It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board

  • General feeling of illness

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 11-12-2013, 09:07 AM   #1
    lovesblackcats
    Junior Member
    (female)
     
    Join Date: Oct 2013
    Posts: 12
    lovesblackcats HB User
    Question General feeling of illness

    I posted awhile back about my low-grade fever and profuse sweating.

    I have been forced to change doctors because the current rheumatologist is just not following up like I feel he should. He put me on Prednisone and Plaquenil, and scheduled me for a follow-up three months out, and I don't even have a firm diagnosis yet. They won't give me blood test results over the phone, and I cannot get in to see him before the end of January. I am in the middle of having records transferred.

    I had to stop Plaquenil due to a bad reaction, and it feels like the Prednisone (10mg) is no longer helping.

    In the meantime, I have a question. Can Lupus cause a general feeling of illness? I have not felt right for the past few days, but I can't figure out what exactly is wrong. I don't have nausea or anything specific.

    My lupus-like symptoms are: rashes; low-grade fever for over two and half months; profuse cold and clammy sweating; pain; fatigue; and recently I developed this burning feeling on the tops of my arms, over my abdomen and my back. It burns but feels superficial, like it's on the skin. The only thing I can liken it to would be a mild chemical burn (there is no hot feeling attached to it). I'm sure I've forgotten some symptoms but those are the main ones. Oh yeah, I have peripheral neuropathy (confirmed in a test) but I don't know if lupus can cause that.

    I'm concerned about this weird feeling of being sick but not knowing how. Sometimes I actually feel like I'm dying. It scares me.

    Thank you for any input.

     
    Sponsors Lightbulb
       
    Old 11-12-2013, 01:49 PM   #2
    ladybud
    Senior Veteran
    (female)
     
    ladybud's Avatar
     
    Join Date: Jun 2012
    Location: Colorado
    Posts: 6,123
    ladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB Userladybud HB User
    Re: General feeling of illness

    Sorry you are feeling bad. Yes lupus can cause a general feeling of illness, malaise, aching all over, fatigue, etc. Depending on how long you took the Placquenil and when you stopped it, and what kind of reaction you got, you may be able to tolerate one pill a day rather than 2, but that should be discussed with your Dr. Your Dr's office should send you a copy of your lab results. That is your right as a patient. You can also look at the diagnosis marked on your billing sheet or get the ICD code for diagnosis and look it up online. Sometimes that is the only (sneaky) way to find out what your Dr is thinking when they won't tell you! Autoimmune diseases like lupus can cause peripheral neuropathy. Many patients with lupus are Vit B12 and folate deficient, which can contribute to it. I would ask your new Dr to check those levels and see if you need to supplement those vitamins. I hope you can get in to see a better Dr. sooner than end of January. It would be nice to feel decent for the holidays, and have an answer as to what is wrong.

     
    Old 11-12-2013, 03:21 PM   #3
    lovesblackcats
    Junior Member
    (female)
     
    Join Date: Oct 2013
    Posts: 12
    lovesblackcats HB User
    Re: General feeling of illness

    Quote:
    Originally Posted by ladybud View Post
    Sorry you are feeling bad. Yes lupus can cause a general feeling of illness, malaise, aching all over, fatigue, etc. Depending on how long you took the Placquenil and when you stopped it, and what kind of reaction you got, you may be able to tolerate one pill a day rather than 2, but that should be discussed with your Dr. Your Dr's office should send you a copy of your lab results. That is your right as a patient. You can also look at the diagnosis marked on your billing sheet or get the ICD code for diagnosis and look it up online. Sometimes that is the only (sneaky) way to find out what your Dr is thinking when they won't tell you! Autoimmune diseases like lupus can cause peripheral neuropathy. Many patients with lupus are Vit B12 and folate deficient, which can contribute to it. I would ask your new Dr to check those levels and see if you need to supplement those vitamins. I hope you can get in to see a better Dr. sooner than end of January. It would be nice to feel decent for the holidays, and have an answer as to what is wrong.
    I would love to feel better by the holidays! I'd settle even for just having a new doctor by the holidays. The main problems I have right now are the fever, clammy sweating & feeling unwell in general. Plaquenil caused me to have aching in my chest & neck that traveled down both arms. It was scary. It only happened a few times, but it was enough to scare me off of it.

    One thing I'm puzzled about - the 10mg of Prednisone worked incredibly well for about a week, and now (about a month later) it seems to be only about 80% effective. Do people build tolerance to Prednisone?

    I looked up the reason he ordered a chest x-ray & it was to rule out lung cancer. I'm very confused by his actions.

    Thank you so much for your help!

     
    Closed Thread




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 11:19 AM.





    © 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!