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  • Daughter with low iron but not anemic

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    Old 09-26-2014, 07:51 PM   #1
    Ittybittymom
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    Daughter with low iron but not anemic

    Hi, Im new to this board but Im wondering if I could get some help or some advice about my daughter. She has been tested twice for her iron because she has sleeping issues (central sleep apnea and sleep phase disorder) In April they found she had low iron saturation. It was 18 which is not too low so we started her on some liquid iron drops. She has a lot of medical problems and special needs and one of which is eating issues so she has a Gtube for all meds and the majority of her calories. She just this Monday had some repeat blood work done and now we have found out that her Iron level has dropped to 29 and her saturation is now at 9. Im not sure what is going on but I was told it could be something called Anemia of chronic disease. She has a long list of medical issues and Im wondering if this iron issue is part of her muscle problems. The problem is is that all her other labs were fine and the dr says she is not anemic. Her ferritin is fine, and all her other blood counts are fine but these other numbers seem to keep falling. We cannot give her the iron drops because her intestines were not absorbing them, even in very small amounts and her diet is so spotty that we cannot solely rely on diet changes to help either. Im not sure where we should go from here? Any tips or help would be so appreciated.

     
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    Old 09-26-2014, 08:04 PM   #2
    alamogal635
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    Re: Daughter with low iron but not anemic

    Hello, I really feel for you as I had a daughter with special needs. Were I you, I would find a specialist to go over the labs and suggest a treatment plan. There are hematologists who work with low iron, anemia, and other such issues. I am no physician, but perhaps she needs B12 as well as iron. I know this as i am anemic and it is the B12 injections, which have really helped with iron absoprtion. Hope this helps at least a little. wishing you and your daughter the best.

    Last edited by alamogal635; 09-26-2014 at 08:07 PM. Reason: didn't capitalize starta of a sentense and too wordy.

     
    Old 09-26-2014, 08:21 PM   #3
    Ittybittymom
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    Re: Daughter with low iron but not anemic

    So B12 can help aid the absorption. She was taking Vit C but regressed on what she will take orally and I havent been able to find it in a store in a liqud. Is B12 only an injection or will the vitamin itself help? I know I could never inject her and at that point I would have to look into a nurse for her. I can do her feeding tube and stuff like that but I couldnt ever bring myself to inject my baby, she is almost 3 years old and has already been through so much. I will have to ask for a referral to a hematologist.

     
    Old 09-27-2014, 04:34 AM   #4
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    Re: Daughter with low iron but not anemic

    You might help get the iron absorbed by giving with orange juice, since she won't take the Vit C. Some Vit C tablets are chewable and orange flavored which many kids like. One possible cause of lack of iron absorption is celiac disease caused by an intolerance to gluten. That should be at least considered, especially if she has B12, folate or Vit D deficiency, as celiac causes many nutrients to not be absorbed properly. It is sometimes hereditary so any + family history should raise suspicion. B12 can be given under the tongue (sublingual), so does not require injections.

     
    Old 09-27-2014, 10:57 AM   #5
    Ittybittymom
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    Re: Daughter with low iron but not anemic

    Shes been tested for celiacs because of other issues and that testing was normal (blood tests) unfortunately she wont do anything by mouth and I think doing something disovlable would be bad for her because she is at risk for choking. She has some pretty bad oral aversion which is why we have to use her gtube for all her meds. She is intolerant to milk and soy though. Also we tried using the vit c with the iron to help absorb it but it wasn't working and wasn't helping. Shes had a lot of tests for malapsorption that have all been normal but Im wondering if its just an issue with her intestines that is causing her to not be able to absorb iron.

     
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