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  • anyone with addisons? please read my symptoms

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    Old 04-26-2010, 06:34 PM   #1
    jessmari
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    Angry anyone with addisons? please read my symptoms

    I have been thru diagnostic hell! It all started in december. I have posted on many boards (mostly fibromyalgia board) And now I have had other symptoms and was researching addison's and realized alot of my symptoms fit. If you could please let me know if you have/had any of these symptoms, if they fit addisons? or are familiar..

    Beginning symptoms:
    Back pain
    joint pain, hip, knee, hands (asymmetrical)
    Muscle pain, Achilles tendon, calves
    Dizziness (maybe 3 times a month)
    Extreme Fatigue
    Insomnia
    Upper stomach pain

    Symptoms/New or still have
    Calf pain
    Skin sensitivity (feels like razors on skin)
    Dry mouth
    Crave salt more than usual
    Neck weakness
    Skin rash on cheast and back of neck
    VERY dizzy (tunnel vision up to 15x a day)
    Skin crawling feeling (maybe anxiety)
    Middle stomach pain extreme stabs (up to 4x a day)
    Jaw tiredness
    Fatigue


    I know there are more symptoms but i have had so many and also gotton used to the symptoms i have now, so cannot remember all.
    PLEASE any insight.
    I go to an endocrinologist on june 1st
    Also have had MULTIPLE tests done if you want to know those. let me kno.

     
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    Old 04-27-2010, 06:21 AM   #2
    sadaboutaddison
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    Re: anyone with addisons? please read my symptoms

    Hi!
    I suffer with Addison's. I would get your blood test results and view the sodium, it sounds like you have low sodium, apart of addison's. Most of my symptoms were related to the low sodium
    joint pain,
    Muscle pain, calves
    Dizziness
    Extreme Fatigue
    Insomnia
    stomach burning
    feeling breathless
    Skin sensitivity (for years in my arms, my hubby would tease me as soon as he would just touch I would be screaming stop.)
    Crave salt (big time, couldn't get enough olives of dipsy doodles(real salty)
    Neck weakness and pain
    very nervious
    Exhausted
    wanting to vomit weak stomach.
    Heart racing up to 140bpm
    I'm on hydrocortisone and I was still having isssues and my new Endo knew I needed fludrocortisone because of the lose of sodium, 4x's in hospital due to the low sodium in 7 months.
    Try to get into see Endo sooner! Do you have any tanning or darken of skin?
    My suggestion is if you vomit or have dihareah go to emergency room.
    BEST OF LUCK!!!! FEEL BETTER!

    Last edited by sadaboutaddison; 04-27-2010 at 07:21 AM. Reason: spelling

     
    Old 04-27-2010, 07:28 AM   #3
    jessmari
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    Re: anyone with addisons? please read my symptoms

    wow.. your symptoms sound just like mine. my heart has been at a resting 98-100bpm. i am on a beta blocker now but it has only lowered it about 10bpm. I do not feel like i have any tanning but the back of my arm has been darker ever since i can remember, almost like spots of darkness.
    the endo's first appt isnt until june 1st. however i am going to call to see if there are any cancelations. when it comes to blood work, sodium levels may be the one thing i have not been tested for.
    thank you for your help.

     
    Old 04-27-2010, 09:16 AM   #4
    LL37
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    Post Re: anyone with addisons? please read my symptoms

    Quote:
    Originally Posted by sadaboutaddison View Post
    Hi!
    I suffer with Addison's. I would get your blood test results and view the sodium, it sounds like you have low sodium, apart of addison's. Most of my symptoms were related to the low sodium
    joint pain,
    Muscle pain, calves
    Dizziness
    Extreme Fatigue
    Insomnia
    stomach burning
    feeling breathless
    Skin sensitivity (for years in my arms, my hubby would tease me as soon as he would just touch I would be screaming stop.)
    Crave salt (big time, couldn't get enough olives of dipsy doodles(real salty)
    Neck weakness and pain
    very nervious
    Exhausted
    wanting to vomit weak stomach.
    Heart racing up to 140bpm
    I'm on hydrocortisone and I was still having isssues and my new Endo knew I needed fludrocortisone because of the lose of sodium, 4x's in hospital due to the low sodium in 7 months.
    Try to get into see Endo sooner! Do you have any tanning or darken of skin?
    My suggestion is if you vomit or have dihareah go to emergency room.
    BEST OF LUCK!!!! FEEL BETTER!
    From what I've read this could be copper toxicity, or even hypoglycemic reactions.

     
    Old 04-27-2010, 10:28 AM   #5
    sadaboutaddison
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    Re: anyone with addisons? please read my symptoms

    Hi!
    Yes, I do have hypoglycemia,(had it for 12 years) but I do not get pains in my calves or arms or crave salt when my sugar is off, I get shakey and nervious and cranky when sugar is low. I get pains in my calves or arm or crave salt and weakness when my sodium is off. Most people who suffer addison's disease do experience low blood sugar at some point in their lives. I hope this helps. Good Luck!
    S-

    Last edited by sadaboutaddison; 04-27-2010 at 10:29 AM.

     
    Old 04-27-2010, 12:26 PM   #6
    jessmari
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    Re: anyone with addisons? please read my symptoms

    My mom has hypoglycemia and i believe i do as well. when i first started feeling shaky and dizzy i ate part of an orange and about 5 mins later i felt a little better. i need to get tested for this as well. copper toxicity has these same symptoms?

     
    Old 04-28-2010, 04:41 AM   #7
    sadaboutaddison
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    Re: anyone with addisons? please read my symptoms

    Hi!
    I never new about copper toxicty, something to look into, I read the symptoms, very interesting. Also look into amalgam filling(silver) they have mercury and copper in them.
    Keep us informed on how you are doing!
    Thanks, Boy, you do learn something new everyday!
    S-

     
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