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  • Very worried, but don't know if I need to be...

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    Old 08-05-2013, 06:41 AM   #1
    teddybearhugs
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    Very worried, but don't know if I need to be...

    I have been experiencing pain in my left side, very low down, (where I believe my ovary to be, for the past 8 months). I was diagnosed with Polycystic ovaries, around 15 years ago, (I was fortunate, I had 2 children, before I was diagnosed) Anyway, I used to suffer with horrendously heavy periods, and in 2007, I had an endometrial oblasion, (removing the lining of my womb). My periods completely stopped... I have had a little intermittent bleeding on and off over the past 18 months, but nothing at all in the last 6 months. I have had various ultrasound scans in the past 2 years, showing a bulky womb, a cyst on my left ovary and then a cyst on my right one. Each time, my GP said, Don't worry about it. I was told in 2004, for whatever reason, by a Gynaecologist if nothing was done with my ovaries, I would end up getting ovarian cancer, which has always stayed with me... yet my GP always says, don't worry about that.

    Anyway, I started getting intermittent sharp pain in my left side low down, enough to make me scream out in pain, and on 2 occasions leaving me, unable to walk..around 8 months ago, I went to my GP, and she arranged an Ultrasound scan, I went back for the results, where she categorically told me, my left ovary was absolutely normal, a small cyst was on the right one, and my womb was bulky, meaning I had, had some fibroid activity, but no fibroids were showing, but the left ovary was normal, so the pain was not coming from that. To cut a long story short, over the next few months, she believed it was my bowel, (I had started suffering with constipation) and she prescribed laxido, and told me to increase my fibre intake, all she then did for the next few months, was tell me to increase the laxido... I eventually went back, saying "I am sorry, but this pain is not getting better", and she said, well we know your ovaries are ok, so I will send you to a bowel specialist, seeing as this has been going on for a while now... He sent me for a sigmoidoscopy, which revealed, Diverticular Disease, but he feels this is not related to my symptoms, and sent me for a pelvic and abdominal ct scan, this has revealed an enlarged left ovary... but more worrying, he has told me in a letter, "that the CT scan, has "again" shown the left ovary is larger than the right one, it was noted in the ultrasound scan done in January, that the left ovary was enlarged and bigger than the right one... My GP, told me, the left ovary was normal...
    He is referring me for another ultrasound scan to be carried out on 12th September, he said the Radiologist Doctor, feels it would be best, to do it then to see if it is still enlarged... All I have read since, is an enlarged ovary, being one of the first signs of ovarian cancer, constipation and tiredness also being a symptom, I have been badly constipated, and the tiredness I have recently been experiencing, has been like no other form of tiredness I have ever had, last week I became so unwell suddenly, projectile vomiting and doubled in pain, I don't know what to think.... The vomiting could have been completely disconnected to this, I know. I am just really worrying, a part of me, says if my ovary was enlarged in January and still is, and it seems it is only slightly enlarged, that is a good thing, and maybe therefore, no need to worry at all. But another part of me, keeps thinking about what the Consultant said years ago... No-one will tell me anything, my GP, is useless, the Consultant has now gone on holiday, and his secretary, just tells me, she cannot comment, and wait for the scan... which is over 5 weeks away???
    I don't want to be molicoddled, if it is likely to be something to worry about, I would sooner know, at least if I know, I should be worrying, I can try and deal with it... I don't want to be complacent, and then be hit with terrible news, I hope that makes sense....
    I just wondered, if anyone out there, can make sense of this, and maybe give me some advice, good or bad, I just need to have some idea of what I may be faced with.

     
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    Old 08-07-2013, 11:53 AM   #2
    STLouisgal
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    Re: Very worried, but don't know if I need to be...

    I've learned SO much about gynecology problems since being over-treated and suffering the adverse effects of that treatment.

    Quote:
    Originally Posted by teddybearhugs View Post
    I was diagnosed with Polycystic ovaries, around 15 years ago, (I was fortunate, I had 2 children, before I was diagnosed) Anyway, I used to suffer with horrendously heavy periods, and in 2007, I had an endometrial oblasion, (removing the lining of my womb).... I was told in 2004, for whatever reason, by a Gynaecologist if nothing was done with my ovaries, I would end up getting ovarian cancer, which has always stayed with me... yet my GP always says, don't worry about that.
    Since most women with PCOS are anovulatory, it would make sense that there may be an increased risk for ovarian cancer. Endometrial cancer is also an increased risk. However, if you conceived your children without fertility drugs then you may not fall into this category.

    Use of oral contraceptives not only treats the irregular cycles associated with PCOS but also reduces the risk of both ovarian and endometrial cancer. Tubal ligation also reduces risk of ovarian cancer. You didn't mention if you took (or take) birth control pills or had a tubal ligation (oftentimes recommended at the time of ablation).

    Of course, ovarian cancer is scary but it's important to weigh ovarian cancer risk with the many medically documented health and quality of life adverse effects of ovary removal. I can personally vouch for the life-altering effects of having the ovaries (and uterus) removed.

    Quote:
    Originally Posted by teddybearhugs View Post
    I have been experiencing pain in my left side, very low down, (where I believe my ovary to be, for the past 8 months).... in 2007, I had an endometrial oblasion, (removing the lining of my womb). My periods completely stopped... I have had a little intermittent bleeding on and off over the past 18 months, but nothing at all in the last 6 months.
    Pelvic pain can develop years after endometrial ablation. And this would seem more likely to happen if bleeding stops or is very scant (even though reduced or no flow is the intended result!). The explanation for this pain is that the uterine lining will continue to try to build based on the hormonal actions of the ovaries. But since the lining is scarred, the blood becomes blocked behind the scarring. Also, the cervix can become stenotic so any blood escaping the scarred areas may not be able to escape the uterus. The younger you are (the further away from menopause) at the time of ablation, the greater the chances of this happening. These post ablation symptoms (as well as others) have been coined "post ablation syndrome."

    Quote:
    Originally Posted by teddybearhugs View Post
    He sent me for a sigmoidoscopy, which revealed, Diverticular Disease, but he feels this is not related to my symptoms, and sent me for a pelvic and abdominal ct scan, this has revealed an enlarged left ovary.
    Diverticular disease can cause pelvic pain. Nuts and seeds can get caught in those pockets of diverticulae causing the pain. Have you eliminated nuts and seeds from your diet to see if that resolves the pain?

    Ovaries can shrink as we move towards menopause. And it's possible that one ovary will do this before the other. I'm sure there are other causes of enlarged ovaries though such as a cyst that's encapsulated by the ovary (such that the cyst can't be seen).

    Hope you get some answers and relief soon!

     
    Old 08-08-2013, 11:01 AM   #3
    teddybearhugs
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    Re: Very worried, but don't know if I need to be...

    Hello,
    Thank you for your reply, I didn't have a tubal ligation after the ablation,I have never had a proper follow up, I had the procedure, I believe with a balloon type method, was discharged from the hospital and never given even a follow up appointment, following the operation. I have had some pretty horrible GP's, that are not interested in anything to do with what I say about any of my symptoms, I have in the past pushed and pushed, changed GP's, and literally been told, over and over, I do not need monitoring.. every scan I have had has shown different things over the years (2009, showed a calcified fibroid and a fibroid forming) my GP, told me I needn't worry myself over them and no further action was required.
    In 2011, I started spotting, and having pain, I was given a scan, which showed my womb was bulky, and I had a cyst on the left ovary, my GP, was unable to answer my questions, so I saw another one, who said, Look you do not have cancer, and there is nothing to be worried about, no need to do anymore. In December last year, this pelvic pain started getting worse and worse, and my now GP, sent me for a scan, she told me I had a small cyst on my right ovary and a bulky womb, but nothing to worry about.. She only pursued things with my bowel, because I was in so much pain, but having said that, all she did was prescribe me laxatives, for months before I said I couldn't go on with the pain, and she sent me to see the Consultant, who has performed my recent scans.

    I have been suffering with constipation, for months, and she has done no more than tell me, she is not worried about it, she insisted my left ovary, was ok, but it clearly wasn't...
    The consultant I am under now, does seem more interested, and has promised he will get to the bottom of what is causing my symptoms, and I am going back to my GP, with some questions I want answering, I am sick of being made to feel, I don't need to worry about anything in that region, and just forget it. I only see the Doctor, when I am in pain etc, I would understand it more, if I was there all the time, but I'm not.
    I don't take birth control pills and haven't done either, for any great time, they tried me with various types of the pill many years ago, but none helped. My Periods, were horrendous, I used to bleed excessively, I never had spells like some women with PCOS, where they barely have periods, infact I was the opposite, which used to make me question whether I had PCOS, I did with my first child have problems conceiving, as in,it took 15 months for me to fall pregnant, but I fell pregnant quickly with my second child, so again I have questioned my diagnosis... to sum things up, the bleeding side of things for me was horrendous, to say the least, and after the ablation the attitude I have been greeted with is basically, well your periods have stopped now, get on with it.
    At the moment, I have had a few severe attacks of pain, very low down just above the pubic line on the left, I was very sick around 10 days ago, and was vomiting again today, I feel very uncomfortable across my abdomen, I am constipated, (I feel like I need to open my bowels, but have been unable to) I feel very tired and washed out. I don't know, what is causing it.
    When I had the sigmoidoscopy, they told me, there was no signs of infection, or anything trapped in the pockets, I don't eat seeds or nuts in my diet, infact due to other health issues, I am on a very bland diet at the moment, which doesn't involve me eating anything, like seeds or nuts.. I really have no idea, what is causing my symptoms... but I do feel this needs to be sorted once and for all, I have been fobbed off too many times, now.

    Thank you again, and sorry for such a long post back...

     
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