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Cancer: Uterine Message Board

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    Old 09-14-2011, 10:00 AM   #1
    lilmama511's Avatar
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    So I totally don't even know how to write this out because my head is still overwhelmed. I will know more tomorrow, but I need to get this out now.

    I've always had awful and irregular periods. We're talking cramping, pain, headaches, to go along with PMS. I've always felt when I was ovulating and as a result never had to take OPK's when TTC.

    Well over the last 6+ months I've been feeling weird. My PMS is OUT.OF.CONTROL. I'm horribly irrational, awful migraines, bloating, binge eating (seriously, I can't lose the last few lbs b/c I can't control the eating) and top that with debilitating cramping and bleeding through 1 super tampon every 1-2 hrs for the first two or three days of AF. Then add that to the fact that I now PMS during ovulation with all of the symptoms listed above except for the heavy bleeding. Instead I spot for 4-6 days. After each time I O I end up having major pain in my uterus and sex sucks (and not in the good way). It's like he's bumping against a solid mass/bulk. I told DH that I was positive that something was hormonally wrong with me b/c I just don't feel right and something feels off. He knows I know my body and I know myself enough to not doubt me.

    I've been saying for months that something is hormonally wrong with me, and after my 8+ week cycle and the spotting during O time I ended up making an appt with a new Gyn because I was ready to leave my old one (long story short she cancelled my yearly 3x last year b/c of delivering a baby WHEN I was already on my way there and then they couldn't make a new appt for weeks unless I wanted to see the NP...which I eventually did).

    Monday I went to the appointment and I took a few deep breaths and I was quite anxious. I knew I wasn't going to get good news, but I guess I didn't expect this.

    I went over my history with the nurse and w/all of the problems I have (lupus, Protein S deficiency, etc). When I overheard her outside my door giving the dr the run down about my history I heard him say "Holy ****, that poor girl." He came in and said "You're a mess." I responded, "Yes, when most doctors see me they cringe." He said, "I'm not cringing, I just feel sorry for you." I said, "Eh, it is what it is."

    We went over my concerns and I gave him the lowdown he said he was gong to take a biopsy to check things out on top of my annual pap. He did and when he finished he said, "There are a few things going on. You have polyps in there, I may have gotten some. I also think you have endometriosis, but the only way to be certain is through laproscopy and I don't want to do that if we can get through with out. Let's deal with the polyps, make sure nothing is cancerous, and figure that out." He did also tell me that an option we may have to cross is an endometrial ablasian where he will basically scrape out/remove my endometrial lining. This will slow down/lighten up my periods and probably prevent any future polyps. Of course this depends on the results of the u/s's. He also said my thyroid felt large.

    I end up having an ultrasound and having to schedule one for a saline ultrasound for tomorrow.

    Then came the first ultrasound. I'm laying there looking at the screen and when she goes over to my ovaries I gasp, "OMG". She said, "What do you see?" "The cysts." "Don't you have PCOS?" "Not officially, but I've thought that I have had it." "Why?" "PMS problems and pain" "Hmmmm. I'm sending this to your doctor immediately." "Ok."

    So now, tomorrow when I go back in to see my dr and have him do the saline U/S and discuss the finding of today's U/S we're going to have discuss all of the cysts on my ovaries. Clearly something hormonally is off (it can cause both PCOS and polyps).

    I'm angry, relieved, frustrated, and bummed. I apologized to DH for him marrying such a broken down POS. I'm not crying as much as I expected, but that may come tomorrow. Maybe because I knew something was wrong and I had a strong suspicion about the PCOS part.

    Tuesday I had the saline ultrasound. While there I discovered that there was one big golf ball sized cyst on my left ovary and a ****load of small ones in each. So yes, they're polycystic. Then we found out I have two large fibroids on top of a **** load of polyps and the possible endometriosis tissue. So....anything that can grow in my uterus is.

    On Thursday I go in for a hysteroscopy to see exactly what is going on in there.

    Next week I probably go in to have another U/S to see if my large cyst has shrunk after my period starts or not.

    Then in two weeks on Sept 28 (assuming my period comes next week like I predict it) I have to have surgery to remove the fibroids and polyps. We may be doing an endometrial ablation depending on what we see Thursday. This means they will take out my entire endometrial lining and I may have light to no periods at all (which would be nice, I suppose).

    The biopsy to check for cancer, which my doctor says he's almost 100% positive it's not, will be back on Friday maybe Monday. My concern is that with all of this happening at once how can it not be cancer? I go to my yearly visit every year. Anyone have anything like this??
    So yeah...that's it.

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    Old 09-15-2011, 11:31 AM   #2
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    Re: Scared...

    Unfortunately for women, we always have some kind of growth there. It is the hormone issue and also the child birth issue.
    It seems these things for women are always going to be bothering us. Even my Mom at the age of 85 has some growth! She is told not to remove them given her old age and those are smaller. I have 2 sisters who had such issue and I also had this issue.

    In any case, I don't think growing these things are unusual. That is why women have to have Ob/GYN checkup each year.

    Some women find out earlier and only take off the uterus and keep the ovaries for hormone with a smaller scale of surgery by sucking it out.

    If you have many cysts, it is best that you take them out. As to how they can do it (open surgery or sucking them out), it is up to the doctor.

    Don't be surprsied it is not cancer. It is possible because you found out earlier. If you find out later, they could become cancer.

    So yes they could be benign, so don't worry too much about it until they know for sure what they are.

    Good luck,

    Last edited by ninamarc; 09-15-2011 at 11:32 AM.

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