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  • Not sure if it is an adrenal or pituitary!?

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    Old 09-14-2011, 06:41 PM   #1
    SeptemberTwin's Avatar
    Join Date: Sep 2011
    Location: Washington, D.C.
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    Not sure if it is an adrenal or pituitary!?

    I am another one of those people asking for help with a diagnosis. I have seen two endocrinologists already and they have differing opinions. I am seeing another endo in November and going to NIH in November. I just want to know if anyone else has experienced similar symptoms or if anyone has any suggestions. Thank you in advance!

    I began having hot flashes, sudden severe sweating, and low blood pressure in October of 2010. I didn't think anything of it until April of 2011. I stopped getting my period in March 2011. I went to the gyno (since I was due for a pap smear anyways) in May and she ordered a blood test to check my hormone levels.

    Blood test from May 2011:
    DHEA 143 (range is 45-320)
    Estradiol 24 (in post-menopausal range which is less than 27)
    FSH 60.7 (in post-menopausal range which is 23.0-116.3)
    HCG*,Serum <2 (normal is <5)
    LH 50.5 (in post-menopausal range which is 15.9-54)
    Progesterone <0.5 (in post-menopausal range which is <0.5)
    Prolactin, serum 6.0 (in post-menopausal range which is 2.0-20.0)
    Testosterone, free 2.0 (range is 0.1-6.4; normal)
    TSH 11.75 (0.40-4.50)

    I was diagnosed with Hypothyroidism back in 2009 but I didn't take Synthroid consistently. I am now on 150 mcg of Synthroid and my last TSH level was 2.75 which is normal. My gyno diagnosed me with premature ovarian failure.

    I went to my first endocrinologist appointment in June and she re-ran the above blood tests and checked my thyroid antibodies and checked for ovarian antibodies.

    Blood test from June 2011:
    FSH 64.4 (in post-menopausal range which is 23.0-116.3)
    LH 56.1 (outside post-menopausal range which is 15.9-54.0; within the mid-cycle range which is 8.7-76.3)
    Testosterone, total 43.07 (within normal range which is 10-70)
    Sex Hormone Binding Globulin 22 (within normal range which is 18-114)
    Testosterone, free 9.6 (which is high; normal range is 0.6-6.8)
    TSH 8.140 (high; normal range is 0.350-4.500)
    Estradiol 18.3 (in many ranges but post-menopausal range 0-37)
    Prolactin 9.3 (in many ranges but post-menopausal is 1.8-20.3)
    DHEA 100 (normal range is 35-430)
    Thyroid Peroxidase (TPO) Ab 5790.3 (extremely high, normal range is 0-60)
    Ovarian antibodies were negative

    The TPO antibodies terrified me! I looked online and I have never seen anyone else with TPO antibodies that high! My endo didn't think anything of it but I knew this could mean something! My endo decided to do an MRI of my pituitary gland and brain. The MRI came back normal. She also ordered a pelvic ultrasound and that came back normal as well. She simply diagnosed me with premature ovarian failure and didn't believe my hypothyroidism is connected to my ovarian problems.

    I got my period in July of 2011 but I have not gotten it since then. I have only had three periods this year! I used to miss periods for a month at a time but I was pretty regular before. When I got my period in July, my gyno had me do blood tests for Estradiol and LSH and they were within the normal ranges.

    I decided to see another endo and he saw my TPO antibodies and was shocked! He diagnosed me with Autoimmune Polyglandular Syndrome, Type II aka Schmidt's Syndrome. Therefore he decided to test me for Celiac Disease and Addison's Disease. I tested negative for celiac disease.

    Blood test from August 2011:
    Cortisol 5.1 (normal range is 2.3-19.4; within normal but on low side)
    ACTH 52.3 (normal range is 7.2-63.3; within normal but on high side)

    After the above test, the second endo decided to do an ACTH Stim Test to test for Addison's Disease.

    ACTH Stim Test:
    Baseline Cortisol 4.7 (taken around 11am, fasting; normal range 3.0-23.0)
    30 minute Cortisol draw 19.1 (normal range 3.0-23.0)
    60 minute Cortisol draw 22.8 (normal range 3.0-23.0; in upper range)

    The second endo said my ACTH Stim Test was normal but I disagree. How could my cortisol quadruple and that be normal!???

    I am at a total loss for what this could be. It is effecting my thyroid, ovaries, and it looks like my adrenal glands! I disagree with the diagnosis of Schmidt's Syndrome since you have to have Addison's Disease to have Schmidt's.

    I am still having hot flashes and sweating. My fatigue has gotten progressively worse. If I sleep 6 hours or 12 hours, I still wake up feeling exhausted. I have been having some left abdominal pain for about a month now. I have also noticed that I either have diarrhea or constipation. I have had urinary incontinence for about a year now as well. I am frustrated but I know that I must continue to see specialists to figure this out.

    Thank you all for reading over my tests and symptoms.

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