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  • Ferritin skyrocketed 3 to 236 Post Infusion, H & H continue to drop

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    Old 08-30-2009, 10:08 AM   #1
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    Ferritin skyrocketed 3 to 236 Post Infusion, H & H continue to drop

    I did four infusions of Venofer 300, once a week for 4 weeks. My ferritin went from a 3 to 236 in that time but I don't feel any different.

    My hemoglobin and hematocrit are also continuing to drop.

    Confused and a bit alarmed at the rapid increase of ferritin.

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    Old 08-30-2009, 07:18 PM   #2
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    Re: Ferritin skyrocketed 3 to 236 Post Infusion, H & H continue to drop

    What are your H&H values?

    Also, what's your MCV?

    Do they know why you were low on ferritin?

    Old 02-15-2010, 02:23 PM   #3
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    Re: Ferritin skyrocketed 3 to 236 Post Infusion, H & H continue to drop

    Same here - I'm on my 7th round and still don't feel any different...
    I'm 42, had ablation (so no more cycles), had every GI test to rule out bleed, etc
    WBC 9.2, Hcg 9.8, Hct 31.1, Ferritin 87 (after 3 rounds), platelets 482?
    Any thoughts?
    The nurse practioner mentioned a bone marrow biopsy to check why my cells are either not absorbing the iron or not using it to do what it's supposed to - it's a pre-leukemia condition - called Myelodysplastic Syndrome - she said some people live w/it for years and take ProCrit injections and some develop leukemia? I don't know if this is my issue yet - will know after round 10 and more blood work???????????

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