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    Old 03-12-2013, 04:03 PM   #1
    LizLo
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    Question New here...

    Hi! I'm 36, wife, mother, daughter, sister.

    I went to my pcp on Thursday for a plura of reasons, mainly, dizziness, abnormal heartbeat, headaches, my whole body hurt and had been cramping, my attitude had depleted, and I was absolutely miserable. I had been tolerating these symptoms for months, but over the past 2 weeks or so, they became overwhelming. She talked to me, gave me a CBC(which I threw up nearly immediately after the draw, this has never in my life happened before) and sent me on my way.
    About 9pm, the Dr.'s office called me and told me to go to the emergency room now and tell them your hgb levels are at 5.9. Me: "Are you serious? What does this mean?" Anything she told me went in one ear out the other as panic set in.

    I'm healthy. Things like this don't happen to me. Did she call the right person?

    I get to the ER, hgb is at 5.7 and they admit me. Long story short, 4 units of blood, 3 bags of Iron, and an upper GI later, they release me this morning with my hgb at 8.7 and hemocrits at 23%. Diagnosis, Iron Deficient Anemia.

    As horrible as this sounds, I was praying for an ulcer to show up on that UGI and it didn't. I've got a script for another CBC on Thursday and an appt with a hemotologist on Friday morning to check my levels. What we were told when we left is going to be weekly blood draws and monthly Iron IV's. They sent me home with scripts for protonix for my stomach(they saw erosion) and an oral iron supplement.

    Anyone have any insight on this topic? Specifically, what happens next? Do I need to worry about life altering, changing things? The hospital staff kept asking me questions like..."How are you functioning? How did you walk in here? How is your memory? How are you not passed out on the floor?" These questions, honestly, scared me a little. I've got a family to take care of.

    I've been researching all day on the internet, which in itself is scaring me with all of the horrible things I'm reading...I know, I know, don't believe everything you read. I just want to make sure I am educated and know what every possible aspect of this diagnosis means.

    Thank you in advance for any information or advice given,
    Liz

     
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    Old 03-12-2013, 09:37 PM   #2
    alamogal635
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    Re: New here...

    Try to relax until you see the hematologist. The cause of your anemia needs to be found for the correct method of treatment. The ER did what ERs do--treat an emergency. The specialist will know more and give you a better idea of what to expect and what you can do about it. I would not panic right now. See the hematologist ASAP for your own peace of mind. I think the ER gave you a worst case scenario, at least that would be my guess. Like you, my diagnosis came out of the blue-- a regular physical exam with CBC showed the anemia. I just though I was tired because I was getting older,retired and hadn't found much to do. It turns out that I'm iron and B12 deficient. It was severe, but iron levels crept up a little in two weeks, the B 12 shots I take have really helped. Just waiting for the latest lab results. first it was two weeks between blood draws, then a
    Month, and so it remains. I wish you the best and hope this helps a little. Keep us on this board posted as to how things go.

     
    Old 03-12-2013, 09:39 PM   #3
    alamogal635
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    Re: New here...

    Try to relax until you see the hematologist. The cause of your anemia needs to be found for the correct method of treatment. The ER did what ERs do--treat an emergency. The specialist will know more and give you a better idea of what to expect and what you can do about it. I would not panic right now. See the hematologist ASAP for your own peace of mind. I think the ER gave you a worst case scenario, at least that would be my guess. Like you, my diagnosis came out of the blue-- a regular physical exam with CBC showed the anemia. I just though I was tired because I was getting older,retired and hadn't found much to do. It turns out that I'm iron and B12 deficient. It was severe, but iron levels crept up a little in two weeks, the B 12 shots I take have really helped. Just waiting for the latest lab results. first it was two weeks between blood draws, then a
    Month, and so it remains. I wish you the best and hope this helps a little. Keep us on this board posted as to how things go.

     
    Old 03-12-2013, 09:46 PM   #4
    alamogal635
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    Smile Re: New here...

    Somehow my message to you got posted twice! I apologize. Still hope all goes well for you.

     
    Old 09-23-2013, 12:57 PM   #5
    jaxdean
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    Re: New here...

    This sounds exactly like my experience last week... called to make a dr. appt with a lot of the same sypmtoms you described...chest pain, malaise, etc... they told me to go to the ER and I had a Blood count of 5.7 as well! They gave me 2 units of blood, 3 packs of iron, a colonoscopy, endoscopy, CT scan of my stomach area, ultrasound, pill test and sent me out the door with a blood count of 7.4. I was subsequently tested again and I am at 8.9... waiting to see the GI doctor, but likely will be referred to a hematologist due to the fact that nothing showed up on my other tests.... It is stressful and confusing! What happened with yours? As I see it was 9 months ago???

     
    Old 10-09-2013, 09:02 AM   #6
    hw1041
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    Re: New here...

    Wish I had some good news to give you rather than just another story.
    About 2 months ago I felt similar symptons and went to the emergency room. After some initial tests, including a CBC they told me my hemoglobin was 5.9.. After 6 days in the hospital, 4 blood transfusions, 2 iron infusions and numerous tests, they could not find any specific cause. They sent me home with a hemoglobin count of 9.2 and told me to follow up with my physician.
    About 2 weeks later, I had similar symptons again and went to my hemotologist. My hemoglobin was 5.4 and was told to get to the hospital immediately. Upon admittance my hemoglobin was 5.2. After 9 days, 4 transfusions, 3 infusions, 2 procrit injections and more tests than I can count, I was sent home with a hemoglobin count of 8.2, and no definative cause for the anemia.
    Since than it has been weekly monitoring and infusions and injections, but still no known cause. 3 doctors and my own research has told me that in about 10% of the cases this is the only result.
    So the best I can say is good luck and please let me know if you find anything out that would be helpful to either of us.

    hw1041

     
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