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    Old 02-10-2010, 10:41 AM   #16
    arleneclaire
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    Hi Ian, and thanks for your message. Somehow it encourages me just to know that i am not the only person suffering from this condition. For the longest time there was no feedback, so I suffered alone. I so feel for you Ian, that you are a musician. My son is a musician as well, and it was just yesterday that i was thinking about how absolutely horrid it would have been to have lost that ability. I dont know how a person could continue to play a guitar, unless it was the strumming hand. I 'spect i could strumm alright with it. But certainly not to press down on a string!! As for piano, I guess it would be a lot like typing. The ring finger does the work of the pinky, and the whole hand has to move around the keyboard to coompensate for the lack of lateral movement. One more thing i will say about being a musician..... The music is in your soul!! Like an artist who looses the use of their hands may start to paint with their mouth or even their feet!! You will find a way to make music if you try. The brain will rearrange your body functions to allow you to continue to make music!

    They told me when i had the surgery to sew the severed nerve together at the elbow, where the injury occured, that it would grow back at the rate of a millimeter per day, which meant that in a year it should be reconnected. I waited for that year, yearning for some sign of recovery. All that happened was continual degeneration of the muscles in the whole hand. But I had back surgery 12 years ago. By the time they operated I had lost a lot of feeling in the affected foot, and I had to drag it along. They said that if it didnt come back within 2 years, it wouldnt. I learned to live with it, and the years passed, and nothing changed...... until maybe 5 or 6 years passed, and now i can say that the foot and leg are perfectly normal!!! YAY!!!

    So....... maybe this too shall pass.

    I have never gone to an osteopath or accupuncturist. I live in the bush in the lovely Rocky Mountain Trench in north-central BC. I have a very active lifestyle, growing all my own vegetables and fruit, and basically living off the land. I chop and carry my own firewood, although my sons cut and deliver it. I tell them that i want to do as much as possible, so they let me be as independent as I can be.

    The day after my surgery, stunned with pain and heavy drugs, I went out to the garden for some food for my soul, and i got down on the ground and started weeding and thinning, and 2 hours passed before i staggered up to my bed of pain again. I never missed a day in the garden. Somehow, I was so at peace there. It was my only relief.

    Three months after the surgery when i went for my post-op, the doctor told me that if i didnt start to work at desensitising my arm that i wouldnt be able to even pull cloth over it. That really smartened me up and I started really workiing the arm although it was horrendously painful and hideously uncomfortable. I heard of a friend of a friend who had this injury 6 years before, and he still wore a sling and couldnt stand anyone to even touch that arm.

    So, I try to do whatever i need to do as normally as possible, and I think that has gone a long way to keep me going both spiritually and physically. I am going to the city next week to see another physiotherapist. When i booked the appointment I asked if she would take the time to talk to me instead of jus hooking me up to machines. I cant afford to go to the city more than a few times a year, and so need some kind of program that i can do at home. Also, I want to see what adjusments can be made to the splint apparatus I finally got. This holds my fingers out while I sleep, so that's a third of the day that i will have them straightened out as much as possible....

    This is probably getting to be too much information, so I will close off now, and look forward to hearing back from you.

    arlene

     
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    Old 02-10-2010, 11:02 AM   #17
    arleneclaire
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    Hi Holly!

    Thanks for taking the time to write to me these several times. I have been really busy with family and friends over the past week so was unable to get back to you. Now you see that another man has joined our "thread". It is amazing to me that after all this time I am finally starting to get some feedback. I imagine that everyone who takes the time to find this forum is searching for some fellowship in this pain that we are going through.

    I know it must be hard for the spouse of a person sufferig this condition, especially since a certain amount of depression is almost unavoidable when we face such pain and fear about the continued degeneration of our very hand. But no one who has not experienced severe and constant nerve pain can possibly understand. That is what makes me so frustrated dealing with the medical establishment. Whatever they "know" it is just theory to them unless they have suffered nerve severence. I really dont know how to describe the pain. Its just not something that fits into a normal "pain" definition. At least not for me. It is maybe comparable to having fire ants crawling around under your clothes, biting indescriminantly here and there, and you can never catch them and get rid of them....just these hot sharp irratic jabs!! And that doesnt really do it either.

    I agree with you about keeping the spirits up. We really must! The other night I was saying to a friends how maybe it would be better to just cut off those fingers and get on with just having the other two semi-functioniing ones. Then i tried to visualize what it would be like to just cut off a part of my body and throw it into the waste bin!! That put a whole different slant on it. I started to give that hand some love and acceptance, and felt much better about it.

    I guess it worries me a lot to hear from people who have had this injury for much longer than I, and to hear that the pain and depression go on and get worse. I guess as we grow older we do tend to have more pain generally, and the old wounds do come back to haunt us. So, we have to work on our spiritual state. Gratitude really works. As does realizing how fortunate we are in other ways.

    I appreciate your positive attitude, and hope that your husband will come out of this stage of pain and depression with renewed courage. Thats what it takes!

    arlene

     
    Old 02-10-2010, 11:22 AM   #18
    fshenant
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    Dear Arlene and Ian,

    Rick went to the osteo, acupuncturist, and from what I am reading here, he has more strength in his fingers, than most. He uses his hand regardless of the pain, it does appear that the more he uses his hand the more painful it is, but he wants to continue building strength in his hand. He feels it is extremely important to keep the hand functioning, as if it were not hurt. He went to the the osteo, acup. twice a week for almost 3 years.He still goes every couple of months. The pain is unbearable, but it may have helped the nerve regrow. Rick associates pain with the nerve growing. Are any of you experiencing continual pain from the nerve? Rick has a fair amount of dexterity in both is middle finger and ring finger, it is only his little finger, that is crooked. Surgery has been suggested, but he prefers to stay away from MD's if he can help it. He really finds solace in working. He also finds solace in deep psychological conversations, which has always been an interest for him, but even more so now. We are in the antiques business, so there is a passion to what we do. Rick also designs coral centerpieces and sculptures, the act of designing and creating, take him away from the pain.
    He can at most times deal with it, but like Arlene says it is a pain that is challenging to say the least. Rick feels sometimes, that his psychologically can also affect the pain, if he is unsettled, the arm and hand seem to hurt out more. Cold weather also seems to cause the nerve to act up. As we live in Florida, we don't get much cold weather, but this winter it has been cold. Perhaps that is why his pain has been worse lately. Nerves are a weird thing.

    Any questions at all, feel free.
    Holly

     
    Old 02-10-2010, 04:07 PM   #19
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    Sounds like u could of chip a bone...which probably severed a nerve...i know what u mean about dr's...they just keep sending u to more and more and more..i sometimes wonder what they learn in college..they all have a diff dignosis!....good luck..i feel for ya! I had a nerve servered in my gum...hell to pay for! Now nerve goes up my nose/between eyes/right face...neck..arm/fingers..burning sensation ..u could fry eggs on me..thanks to dentist!!! Because i had a red gummmmmmmmmmmm..omg!

    Cindie from wisconsin..one must be their own doctors'...i take baths in tea tree oil...b12 is suppose to me good!...vibrators to get nerves going..keep reading stories on here..every little bit helps....god bless +

     
    Old 02-10-2010, 04:08 PM   #20
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    I also got hypotistism tapes....got to do what we got to do!!! ~ and i pray alot..+

     
    Old 09-04-2010, 02:48 AM   #21
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    I severed my ulnar nerve in half also on glass and I had the surgery to repair it. The doctor said the feeling would not fully come back. Its been about a year and a half and its still pretty much the same. Did you feeling come back at all?

     
    Old 09-05-2010, 09:11 AM   #22
    arleneclaire
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    it has noew been 2 years and 3 months since my accident. there are times when i imagine that perhaps there is some small improvement. if so it is from totallynumb to a slight tingliing which isnt much better. i do wear a brace at nights to straigten out the ring and pinky fingers for the duration. i find that has helped the most to keep the fingers from atrophy. i am typing this with the use of my ring finger. though it doesnt have much sensation, i can put downward pressure on it.

    i do much the same as i alway have..... rigorous gardeing and outdoor work. its the small things, like handwork in sewing that i have the most trouble with.

    also i think its important to work on the hand as much as possible. many people have reported the pain and disability getting worse with time. i think one can and should do something about that.... like working on it whenever you can.

    for the first half a year i couldnt even bear to touch that hand. now i have come mostly to terms with my lifetime loss. life goes on.

    good luck!

     
    Old 09-15-2010, 01:01 PM   #23
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    where did you sever it? I cut mine in the palm of my hand and am getting the operation tomorrow

     
    Old 09-16-2010, 07:32 AM   #24
    arleneclaire
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    i cut miine at the elbow. perhaps cutting it at the palm of your hand you will not have as much uselessness as i do. also it should take much quicker to heal.

     
    Old 09-16-2010, 07:39 AM   #25
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    i hope so...but i also have a deep cut in ring finger, which is pretty much useless now

     
    Old 09-17-2010, 03:39 AM   #26
    ianwatt
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    wschmelter, I severed my nerve 23 months ago now. I have experience hardly any improvement in sensation in that time, although, I find it hard to tell as changes in sensation and movement are very difficult to percieve as progress is so slow. How is your movement? Are you in pain? I have no lateral control over my middle, ring and little finger, and only some in my index finger, but I don't feel much pain outwith cold winter days. The last time I went to the hospital they said that it might take up to 5 years to get to the full extent of the recovery, but with so little progress after 2 I do not hold out much hope for vast improvement. I feel a slight tingling sensation to the tip of my little finger if I press on the nerve at the wrist, and I do have some sensation when pressing on the affected parts of my hand, for example I now notice If my hand brushes across a lit hob, or if my little finger rests on a lit toaster filament, whereas I failed to notice these things before. I have been due to go back to hospital for a last physiotherapy consultation for some time, but I do not want to go and hear bad news delivered with a smile and a bland voice, I have had my fill of that. I am very sorry to hear of your misfortune, and I wish you a far greater recovery than mine, it would be good to know that someone with this kind of injury made something close to a full recovery...

     
    Old 02-25-2012, 12:54 PM   #27
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    I severed my ulnar nerve about 3 months ago, just above my left elbow. How is everyone progressing on their recovery?

    I would also like to share my experiences with the injury so far, so here's the story:

    I injured my left arm in November 2011. I cut up my elbow pretty badly and completely severed my triceps and ulnar nerve; luckily no severe damage was done to other ligaments or tendons. The cut was about 3-4 inches long and went down to the bone. I was immediately taken to a hospital and the muscle and skin were stitched together as well as possible. A few hours later the head physician of our hospital's surgical branch, who is a specialist in neuro-surgery reopened the wound and sewed the severed nerve ends back together, using about 4 cm of my nervus sularis to make the connection. As a result I have lost feeling in the left half of my foot, but no movement abilities, since the nervus sularis is only a tactile nerve. Luckily I have private insurance, which made it possible to receive such quick and high quality treatment, on a sunday no less.

    The wound is located about 60 cm away from the tip of my pinky, so, at the rate of about 1 mm of growth each day, full regrowth of the nerve should take more than 600 days. The surgeon informed me that, should it take more than 2 years for the muscles to reconnect to the brain, the chances of regaining control over them are slim at best. He also said that, right now, there is nothing one can do, but wait and see what happens. In 2 years I'll know more. At first, until about 1 month ago, there was slight pain in the palm of my hand, whenever pressure was applied, as well as frequent, short bouts of "phantom pain," i.e. sharp pain in the areas that have lost feeling, so they shouldn't be able to feel anything. So, that's gone now, my elbow is all healed up, although a pretty mean scar remains, the pain is gone and I can move my hand relatively well, compared to some people Ive read about.

    I am a guitar player and used to play in a band, but since my accident, it has been impossible to even play the simplest chords. I have been quite depressed for the first month or two after my injury, until I decided to just pick up a new instrument that didn't need fingers. Are there any musicians out there who have had a similar problem? Did you ever regain the ability to play?

    By now, most of the muscles in my left hand have atrophied to the point, where there is a notable difference in the size / volume of my hands. Since about half of the muscles haven't been used since the accident, my hand is a lot weaker and looks quite gaunt. Especially the area between thumb and index finger is so thin and soft, that it looks more like it's webbed than anything else. Guitar playing has become impossible; I can't spread my fingers anymore or close them together. they will only move up or down. I have no "ulnar claw," however, since I have been using a cast at night for two months now. So that's pretty good news, I guess.

    I am still hoping to be able to pick up guitar playing again in two years, although most of what I have read here so far has been rather discouraging. I test the progress of my nerve's growth every now and then by slapping my arm with my index finger. when I hit a spot where an electric tingling shoots up my arm into my pinky, I know that's where the nerve ends are currently located and they've already progressed a good 2-3 cm toward their goal.

    Are there any patients here, who have had their ulnar nerve severed and made a near full recovery? How long did it take after you regained feeling for you muscles to return to full strength? Is full flexibility and range of movement back? Did anyone have to go back into surgery long after the accident happened? Has anyone received treatment as quickly as I did, to raise the chances of a full recovery?

    Thank you for any answers and for sharing your experiences.

     
    Old 04-07-2012, 07:48 AM   #28
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    Unhappy Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    I would recommend that anyone considering this surgery should get a second opinion. I had my surgery last June and have been miserable since -- constant pain, numbness, loss of feeling in my fingers, loss of grip -- it goes on and on. I saw a neurologist last week and had another EMG and she said the nerve damage is even worse than before the surgery. I am experiencing clawing of the hand, severe muscle loss, muscle wasting and my hand strength is worsening. I am so depressed because of this ---- have any of you had the same outcome.
    Cloudy

     
    Old 11-15-2013, 12:03 AM   #29
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    hi
    I had slipped my leg and fall into window glass on 17 oct 2013.And had a cut on my ulnar nerve.The wound was closed on same day and a Surgery to join ulnar nerve was done within a week.After the surgery my hand was wrapped partially by POP(plaster of paris) and the elbow joint cannot be moved.I dint have toomuch to deal with pains.The problem is with ring & small fingers.Days after surgery i was able to move my fingers(coordination was poor) but small tingling was present.Dr asked me to keep my injured hand vertically hanged for recovery.They told me that the POP should be put for 4-6 weeks and full recovery will take 6-8 months.I have Knuckle blender splint on my palm to improve the coordination & movement of fingers.Am almost 20 hrs on bed as Dr insisted.
    Wish you all a fast recovery.
    THANKS
    Expecting your replies
    Do reply

    Last edited by faizalnazim06; 11-21-2013 at 11:11 PM.

     
    Old 03-13-2014, 07:17 PM   #30
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    Re: i would like to communicate with anyone else who has damaged their ulnar nerve.

    I've been searching for information regarding ulnar nerve damage since my 9 yr old son put his arm through plate glass 5 weeks ago severing the ulnar nerve. Surgery to repair the nerve and the deep cut to his forearm close to the elbow was performed the morning after the incident. His arm was firstly wrapped and padded with thick bandages and a half cast of plaster. 5 days after surgery a plastic cast was applied from under his arm to the ends of his fingers, his elbow and bent at a right angle. The cast was removed 3 days ago after 4 weeks. I am somewhat worried after reading the previous posts as to what kind of recovery my son will have. He has complete numbness in his ring and pinky and feels pins and needles and small electric shocks in his whole hand and arm. I realise these posts have been made some time ago and no one may be still reading them, but if anyone is, I would love to hear from you. My son is only 9 and what I have read so far is quite frightening, he would be devastated should he not regain full use of his hand and fingers (it's his right hand and he is right handed) he's such an active, smart boy who loves his sport, drawing and writing. Any thoughts would be greatly appreciated.
    Hoping all who have posted have recovered or at least improved.

     
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