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  • do I have lyme disease? band 41 igm and bands 41,23 igg positive

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    Old 04-16-2011, 03:08 AM   #1
    bigd11
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    Question do I have lyme disease? band 41 igm and bands 41,23 igg positive

    Hello out there. My doctor tested me for lyme disease and says I have it via the following results:

    immunology 133
    igm 41 positive
    igg 41, 23 positive

    He wants to put me on 1-3 months of antibiotics.

    My main symptoms are: 1) feeling hot/flushed/feverish off and on when I have no fever 2) chronic daily headache 3) low energy/fatigue 4) heart palpitations/rapid heartbeat (though this phase seems to have passed!)

    Question: he also said that according to my blood work, I had epstein barr virus at one time BUT no longer have it. Even though I no longer have it, could it still be causing those bands to come up positive? Any thoughts?

     
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    Old 04-26-2011, 09:07 AM   #2
    Kaycee41
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    Re: do I have lyme disease? band 41 igm and bands 41,23 igg positive

    Hi! I have almost exactly the same symptoms you have and I also had band 41 show reactive on both igm and igg. However, my regular doctor said I am negative. The Quest Lab report stated the test was negative. I now have an appointment with another doctor who specializes in Lymes. I have not told my regular doctor about this other appointment because he seemed so put-off when I asked to see my tests. Have you found out anything since your post on the 16th? I don't know anything about epstein barr virus. I do know that I was exposed to Leptospirosis years ago when I adopted a dog who was later diagnosed with lepto. I also wonder if that could cause my reactive band. I will ask the doctor when I go in two months (doctor had no appointments till then). I will ask him about the epstein barr when I go if you are still wanting to know.

     
    Old 04-26-2011, 09:34 AM   #3
    bigd11
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    Re: do I have lyme disease? band 41 igm and bands 41,23 igg positive

    Thanks for the reply. Sounds like we're in the same boat trying to figure this thing out. I was actually mistaken. 41 is positive for my IGM. 41 and 30 are positive for my IGG. I went to another dr. to get a 2nd opinion (an infectious disease specialist). He said that based on those results and my symptoms the chances of me having lyme disease are unlikely (but possible). He wants me to re-test though through his lab. I've done a lot of research and there are a lot of things that can cause a false positive:

    autoimmune diseases
    bacterial infection (such as syphilis)
    viral infections (such as herpes/epstein-barr)
    periodontal disease
    noticeable arthritis

    I also read a really interesting article online that says that a lot of people who are diagnosed with lyme disease might actually have some kind of stealth virus that caused the positive bands (perhaps not even lyme). Anyway, I think the best thing to do is to relax and do your best to take care of yourself until your dr.'s appointment in a couple of months. I'm interested in exploring the possibility of 'something else' causing the positive bands other than lyme so I will continue to investigate that and ask another doctor. I'll keep you posted as you can do the same!!! Best of luck!!!

     
    Old 04-26-2011, 10:35 AM   #4
    Kaycee41
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    Re: do I have lyme disease? band 41 igm and bands 41,23 igg positive

    Did your doctor say which lab he will be using? From some of the other post I have read on this board, Igenex Lab in CA is the leading lab for Lymes testing. This is the lab that the LLMD I will be seeing uses. But, even using this lab, there seems to be no test that can say for sure if you have lymes or not. I hate to go through months (maybe years) of antibiotics...the side-effects and costs....and not be 100% sure what it is. That's the rub...you may never be sure. Right now my symptoms are very much like yours.

    Slight headache...more like a foggy feeling
    Fatigue
    Low-grade fever (99-100) and feeling "feverish" almost everyday
    Achey joints in hands and knees
    Anxiety like feelings
    Feeling of tightness in my throat

    Do you know if you were bitten by a tick? I have been bitten many times over the years. I spend a lot of time in the woods in an area populated with deer. That is one of the reasons I suspect Lyme's even though my doctor doesn't agree. I never had a bulls eye rash of flu-like symptoms, but I have had small red area around the bite that itched. Since I have had contact with ticks my whole life, it's hard to say when I may have been infected. I am very careful to check myself whenever I come in from being in the woods, but the ticks are tiny and I have missed some that were in my long hair or on my back (under the waistband of my jeans). I work with animals, so that also puts my in contact with ticks.

    I'll be sure to post what I hear from the specialist. Look for my post in June. Hope you get the answers you need.

     
    Old 04-26-2011, 06:37 PM   #5
    bigd11
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    Re: do I have lyme disease? band 41 igm and bands 41,23 igg positive

    1st western blot was done by stonybrook labs on long island
    2nd will be done at nyu
    and i don't think i was ever bitten by a tick but I can't say for sure
    good luck!
    keep me posted!

     
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