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    Old 05-13-2010, 07:42 PM   #31
    scout316
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    Re: Constant annoying pressure, anyone ever solved it?

    hello Bill & Gjoy

    I haven't been responding lately because I am not feeling well.Well I had a seizure sunday afternoon and so now I'm feeling really down.I went to visit my best friend today and we prayed together so I feel better now.Like I've mentioned before I have a very deep faith and it gets me through all the health chaos I have to endure.
    Don't think there's a dr. that can help me...I need a good neurologist,gastroenterologist,pulmonolo gist and cardiologist...for all my symptoms...so I guess I should throw a psychiatrist in the mix also....sorry guys I just am so out of it...too much to deal with you know.I hope you will get some answers soon...or at least the relief you both need.
    Anyways how did csf leaks get into the picture?how is that taken care of?Gjoy do you have a chiari?
    I just had a two day migraine and my hormones are all over the place...I am getting head pressure off and on...the worst was the back of the head pressure....sweating buckets again...maybe you have a hormone imbalance Bill...men can have problems with that too...with their testosterone levels.
    Bill my brother is on pristiq now...so far so good he said,but his dr. is going to add another med to it(forgot what is was...but I'll let you know tomorrow).He was on prozac for 20 years....
    Sorry I wasn't on for a bit...the lights from the computer are really annoying me....

    take care~Scout

     
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    Old 05-13-2010, 08:15 PM   #32
    Benit
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    Re: Constant annoying pressure, anyone ever solved it?

    I'm sorry to hear you're feeling so lousy lately, scout. I'll keep you in my prayers.

    My 33 yr old brother was just diagnosed with epilepsy several months ago, so I know what that's like. It's scary. Sometimes I wonder if I'll get it someday, myself.

    CSF leaks have been mentioned in many places on the Net, in conjunction with head pressure. However I still don't understand how a glucose reading fits into that picture, perhaps gjoy could explain it to me again in simpler terms, I'm more than a bit dense!

     
    Old 05-13-2010, 08:46 PM   #33
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    Re: Constant annoying pressure, anyone ever solved it?

    Scout or Gjoy,

    Have either of you ever had an oily sheen in the urine?

    I had that once yesterday--I have a thread in General--and I'm just wondering what that could be from. I have been taking an excessive amount of B vitamins lately.. 100mg of Riboflavin per day, which made my urine fluorescent. But I'm not sure if excess Riboflavin could also cause the oily sheen. I also had a load of garlic about 1-2 hours before the incident.

    It was the only time I ever noticed that. Nothing showed up on my full battery of blood tests a couple months ago either (normal fasting blood sugar) so i still don't think I'm diabetic.

    Do you think this is a concern if it only happens once?

     
    Old 05-14-2010, 04:31 AM   #34
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    Re: Constant annoying pressure, anyone ever solved it?

    Hi benit and scout,

    I am better tonight with the computer than I have been and scout you are worse. Sorry you have been feeling low. I thought you may have been because we haven't heard your cheery voice for a while. I have been concerned about you.

    I think with the time difference our messages are crossed so I will start with the first question.

    My osteopath does manipulation like a chiropractor, not very gentle at all. Lucky I don't do sore, but he usually works on my neck and shoulders and also my back. I am sometimes dizzy when i stand but I head feels somewhat lighter.I feel like I can stand straighter without my head pulling me down. It is not a major difference but quite a pleasant distraction, and he is good to chat to.

    Scout what do the doctors say about your seizures, surely that should be followed up? How horrible for you.

    I started off talking about the csf leaks. My ear has been oozing for many weeks. The doctor said it is caused by a blocked eustachian tube but I have all this salty stuff draining into my mouth. When I searched for salty taste I came up with the csf leak. I have considered this before but because I have so much trouble lying down I thought it can't be. The oozing ear can also be a csf leak so I asked an online doctor about it. The thing with the glucose is there is only glucose in csf and blood no other fluids so if it has glucose it must be csf. Then I read it is not entirely reliable. The strips seem expensive, I looked them up too. I will pursue this line but maybe not immediately. There are other things going on at the moment and the timing for me is not right.

    I do not have chiari, Scout but I read the connection and was thinking about you. You realise I have seen all the doctors you need and got nowhere. What we need is a doctor that will seriously look at the whole person and try to work out what is happening. what is the point of the gastro saying what are you gastric symptoms? Nausea and I have lost weight. That is only a tenth of my probs.Then he passes me off to the psych because he can't find a prob. It is like the mechanic dealing with only one part of the car and ignoring the rest. i know your frustration. but the brain is the manager of the whole body and if something is wrong there it effects all of you.

    I found about the oily sheen in the urine. They said it was quite normal, though I have never noticed it and even had a name for it, so no need to worry benit, but an interesting observation.

    I was told to keep a diary of my symptoms. I think that is a good idea for everyone as when it is written down it is fact. I will have to go back to that.

    Keep positive. I feel better times are coming,

    Gjoy

     
    Old 05-14-2010, 11:00 PM   #35
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    Re: Constant annoying pressure, anyone ever solved it?

    Quote:
    Originally Posted by gjoy View Post
    My osteopath does manipulation like a chiropractor, not very gentle at all. Lucky I don't do sore, but he usually works on my neck and shoulders and also my back. I am sometimes dizzy when i stand but I head feels somewhat lighter.I feel like I can stand straighter without my head pulling me down. It is not a major difference but quite a pleasant distraction, and he is good to chat to.
    Have you ever felt any relief from head pressure after these spinal manipulations? If not, any relief from any other symptoms?

    I am considering seeing a chiropractor. I just got the name of a chiropractor who a friend goes to, she says he's "reliable."

    Don't know about you, gjoy, but I'm not willing to live the rest of my life with the amount of head pressure I deal with now. Mine has got worse through the years, starting out as a 5/10 intensity, now it's up to 8 or 9, and ruining my sleep in a big way. I tried propping up pillows like you suggested, but that practice STILL doesn't provide enough relief to get me to sleep.

     
    Old 05-15-2010, 10:51 PM   #36
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    Re: Constant annoying pressure, anyone ever solved it?

    Hi Benit
    There is not really that much relief from the manipulations. Maybe my neck feels better. I was quite a bit better after the antibiotics for the mastoid infection. I have been off them two weeks and my head has gone backwards a lot. At night it thumps and it wasn't doing that for a while. It is like there is a jet engine in my head sometimes the noise, which I suppose is tinnitus, is so loud. Six months ago my ear just felt odd. I didn't have any extra noise at all, although my hearing was extra sensitive.

    I have heard lots of people having success with chiropractors. My brother has relief from problem backs from one.My son has problems with his neck working on a computer all day and the chiropractor helps him a great deal to. It is good you have found one well recommended. I think osteopaths are slightly different in that they can recommend exercise as well. Here they both do the same amount of study. I think it is 4 or 5 years so they must know a fair bit. Physios also can be good. You just have to find a good one of whatever you choose.

    I am going to get the doctor to refer me to another ear, nose and throat specialist and get myself sorted. I am thinking if I don't have the mastoid infection causing irritation I will loose all my silly symptoms, including the head pressure. I don't want to feel like this much longer either. When I sort me I may have some suggestions that will help you.

    I'm sorry the pillows didn't help. It is not working that well for me at the moment but lying down is still worse. I just wait until I am quite tired and usually go to sleep quickly. I have been waking a bit but am able to stay in bed. At one stage I was up for hours in the night because bed was so uncomfortable.

    I give the chiro a go. It might just be your magic fix.

    Good luck

    Gjoy

     
    Old 05-23-2010, 11:13 PM   #37
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    Re: Constant annoying pressure, anyone ever solved it?

    Anyone found anything to help brain fog caused by the chronic pressure? That is possibly the number one problem it causes for me, besides the simple discomfort of the whole thing.

     
    Old 05-24-2010, 10:23 PM   #38
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    Re: Constant annoying pressure, anyone ever solved it?

    Hi Benit,

    I did have refief from the brain fog that goes with this pressure after I was on antibiotics for 8 courses. a few times I ws able to forget I was sick. and I felt the best I had in years. Now however I in a super fog because I have been off the antibiotics for a few weeks. I am waiting to hear from a doctor who promised to get me in to see an infections specialist a week ago.

    Did you have the brain fog and head pressure before you went on your current medication? I take no meds so at least I can discount that.

    Sorry I can't help any more than that. Did you try the chiro? It works really well for some people, maybe you are one.

    Gjoy

     
    Old 05-25-2010, 09:03 PM   #39
    Benit
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    Re: Constant annoying pressure, anyone ever solved it?

    I got the head pressure and brain fog 5-6 years ago. But at that time I had already been on Paxil for 4 years.

    Ever get so frustrated you feel like throwing your head through a wall or destroying inanimate objects? I do. Thankfully there *may* be a possibility of getting minimal insurance soon. Not sure that insurance will be the magic ticket to wellness, though.

     
    Old 05-26-2010, 11:44 PM   #40
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    Re: Constant annoying pressure, anyone ever solved it?

    Hi Benit
    I haven't been suffering this problem as long as you and I am slowly moving along a path to assistance with it, so I haven't yet felt as frustrated as you obviously feel. I am frustrated with other things. I have some weird symptoms and sometimes my legs don't do what I would expect. I stopped driving last October and as we live out of town I have to get a lift if I go out. This is my major frustration. The other one is to do with my eyes I can't read for any length of time or watch a movie. How I would love to curl up in a chair and forget everything by watching a good movie. I long to do that, especially as now it is nearly winter here and the days are so short I cant distratch myself with going outside.

    I think you need to plan really carefully who you see if you are able to get the insurance. Only go to recommended people who may be sympathetic. Even though I have had access to whoever I like I have got nowhere. I am only working out now how I should have tackled things. I think the best thing I have done is stick with the same GP because at least now he knows me. Although maybe someone else would have been in more of a hurry to see me well. I also went to the psych regularly and she knows me. She is meant to be sorting some help out for me from am infections doc. The trouble is the doctors cannot see how lousy you feel.It is 9 months today since I first went to a doctor feeling desperate for help and thinking I would get it, and I am feeling worse than that. Unfortunately only some doctors will listen. You need to find the right ones. Do you think you could reduce your meds? I know you would have to consult your doc. Then if the problem was the same they couldn't blame the meds. Just a thought.

    Hang in there,

    Gjoy

    Last edited by gjoy; 05-26-2010 at 11:45 PM.

     
    Old 05-28-2010, 12:40 AM   #41
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    Re: Constant annoying pressure, anyone ever solved it?

    Dear gjoy,

    How is it you can't read or watch a movie? What's wrong with your eyes?

    The other question I had is.. do you have any kind of IBS (irritable bowel syndrome) ??

    I have terrible, severe IBS-C. I suspect there may be a strong connection between the head pressure and my gut problems. The reason being is eating helps relieve the pressure for up to an hour sometimes, and bowel movements also seem to have a direct effect on the pressure, usually making it worse but sometimes making it better for about an hour.

    I think I'm going to try Peppermint Oil to see if it does anything for the spasming/bloating in my gut. Maybe if I can relieve the spasming and bloating down there, the head pressure could get better temporarily? Well, that's one idea.

     
    Old 05-28-2010, 11:27 PM   #42
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    Smile Re: Constant annoying pressure, anyone ever solved it?

    Hi Benit,

    I have a problem with my eyes. They call it photophobia because I have problems with the light. I can at times see in the dark and at my worst would even ask the doctors to turn off the lights. It causes different reactions. Sometimes I get pain in my eyes. Sometimes my head starts throbbing. Sometimes I get like heartburn in the back of my throat. Sometimes I get pain in my lower back, and sometimes my stomach bloats and I get the chest pain. That may go into the breathing cramps where my chest tightens so much I can't breathe until it lets go. It can also cause me to sweat. I have lots of trouble using the computer for any length of time. I turn the brightness down to it lowest and it may or may not be okay. I went to an eye specialist who says there is nothing wrong with my eyes and really spent the time telling me not to worry. Sound causes problems also so the television is a nightmare. I have found if I limit light and sound I get by. I wear a hat outside. This morning we had a visitor and I went outside to chat to him. I realised the light was bothering me, but put up with it. Then I had to go shopping so I was wearing my winter coat and my sun hat and feeling pretty silly. It was easier to get away with in the summer.

    It is interesting you talk about the bloating. I have a real problem with that. I am on this restricted diet and take the supplements I am told. I take drops every day meant for irritable bowel syndrome and heartburn and I still have both. My stomach bloats when things are happening, like now. My husband has turned on the television and it is too loud for me. Now I have the chest pain and I am having trouble with my breathing.
    I will come back later,

    Gjoy

     
    Old 05-29-2010, 03:05 AM   #43
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    Re: Constant annoying pressure, anyone ever solved it?

    Hi Benit

    You know how we discussed that taste that comes in my mouth, I call it the salty taste, I think it is that which causes the stomach probs as it drains through me. My psych did not come good with the infections specialist. She said to ask the GP if he knows someone when I rang after 10 days. She obviously doesn't know what living in this body is like. Wouldn't it be good if we could just give the doctors a taste of what we put up with, then there would be some action. I have one more chance of help this week, a contact at the medical section of the university. I am happy to be anyones case study as long as they help me. Do you have any more symptoms? I think everything of mine goes together, solve it and I'll all come good. I hope. All the probs started over a few months, except the unwell feeling (head pressure but minor) I have had for a very long time.

    I hope we can solve you before you go near a doctor so you don't have to waste time and money over unnecessary tests and doctors visits.

    All the best

    Gjoy

    Last edited by gjoy; 05-29-2010 at 03:06 AM.

     
    Old 05-29-2010, 08:56 PM   #44
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    Re: Constant annoying pressure, anyone ever solved it?

    Dear gjoy,

    I'm so glad you're willing to fight this thing with me. Two minds are better than one.

    Well I just submitted the application for Independence Blue Cross insurance, it would cost at least $100 per month if I can get it, but I have been denied by another company before so I don't have high hopes. There is a $269 plan where you cannot be denied, but that's a bit too steep for me. If eventually I do get insurance, I'm thinking an MRI of my head would at least be able to rule out several conditions, if it can't point toward any specific one.

    Other symptoms? Chronic left ear tinnitus, severe IBS-C (mentioned before), trouble moving my eyes, dry eyes, chronic fatigue, weakness, abnormal heating sensations, lessened skin sensation, poor coordination....

    I also have a little bit of light sensitivity, also some occasional odd sensory stuff, like if I turn the lights out suddenly, my brain feels "out of place" for a few moments; sometimes also a dissociative "not quite there" feeling. However I do not have the extreme light/sound sensitivity you have. That to me sounds like a chronic migraine problem.. have you taken any drugs (even OTC drugs) for migraine and seen any results?

    lemme know,
    Bill/Benit

     
    Old 05-30-2010, 12:21 AM   #45
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    Re: Constant annoying pressure, anyone ever solved it?

    Hi Bill,

    We have so many similar symptoms. Maybe when they solve me they can solve you too. The sound, light sensitivity improved on the antibiotics as did everything else. I also have the tinnitus. I notice it especially when I go to bed. But it gets louder if I have over done it. I try to pretend I am normal but I know I am not. Most people cannot see how I feel except when I wobble or have trouble walking. I have had trouble with dry eyes. I am drinking as much as I can and that may have helped. That was one of early complaints.

    What sort of problems does the IBS cause, is it cramping or diahorrea? I have had problems with both. What do you mean by abnormal heating sensations? To you overheat easily, light hot flushes? By lessened skin sensation to do mean lessened pain sensation like I have or is the numb feeling I have also or different. My face feels like I have been to the dentist and the needle has half worn off. Do you have the tingling like that I have? At the moment my arms are feeling weirder then ever, this happens often, like numbness but not quite. I have learned to live with that disassociated feeling. It has been getting worse and worse these last weeks since I came off the antibiotics. As I said for a moment I felt normal.
    I think the MRI is a good idea as you can then discount a lot of things. But maybe if you found the right doctor they would be able to work it out without one.

    At one stage they were talking about chronic fatigue syndrome as my problem I have had more energy since I started the diet and then I lost it again, but regained it on the antibiotics.

    I have not had migraine medication. I have avoided everything except natural supplements and the antibiotics.

    Bill, I know sometimes you put yourself down but I think you write paricularly well. I feel I cannot keep up to your standard, even though I am a teacher in my well life.

    Tomorrow I hope to be in touch with the university doctor. Fingers crossed.
    I'm sure together we will work it out,

    Gjoy

     
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