It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

  • crps/rsd and tattoos

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 09-15-2010, 10:09 AM   #1
    chilimaiden
    Junior Member
    (female)
     
    chilimaiden's Avatar
     
    Join Date: Apr 2010
    Posts: 20
    chilimaiden HB User
    crps/rsd and tattoos

    I just was told that i cannot finish or get any new tattoos bc of the crps and the chances of it spreading. i am so scared bc it has moved from my side of my foot, to my ankle,now my toe...and i have pains going up my leg, and inmy knee...and i want to ignore the pains in my other leg completely.


    anyone have anything like this. ive been out of work over a year now...have a case going, was just diagnosed with tmj now...just too much. i want my life back. really was excited about getting a tattoo to make me happy...

    can't do much daily, have tried volunteering, but cannot wear closed toed shoes...let alone my sandals barely, now...it's just freaking me out!

    i am waiting for work comp to approve the trial scs, bc my dr, dr prager at ucla said that he is hesitant of the ketamine injections bc of my past psych. history.

    help if anyone has any answers...oh, and taking lyrica

    thanks

    sorry my keyboard is messed up

    mindy

     
    The following user gives a hug of support to chilimaiden:
    gettinghopeless (02-20-2011)
    The Following User Says Thank You to chilimaiden For This Useful Post:
    gettinghopeless (02-20-2011)
    Sponsors Lightbulb
       
    Old 01-03-2011, 01:01 PM   #2
    starshyyne
    Newbie
    (female)
     
    starshyyne's Avatar
     
    Join Date: Apr 2009
    Location: BC, Canada
    Posts: 8
    starshyyne HB User
    Re: crps/rsd and tattoos

    hey.

    i understand that situation that you're in with the wanting to get a new tattoo, and the crps holding you back. from what i've read, and been told, it is a huge possibility that getting a tattoo could cause a huge flare-up and even for the crps to spread to that location on your body. and with tattoos the ink is injected just under the skin, but above the muscle, which i've been told could cause the crps to get into that tiny little space, and not much can help that.
    i have my one tattoo on the right side of my ribcage, and have always wanted to get my second one up the back of my left leg. but my crps started in my left leg/foot and has spread up the left side of my body to my arm and hand, etc. so getting the tattoo that i want on my back of my left leg just seems like a stupid idea for me. even though in some ways, i want to get it because it would be like i'm taking ownership of my leg back, if that makes any sense. like i'm adding something to my leg that i want on it, that i can control, unlike the pain and other changes. i'm really not sure if that makes any sense at all. :s
    i'm not sure if you wanted to go into more detail about this, but you said a little bit about the ketamine and the doc not wanting to do it because of past psych history... what exactly are you meaning by that. because a lot of psych problems can be dealt with, to help you out, and also to let the doctor feel comfortable with other treatments.
    i hope this helps you out a little bit, and i'm around to talk if you want to talk about anything at all.
    take care.

    ashley

     
    The following user gives a hug of support to starshyyne:
    chilimaiden (01-03-2011)
    Old 01-03-2011, 02:03 PM   #3
    chilimaiden
    Junior Member
    (female)
     
    chilimaiden's Avatar
     
    Join Date: Apr 2010
    Posts: 20
    chilimaiden HB User
    Re: crps/rsd and tattoos

    Ashley,
    WOW- that was amazing- I want to hug you right now so here is a virtual hug-ooooooooooo!

    Well,
    I am 32 years old. Here is the story. It is a bit long, so I hope you have a chair-and you are comfortable. I have been through a lot, to say the least. I mean, lots of trauma. In '95 I was hospitalized at a psych ward and at that time they diagnosed me which was kind of crazy for something that I didn't have. But, my records show some detachment, schizophrenaform, blah blah blah. I DO NOT HAVE THIS...at all!!! Not even close!!! I have what normal people have having gone through all the trauma I have-it is called PTSD. Anyway...been dealing with life pretty darn well if I must say so myself, therapy, psychiatrists, managing, working up to 70 hours a week at times, doing restaurant management which is hard to say the least...but I LOVED...LOVE...LOVED...LOVE it! Yep, for almost 13 years I did that...until this ridiculous accident in 09, July 21st 09...BAM this fire extinguisher came down on my right heel/foot, and that was the end of that!

    Since then, ugh...I get sad thinking about it, but wow...when I 1st heard possibly I might have RSD/CRPS and saw my dad's face...and he said, "Oh, I hope not", I now understand! My heart seriously goes out to anyone who has this! As you know, not treated...it gets worse...and this is what is happening. So, I have a primary care physician, who I am changing thank god, a CRPS specialist at UCLA- DR PRAGER- who is amazing, and my attorney who is great. If I could have my life back, and not get any $$$...hand it over! Thank god for my parent's and unrelentless (I think that's the word?) support from my friend...because I wouldn't be here. I am fighting bc I know work comp wants me to just give up!

    They like to deny, deny, deny! Currently, I am fighting to get this spinal cord stimulator with the 4 week extensive program at UCLA which will include ketamine infusions, biofeedback, physical therapy, etc etc etc!

    In the meantime, my crps that began in my heel, spread to my toe, ankle, up my leg, into my left leg, all the way to my right arm, hand. My right side is so weak it is sad. I can barely hold hands with a man I had to have unexpected surgery on my toe, which might be related to all of this, don't have biopsy results yet...and tried to use a crutch for one day, and couldn't

    Me...miss exercise, physical, restaurant manager, I can't do anything! I am living with my parents because I can't drive I was driving with my left foot, but even that became too painful, so I just gave up

    I have no more freedom---I'm trapped...

    It's strange. I was diagnosed with this rare condition/disease called Vestibulitis in 98 and in 99 had surgery for it. Well, it came back with a vengeance. At that time I said...I will not let it control me, or my life. And...I didn't!!!! I worked through it-literally.

    This crps is so debilitating...drains me out, when I don't do anything !!!!
    I'm so sensitive. Today, those spasms almost made me tell my parents we couldn't eat breakfast at the restaurant because I just couldn't get comfortable I fought through it because I didn't want to ruin it for them!

    I hope this is all making sense!

    I wish there was an answer to it all...I really do! I am beyond depressed...

    And, regarding the tattoos- well, maybe one day I will get to finish mine, and do a memorial tattoo for my best friend/ex boss who passed away in 09.

    We all need to just continue to smile at least once a day

    So....here

    I know I ranted, sorry.

    It's hard...and only we understand each other.

    Lots of hugs,
    Mindy

     
    Old 01-04-2011, 04:34 PM   #4
    starshyyne
    Newbie
    (female)
     
    starshyyne's Avatar
     
    Join Date: Apr 2009
    Location: BC, Canada
    Posts: 8
    starshyyne HB User
    Re: crps/rsd and tattoos

    Wow, I am really glad that you replied and am totally okay with you sharing all that. I don't take it as a rant, I think it's just that sometimes we get so filled up with all this stuff that we don't know how to share, or can't share with some people, so when we find someone we can actually talk to, we just blurt it all out. I've done that myself numerous times.

    As to the psych stuff, I believe that if you find a good doctor, they will not care about all the stuff in your past. Because I've been through all the psych stuff when I was a teenager and early 20s and was diagnosed with one thing after another, and on meds and seeing counsellors and being hospitalised and bla bla bla. And have now come to realise that I was just reacting to all the **** that had gone on in my life and around me. Not on any meds for moods or depression or anything at all, and haven't been since just before I injured myself and got crps. (Today is exactly 4 years since my original snowboard injury )

    Take care.


    Ashley

    Last edited by moderator2; 01-11-2011 at 08:07 AM.

     
    Old 01-24-2011, 07:57 AM   #5
    Sumterdoll
    Newbie
    (female)
     
    Sumterdoll's Avatar
     
    Join Date: Jan 2011
    Location: Sumter, South Carolina
    Posts: 3
    Sumterdoll HB User
    Re: crps/rsd and tattoos

    RSD/CRSD can spread to both legs. Mine has done this. I usually have two good days and the rest are bad days. I have trouble wearing shoes also. I have to make myself wear them. You may have a long battle ahead of you. Keep the faith and pray alot!
    When you have the bad days try to relax and when you have the good days make the most of them, but do not over do it! You are in my prayers!

     
    Old 02-05-2011, 12:12 PM   #6
    lindisease
    Newbie
    (female)
     
    lindisease's Avatar
     
    Join Date: Feb 2011
    Location: Okc, oklahoma
    Posts: 8
    lindisease HB User
    Re: crps/rsd and tattoos

    I didnt know tattoos could cause RSD to spread... I have Rsd and i got a new tattoo, it didnt spread... i mean maybe im confused though. i have rsd in my right hand and wrist, got my tat on my left arm, so if i had gotten it on my right it could have spread??

     
    Old 02-06-2011, 08:46 AM   #7
    chilimaiden
    Junior Member
    (female)
     
    chilimaiden's Avatar
     
    Join Date: Apr 2010
    Posts: 20
    chilimaiden HB User
    Re: crps/rsd and tattoos

    Hey, how long have you had it? What is the severity? I don't know if it is true or not? I realllly want to finish mine, and get one other...then I will be done- hahahaha! That's what I say-right! But, I did just get approved finally after 1 1/2 yrs for the trial spinal cord stimulator, so maybe now I can get my tat finished. Mine began in my right foot from a work comp injury, and has spread, or is spreading to my left leg, and right arm/hand. Hopefully this scs will prevent all that from happening.

    Since my tattoo is in the middle of my upper back, I am afraid to have it there. Your response got me all excited! Maybe I really can finish it?

    I am curious now about your story! If you wouldn't mind telling me more, I would love to know.

    Thanks and hugs.

    Mindy

     
    Old 02-06-2011, 09:13 AM   #8
    lindisease
    Newbie
    (female)
     
    lindisease's Avatar
     
    Join Date: Feb 2011
    Location: Okc, oklahoma
    Posts: 8
    lindisease HB User
    Re: crps/rsd and tattoos

    Well have had RSD since june 2010 and im not really sure how bad it is because i cant find a dr with any knowledge on RSD. I cut my wrist and struck my medial nerve. i had surgery to fix the nerve before i was told i had RSD. I think i have CRPS2 or whatever because it was caused from a damaged nerve. I got the tattoo in august on my left arm but my RSD is in the right. the pain from RSD was much greater than the tattoo. im not really sure if it matters. I'm sorry to hear about your accident. I hope you can finish your tattoo. After making my gf read your post she told me i cant ever get another tattoo, big bummer, i wasn't even close to being finished!!! haha its all your fault!!! just kidding i dont want to take the chance until its proven to me that it wont cause more issues.

     
    Old 02-06-2011, 09:22 AM   #9
    chilimaiden
    Junior Member
    (female)
     
    chilimaiden's Avatar
     
    Join Date: Apr 2010
    Posts: 20
    chilimaiden HB User
    Re: crps/rsd and tattoos

    OH NOOOOOOOOOOOOOOO I am so sorry! Well, I have constant pain, have had 10 lumbar sympathetic blocks which really haven't done anything except possibly given me some feeling back in my foot temporarily. I am really putting a lot of faith back into this scs! I see a doctor who specializes in RSD/CRPS at UCLA our here in Los Angeles, CA...Dr. Joshua Prager. People come from all over to see him. He is pretty advanced with his knowledge, however...I don't believe any dr. really knows what they are doing 100% and I think my case is very atypical of course...grrrrrrrrr.

    If you have any other questions, you can ask me. I have been going through a lot, not only physically, but psychologically as well of course. Not working is not fun.

    I say taking care of ourselves is #1.

    Take care, I'm always here for you if you need to ask a question, of just say hello. I'll let you know how the scs goes.

    Mindy

     
    Old 02-06-2011, 09:44 AM   #10
    lindisease
    Newbie
    (female)
     
    lindisease's Avatar
     
    Join Date: Feb 2011
    Location: Okc, oklahoma
    Posts: 8
    lindisease HB User
    Re: crps/rsd and tattoos

    Thanks I really appreciate that. I dont have an income or insurance because i was fired for from my job for this. My girlfriend went from being financially set to pay check to paycheck lifestyle because of me. I'm lucky to have her but wish sometimes she would just take a break from my RSD. She reads nonstop all day about RSD and sends me to doctors that seem to have some knowledge but they always google it right in front of us. pretty much tells me they dont know what they are dealing with. I am told pain medicines are not an option and that i need to find a way to deal with the pain mentally and they treat me as if i have arthritis. only med they put me on for pain is mobic. At first i believed them that opioid pain meds were not used to treat any form of CP so i tried the non-narcotic approach which is very tough. i just want my life back. I had to limit my college to one class per semester because i can't sit still or concentrate. i buy lortab off the street on school days now. I have to risk being taken to jail just so i can concentrate at school and have somewhat of a normal day. I know narcotics are bad for me and i know i can become dependant on them but that is the bad in them the good in them is much greater than the bad i do believe personally. i would rather take them and do my physical therapy to try and get it in remission and worry about the addiction when that time comes. i mean there are rehabs for it and other medication to lower the effects of withdrawls. RSD is much more painful than withdrawls and RSD cant just go away on its own over a course of a couple weeks without therapy but withdrawls go away on there own after a couple weeks of being off them. Am i crazy for wanting to take a narcotic for my pain? Are the doctors right that it is not an option? i have read on many sites where they use opioid meds to help with RSD pain. Yet my doctors have never stumbled across it. I havent ever asked a DR for narcotics but i'm going to now. Even though i have never mentioned them, my doctors still lecture me about them as if i had inquired about it. they label me a drug addict before they even meet me.

     
    Old 02-07-2011, 06:45 AM   #11
    chilimaiden
    Junior Member
    (female)
     
    chilimaiden's Avatar
     
    Join Date: Apr 2010
    Posts: 20
    chilimaiden HB User
    Re: crps/rsd and tattoos

    Quote:
    Originally Posted by lindisease View Post
    Thanks I really appreciate that. I dont have an income or insurance because i was fired for from my job for this. My girlfriend went from being financially set to pay check to paycheck lifestyle because of me. I'm lucky to have her but wish sometimes she would just take a break from my RSD. She reads nonstop all day about RSD and sends me to doctors that seem to have some knowledge but they always google it right in front of us. pretty much tells me they dont know what they are dealing with. I am told pain medicines are not an option and that i need to find a way to deal with the pain mentally and they treat me as if i have arthritis. only med they put me on for pain is mobic. At first i believed them that opioid pain meds were not used to treat any form of CP so i tried the non-narcotic approach which is very tough. i just want my life back. I had to limit my college to one class per semester because i can't sit still or concentrate. i buy lortab off the street on school days now. I have to risk being taken to jail just so i can concentrate at school and have somewhat of a normal day. I know narcotics are bad for me and i know i can become dependant on them but that is the bad in them the good in them is much greater than the bad i do believe personally. i would rather take them and do my physical therapy to try and get it in remission and worry about the addiction when that time comes. i mean there are rehabs for it and other medication to lower the effects of withdrawls. RSD is much more painful than withdrawls and RSD cant just go away on its own over a course of a couple weeks without therapy but withdrawls go away on there own after a couple weeks of being off them. Am i crazy for wanting to take a narcotic for my pain? Are the doctors right that it is not an option? i have read on many sites where they use opioid meds to help with RSD pain. Yet my doctors have never stumbled across it. I havent ever asked a DR for narcotics but i'm going to now. Even though i have never mentioned them, my doctors still lecture me about them as if i had inquired about it. they label me a drug addict before they even meet me.

    I did not realize you have CP as well? So you have CP and CRPS? Or is it just CRPS? We have to help ourselves sometimes. I tried all kinds of the drugs they wanted me too, only because I am working with work comp, so they have to pay for anything my pain specialist-Dr. Prager recommends. I also see a psychiatrist so he was prescribing me my pain pills, as Dr. Prager says that all those opiates really don't help people with CRPS...they only help to relax you. He is right, the same with MM in that sense. I wanted it so bad because after trying Gabapentin/Neurontin, Lyrica, Cymbalta (which does help a lot of people) and having a very high dosage of Percuset after nothing else helped in desperation...I went for medicinal stuff...and that doesn't help either, so I am on absolutely nothing.

    Tomorrow I will hopefully have some relief- I just hope so. You said it right, I hate that people have to live with us through this, it is very frustrating.

    Good luck to you. It would be nice if you could maybe find a good doctor, or raise some money to come out here-road trip! Fundraiser? What about family? I don't know...just some options...

    Hold your head high, and keep walking with your feet forward, and don't give up!

    Mindy- hugs

     
    The Following User Says Thank You to chilimaiden For This Useful Post:
    paininthefoot11 (06-15-2011)
    Old 02-08-2011, 04:12 PM   #12
    Homie2011
    Senior Member
    (female)
     
    Homie2011's Avatar
     
    Join Date: Jan 2011
    Location: New Mexico
    Posts: 136
    Homie2011 HB UserHomie2011 HB UserHomie2011 HB UserHomie2011 HB User
    Re: crps/rsd and tattoos

    I say do it...I first got rsd in head/face now its running rampant...so, what..I got 2 microderms on neck -snake bite- Voo Doo Godsmack..thats my RSD..just bad VOO DOO...and one in nose to remind me NEVER to do OPIATES...I am designing my Upper Body Tattoo Mural..When they dig up my body in 100 years......they will know just where I have been...no questions just have to figure out meaning....maybe I will bury a note with self that explains my mural, cuz by that time Humans will be lazy and wont get it......


    God if I just had a body.....you just dont know the things I could do......I love body art! I ve let my daughter and son both express themselves...but not overly..just within good taste....daughter does not look like tramp and son does not look like hoodster...

    Get Your Tatt on or Piercing ON!!!!!!!!!!!!!!!!!!!!!!!!!

    Peace,
    Kim

     
    Old 06-11-2011, 09:51 AM   #13
    gspence
    Junior Member
    (female)
     
    gspence's Avatar
     
    Join Date: May 2011
    Location: Windsor, NY
    Posts: 23
    gspence HB User
    Re: crps/rsd and tattoos

    Boy did you say a mouth full. We all can go on and on because only we can understand how each other feels and our stories have been a long long journey to where most of us are now! Thank you.

     
    Old 06-11-2011, 10:06 AM   #14
    gspence
    Junior Member
    (female)
     
    gspence's Avatar
     
    Join Date: May 2011
    Location: Windsor, NY
    Posts: 23
    gspence HB User
    Unhappy Re: crps/rsd and tattoos

    Kim,
    What is going to happen with my face now. I have had it in both legs from the knees down for 6 and a half years and that has me in wheelchair. I was told about 2 or3 months ago that it is now in my face, yet I have lost a lot of hearing in one of my ears already and they are not sure if that is why. I also have scalp pain and it is painfull to chew. Please help!

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    tattoos and MRIs MSNik Multiple Sclerosis 19 07-12-2008 03:12 PM
    what blood work shows that you have crps Dylsierra Reflex Sympathetic Dystrophy (RSD) (CRPS) 3 11-30-2007 10:16 PM
    Self-injury and tattoos? Chain Self-injury Recovery 4 02-10-2007 05:44 PM
    CRPS - Is Pain Doctor able to DX? Budko Reflex Sympathetic Dystrophy (RSD) (CRPS) 12 06-03-2005 04:38 PM
    Surgery and RSD or CRPS aicirtapo Reflex Sympathetic Dystrophy (RSD) (CRPS) 10 02-18-2005 10:52 PM
    CRPS or RSD and surgery aicirtapo Pain Management 4 02-18-2005 10:39 PM
    CRPS II not sure if I have it or not? katkemp Reflex Sympathetic Dystrophy (RSD) (CRPS) 14 07-09-2004 06:38 PM
    CRPS TEAMO Reflex Sympathetic Dystrophy (RSD) (CRPS) 3 10-09-2003 11:55 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 04:23 PM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!