at 12:42 AM.

     
    Old 02-07-2009, 08:34 AM   #20
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    Re: does a white cell count of 12 mean leukemia

    Update on my high white count. Its down to about 13 now and the platelets are still above normal but having another test now. I don't know the significance of this but its Gen bone Immunoglobins and protein electrophoresis. If anyone has any idea what this could be for then please could you reply. I hope the poster has now had some good news and like myself is not too worried now.

     
    Old 07-30-2009, 01:16 PM   #21
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    Re: does a white cell count of 12 mean leukemia

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    Originally Posted by jhfreybaby View Post
    If you have a cold or stressed that can bring up your white blood count. But if it keeps coming back high then you need to have a bone marrow test done. I went to the Doctor for two years and my count kept coming back at 12-15, he kept saying it was just stress. Finally after two years of hearing this nonsense from my doctor I got mad and told him it is not stress, I am tired, something is wrong. Then he finally went back through all my old tests and saw that I had a pattern of high white count. He sent me to a hematologist and I had a bone marrow biopsy done and it was confirmed that i have leukemia, cll. I was 42 when it first developed. My count as of yesterday was 29. I go every three months. I am in the watch and wait faze, I am in stage 2. My Doctor told me yesterday that if I want treatment they can go ahead and start it. When I got home it hit me and I really got angry. What is up with that. I am not a Doctor I don't know when I need treatment. So I think I am going to go and get a third opinion. i was told if you do treatment too soon that it will not work when you really need it. I have been told so much stuff that now I am so confused and frustrated. It seems like each doctor will tell you something different. Come on Doctors, this is my life we are talking about. Sorry I rambled on I am just frustrated and really have no one to talk to about it. I hope your tests come back negative for leukemia. I know this is going to sound gross but I knew someone that had a high white count and come to find out they had parasites in their intestines. So maybe that is something to get checked. That is an easy fix if it is parasites. take care and good luck
    i totally know how you feel , i have been going back and forth to a blood dr for about 7 years now and every time my numbers are off he says it is cause of elevation but a couple weeks ago i had blood collecting in my eye and the eye dr told me go to your hematologist and i went to him and he said go to your nuerologist and i was like no someone has to know what is going on and im suppose to fly to alaska ( job offer) in a week and i just turned 20 , and they did a white cell count i guess and it came back yesterday and they called and said i needed to come back in because it was at 27 , and i told my mom i don't wanna go back because with my luck he is gonna claim it is elevation to or it is in my head , so im half temted out of frustarttion to fly out and say whatever , but apart wants to know what it is , and the other part is like why has it taken so long for anything to happen

    Last edited by GHSdrummajor200; 07-30-2009 at 01:21 PM.

     
    Old 07-30-2009, 01:40 PM   #22
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    Re: does a white cell count of 12 mean leukemia

    i was told also it was cause of my weight , so i started a diet program at our local office , they give you pills that i guess help boast your energy and whatnot and i dunno how but i have lost almost 30 lbs and the weight is like coming off , and i take the pills but i havent done any exercise , i go to work and come home and sleep , so i dunno if the pills are working that great ( if they are i think it would be more popular) or the weight is coming off cause of something different , im down about 5 more lbs this last week and i havent done anything really except take the pills , its awesome cause i can fit into things i havent been able to in while , but its scary cause i don't think its healthy , i have stopped taking them , and i have been 10x more tired , but still keep losing

     
    Old 08-06-2009, 03:07 PM   #23
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    Re: does a white cell count of 12 mean leukemia

    I had a white count of 17, and it turned out to be a kidney infection and my gallbladder had turned septic.

     
    Old 10-20-2009, 08:10 PM   #24
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    Re: does a white cell count of 12 mean leukemia

    My boyfriend's white count is consistantly high and he is being tested for PV and CML. We do not know much at this point. I have been posting on the Blood board. His spleen and liver are enlarged and his White Count is consistantly high. His Iron H and H is normal but high end. He has not had a Bone marrow aspiration yet.........He does not have the other symptoms of PV like red face and severe itching.

    His white count is 12.6 Normal value 3 to 10
    Absolute Neutriphils 9,400 Normal value 1500 to 7800
    Hematacrit 45.7 Normal value 38.5 to 50

    Oleander

     
    Old 11-06-2009, 06:06 AM   #25
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    Re: does a white cell count of 12 mean leukemia

    Quote:
    Originally Posted by Oleander53 View Post
    My boyfriend's white count is consistantly high and he is being tested for PV and CML. We do not know much at this point. I have been posting on the Blood board. His spleen and liver are enlarged and his White Count is consistantly high. His Iron H and H is normal but high end. He has not had a Bone marrow aspiration yet.........He does not have the other symptoms of PV like red face and severe itching.

    His white count is 12.6 Normal value 3 to 10
    Absolute Neutriphils 9,400 Normal value 1500 to 7800
    Hematacrit 45.7 Normal value 38.5 to 50

    Oleander
    Hi, I hope he goes on OK. I have had a high white count for years now and here in the UK they will not do a bone marrow until its about over 20 I think. My whites are about 15 now and started at 13 some years ago. The highest being 18. My platelets are also high being about 500 odd but I have been tested for the JAK2 and negative to PV. I have just been told I have thrombocytosis and they do not know why. My clotting was out too and also my hematacrit was high but last time I was tested it was just slighly above normal. Most people with PV test positive for the JAK2 so maybe a good one to ask for.

    Regards

    Karen xx

     
    Old 11-07-2009, 08:16 PM   #26
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    Re: does a white cell count of 12 mean leukemia

    Karen, Thank you so much. He has an appt on Nov 19th and I will gently recommend the JAK2 test. His ultrasound of spleen and liver came back pretty bad......

    I appreciate your response. I hope all works out for you. Oleander

     
    Old 11-08-2009, 01:20 AM   #27
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    Re: does a white cell count of 12 mean leukemia

    Quote:
    Originally Posted by Oleander53 View Post
    Karen, Thank you so much. He has an appt on Nov 19th and I will gently recommend the JAK2 test. His ultrasound of spleen and liver came back pretty bad......

    I appreciate your response. I hope all works out for you. Oleander
    You are welcome, Can I also say like your boyfriend, mine is neutrophilia (where the high part of the whites are the neutrophils). I can relate to your worry and please come back and let us know how he goes on.

    Karen xx

     
    Old 11-24-2009, 11:38 AM   #28
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    Re: does a white cell count of 12 mean leukemia

    Quote:
    Originally Posted by Oleander53 View Post
    Karen, Thank you so much. He has an appt on Nov 19th and I will gently recommend the JAK2 test. His ultrasound of spleen and liver came back pretty bad......

    I appreciate your response. I hope all works out for you. Oleander
    Oleander53, Just wondered how your boyfriend went on on the 19th???

    Kind Regards

    Karen x

     
    Old 12-21-2009, 09:20 AM   #29
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    Re: does a white cell count of 12 mean leukemia

    Quote:
    Originally Posted by kmarshy View Post
    Can someone have leukemia with just a high white count. Even high being 15000 and is the only test a bone marrow when all other tests are negative... I mean when they have tested for everything else that could be raising it...I am getting worried now myself. Can't they tell just by doing a differential test??
    I have been off the boards for a while. Let's try to put the white cell count in some sort of perspective. My own wbc was 221 (that is, 221,000) when I was diagnosed with CML in July of 2007. I have read posts by others with wbc greater than 300 at dx. The count alone is not even definitive for CML. 30 years ago, the dx was based on the ratios between the abnormal wbc types (primarily an increase in basophils and eosinophils) along with the total wbc count. In those days, there was not really anything effective for treatment, anyway, so a differential diagnosis could have been more a matter of academic interest. About 95% of CML patients show evidence of a particular chromosome abnormality termed "Philadelphia" (Ph+), named after the city in which the discovery of correlation between this mutation and CML was first identified. This is not a hereditable mutation, it happens as result of some insult (like radiation - or maybe a chemical exposure) to a weak point in chromosomes 9 & 22. The mutation is a partial exchange (called translocation) between chromosomes 9 and 22. This mutation produces an abnormal protein termed BCR-ABL. Proteins are used to carry messages between cells as well as being the building blocks of cells themselves. BCR-ABL causes an abnormal signal to be read by the bone marrow stem cells that produce granulocytes. It is the BCR-ABL protein that causes the marrow to continue making white cells regardless of any actual need for them.

    Last edited by houtex54; 12-21-2009 at 09:21 AM. Reason: clarify number

     
    Old 02-14-2010, 04:11 AM   #30
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    Re: does a white cell count of 12 mean leukemia

    I have Chronic Leucytic Leukemia (CLL) This is a slow growing disease and many people have it and don't even know it, or their numbers are so close to the normal range that doctors don't consider it an option to see a hemotologist until the numbers reach a more serious range.
    I did have one of my doctors tell me that CLL can turn serious quickly and i suppose that is why my Hemotologist keeps a constant eye on my blood work.
    I have had this condition for two years now. My specialist first saw me every three months with blood tests at every 4 weeks. He suggested a bone marrow
    biopsy but I decided it was too early in the game to go poking around with a 7 inch needle. When I went back after my refusal of the biopsy, my doctor said my blood counts were remaining stable. He did, however, do a different type of blood test to replace what the biopsy would show, not as informative but definitely less invasive. You really don't get chemo or radiation until your numbers are really bad. With CLL early treatment does not indicate a better outcome. However, with treatments today, survivors live very long lives if you have the right doctor and treatment. So ask for something less invasive if your number are still low and they suggest a biopsy, see if they will do it. It's worth a try, you can't loose anything by doing so.
    I am now seeing him less often and with an extension of an extra two weeks between blood work. Pardon any misspellings.

     
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