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    Old 05-27-2015, 12:31 PM   #1
    VHDud78
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    Really Scared...

    Hey everyone. About two months ago I began having neuropathy problems when I strained my trap muscle. I was getting tingling/numbness in my right neck/arm and part of my back. I had been taking a gaba supplement for a few months to help me sleep. Only 500mg at night under the recommended dose. I stopped taking it. I made a visit to my doctor My doctor told me to go see therapy. I had a couple sessions and things were going ok. While jogging on the treadmill one night I began to get dizzy, tingling in my right leg, and arm as well. I was scared something was wrong and went to the ER. ER did a CT scan on my brain and said it was normal. They told me to follow up with my doctor. It sounded like disc issue in my spine.

    I went to my doctor a couple days later and he told I was fine and to continue physical therapy. I didn't lift weights throughout the process..just did heavy cardio. I had a couple more therapy sessions and felt great. I would occasionally get neuropathy in my neck/arms..but I figured it would go away. A week later I returned to the gym. I bent over to tie my shoes and felt a weird sensation in my back and tingling down my leg. I figured I pinched another nerve or pulled a muscle.

    That night I began to experience tightness in my neck and dizziness. I also had tightness in my leg. I was a little worried. The next day I went to the gym and almost passed out. I felt so dizzy and off balance. I went back to my doctor. He told me i was ok and didn't do anything. He just told me that it was nerve irritation. Dizziness started coming in heavy and also had clumsey hands. I also felt very foggy and unable to concentrate. The left side of my neck swelled up one day and could't move it. I went to the Urgent Care. They couldn't do anything. I saw an orthopedic doctor the next day. He did an MRI in my neck and said everything was fine. He referred my to a neurologist. I was scared when he did. I went to my chiropractor a few days ago. He told me it seems like you may have a lumbar issue. Maybe a herniated disc is pinching a nerve. This weekend I started getting shaking in my hands, and spasm's all over.

    I saw the neurologist yesterday. I told him I had been taking a Gaba supplement. He asked how long but didn't seem concerned. He said, "Just seems like you still have some nerve irritation. I'm not noticing anything major. I'll take it a step further and do an MRI of the brain to check for any signs of MS." I'm still getting weakness in my right leg and my neck muscles are very tight. What has me concerned is the dizziness while working out. The hand clumsiness has dissipated. It only occurs every once in a while. I still have tightness in my neck..some dizziness/ light headed..worse when working out..spasms...occasional weakness in my arms. My right leg feels weak as well. I woke up this morning and felt very ill. I was felt so weak. I vommited a couple of times. I'm starting to feel better, though. Does it sound like MS? I really didn't think it could progress this fast. Or does it sound like MS or does it sound like nerve impingement with anxiety? I've been taking b12, potassium, and Iron supplements. Seems to help slightly. Any advice is appreciated.

     
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    Old 05-27-2015, 02:34 PM   #2
    MSJayhawk
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    Re: Really Scared...

    VHDud78

    Welcome.

    Neuropathy aside, your issues do not scream "MS". If you have MS, a chiropractor can worsen symptoms. If you have MS OTC Supplements would not bring relief. Could you still have MS- sure, but there is a diagnostic process (Revised McDonald Criteria) which needs to ne followed to determine if there is MS as a root cause. An MRI alone can neither confirm or deny MS>

    I did power lifting until my MS worsened in 2002. I would carry some M&Ms with me because while working out my blood sugar would drop sometimes and leave me dizzy. I also have low BP (lower than most people). 3-4 M&Ms kicked "dizzy" in the tuchas and got me through my workouts.

    There are over 400 MS mimicries. You could also have multiple concerns which may need to be addressed in tandem. If MS is suspected, an MS Specialist is your best resource to get answers, but from what you have shared, I do not think MS is in your immediate area of concern (my non-medical opinion ).

    If things change or your symptoms change, then you will have more to go on. Should you have MS, you can continue life as it is not fatal, just chronic. Let not your heart be troubled.
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    Old 05-27-2015, 02:57 PM   #3
    VHDud78
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    Re: Really Scared...

    Thanks MSJayHawk. One thing I forgot to mention. Back in January i had tendonitus like symptoms in my right shoulder. I went to a massage therapist and he found knots on my brachial nerves near my neck. He got rid of them..but told me your muscles are very tight. After my trap strain I went to another massage therapist. He told me that my muscles were incredibly tight in my back. When he was done..he said my left side started tightening up again. He said he has never seen that before. A few weeks ago before the dizziness, muscle spasms, shaky hands occured....I saw another massage therapist. He was very good. He found a huge knot sitting on top of some brachial nerves and knots else where. The aching in my shoulder went away a couple of days later. He told me I did need a lot of additional work. I've been doing some research and keep getting ifft answers. Are stiff muscles an early sign of MS?

     
    Old 05-27-2015, 06:58 PM   #4
    MSJayhawk
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    Re: Really Scared...

    VHDud78,

    No worries.

    The knots above your brachial nerves could be the cause indeed. The cause of the tightness would be something to investigate. Muscle spasms and tightness can be the result of low magnesium or calcium levels. Vitamin D deficiencies also mimic MS, but not with the swelling you described. How are your blood levels for minerals and vitamins?

    One of the things you can try is to track your symptoms. MS can cause muscle tightness, but stretching, moving, and hydration help and sometimes a deficiency is added to the mess.

    As a note, OTC pain relievers or anti-inflammatory OTCs will generally do nothing for MSers. MS symptoms are usually long lasting 24+ hours.

    I had back problems develop in 2002 when my MS worsened. One side of my body was weakened and the other side became exhausted trying to compensate for the unbalanced nature. It took over two years for me to recover. I walked with forearm crutches and used a power chair which allowed my back to "balance". It was a matter of waiting for my body to heal. When the back starts to knot up, a whole 'lotta funky things can present. A good massage therapist is worth their weight in gold!
    __________________
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    Eternally blessed and eternally optimistic!<><

     
    Old 05-27-2015, 07:39 PM   #5
    VHDud78
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    Re: Really Scared...

    I started taking a magnesium and iron supplement..along with a multi vitamin. I never got my blood drawn. If the brain MRI is normal then my next step would be an MRI of my lower back. My right leg is killing me..and I'm gimping. I think that's why I feel so dizzy. When I saw the PT she told me i was very unbalanced as far as muscle. I had a lot of front body mass but my back and legs were lacking. She did say that could have been causing my issues. I hope that explains my dizziness at the gym recently. My weak leg..which seems to possibly be a spine issue in the lower back and my muscle in balance. I'm just worried about my neck being so tight. It feels like someone is strangling me....but the MRI came back normal? So confused.

    Last edited by VHDud78; 05-27-2015 at 07:41 PM.

     
    Old 05-27-2015, 08:41 PM   #6
    MSJayhawk
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    Re: Really Scared...

    VHDud78

    I would check your blood levels before supplementing. My doctor has me supplement vitamin D. I also take Vitamin C when I feel a cold coming-on.
    If you are lacking in a key component, simply supplementing that missing portion would be better than using multiple supplements.

    I hope you can get some relief.
    __________________
    MS diagnosed since October 3, 1982
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    Eternally blessed and eternally optimistic!<><

     
    Old 05-29-2015, 04:00 AM   #7
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    Re: Really Scared...

    VHdud78,
    Hi there. I wanted to clarify something for you. MS is not a muscular disease. One of your questions was if MS sounded like the description of the muscle weakness you are having.
    MS is a chronic illness of the autoimmune system, which affects the eyes, brain and spine. Its 100% nerve related, not muscle. However, a pinched nerve, a knot on a muscle, etc can present with similar symptoms to MS. Things like carpal tunnel syndrome can also cause numbness and symtoms similar to MS. Many a poster has had carpal tunnel and swore it was MS before getting the right diagnosis.

    I know you are scared. But anxiety and fear can make you hyper aware of your body. Being a gym guy- youre already aware of what your body should and can do...and if you are having problems achieving normal workouts, its bound to make you anxious.

    Chiropractors and massages are NOT recommended for MS. The reason is because they are manipulating the nerves of the spine, which can cause both more and permanent damage in an MS patient. Even if the massage therapist is "good", one hard manipulation, can throw the nerves out of whack...if you are even alittle bit unsure of what is going on, please consider going to an MS specialist and ruling out MS.

    The MRI of the brain, neck and even lower spine is a good thing; however if the doctor who is ordering it is not a MS specialist, he is probably depending on the radiologist to read the MRIs...not good. Many radiologists miss things which are critical to the dx of MS. A MS specialist on the other hand, reads their own films...and orders the correct tests. You really might want to get into see one, even if it is just to rule this out.

    In my non medical opinion, I agree with Jayhawk. There is nothing here screaming MS. You do not have the most common complaints which an MS patient would be having. The muscle issues appear to be something else, but you cant tell without having the complete run down of tests and being seen by the right doctor.

    Youve had a history of muscle issues. This could all very well be related and it could be nothing more than your body telling you that youve overdone it and pulled/ pinched something. I hope thats all it is for you.

    Please try not to be anxious- anxiety can present very much like MS symptoms as well. Take this a day at a time and try to relax. Maybe lay off the workouts until you have answers...stretching is the best thing in the world for MS patients, however, if you have a muscular issue, stretching might aggravate it. Talk to your therapist about their recommendations.

    I hope you feel better soon.
    MSNik
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    Old 06-02-2015, 03:12 PM   #8
    VHDud78
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    Re: Really Scared...

    Hey everyone. Had my MRI today..no scaring per the radiologist. She didn't see anything..everything appeared ti be normal. My neuro will review the full report and follow up with me. I know that doesn't rule out everything..but I guess if there isn't scaring..I should be ok. Hopefully just simple nerve irritation and or inner ear infection..getting some balance and vertigo issues. Should I still demand a spinal tap?

     
    Old 06-02-2015, 04:26 PM   #9
    MSJayhawk
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    Re: Really Scared...

    VHdud78,

    If you were seeing an MS Specialist, you would likely have an LP included. It would always be good for the additional information.

    The MRI needs to be reviewed by an MS Specialist. A Radiologist is going to look at the broad image. Also, please note that the MRI cannot confirm nor deny MS and neither can an LP. If you are lesion free, that is a good sign, BUT you should know that 5% of MSers present initially without lesions. If you are cleared of MS, you might keep this aforementioned fact on hand.
    __________________
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    MS onset circa 1977
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    Eternally blessed and eternally optimistic!<><

     
    Old 06-02-2015, 04:42 PM   #10
    VHDud78
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    Re: Really Scared...

    My neuro does see patients with ALS and MS and and specializes in both diseases. He didn't seem overly concerned about it. I will be sure to call his office first thing to follow up. Since I don't have any scaring on my brain..my anxiety level has finally lowered.

     
    Old 06-02-2015, 05:00 PM   #11
    MSJayhawk
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    Re: Really Scared...

    VHdud78,

    If your neuro sees ALS and MS patients and is not worried, then you should feel some reassurance. You should, however, be able to come away with a proper answer.
    __________________
    MS diagnosed since October 3, 1982
    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

     
    Old 06-24-2015, 09:53 PM   #12
    VHDud78
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    Re: Really Scared...

    Hey folks. Well after my neurologist appointment I went back to my orthopedic doctor. He read the report and said, "Well everything is normal." He looked at my leg muscles as well as my lower back. He said my legs and back were incredibly tight. So there I went..back to physical therapy . I went back to the same therapist. She was really confused by my symptoms. Stiff neck, burning around neck, clumsiness, coordination problems with hands, poor balance, and tingling, aching and twitching in my right leg.

    The first questions she started asking were ALS related questions. Buttoning up shirts, opening doors, opening jars. I thought, "Oh god please no." Of course..I don't have problems with any. She said my legs were very tight..and very poor mobility in my lower back. She said, "You might have a disk issue in your spine." She looked at me and said, "Are you sure the MRI of your brain was clean? Your symptoms are a little across the board." I told her my neuro said I was fine. He specializes in MS and primarily neuro muscular disorders.

    She teamed up with another therapist in her office that specialized in the spine. I described my symptoms. She said, "Yes..your symptoms are classic neck problems. Sometimes nerve irritation in the neck will go down to your legs." She tought me some exercises. I've been seeing both therapists for a few weeks now. My range of motion in my neck is almost normal. I have a few more sessions. I did some weight training at the therapy center. My arms were really shaky. She told me not to worry as I haven't done any heavy lifting for a few months. I still have weakness and aching in my right leg. I have some tingling/weakness/and twitchig in my right leg. On occasion i get tingling in my arm. My dizziness has gone down drastically but my balance is still bad. I'm getting twitching all over, primarily in my right leg..very bad. I can see the twitches. My right leg aches intermittently. Some days it does..somedays it doesn't. Part of me thinks i have ALS..but from what I've read..you cannot see ALS twitching. I was also told by someone who's very knowledgable in ALS told me ALS WILL definitely show on an MRI since it's central nervous disorder. But I've read that only an EMG can truly diagnose ALS along with related symptoms. I'm seeing my Primary Care Doc tomorrow to see if he can order blood to see if I have a deficiency. I'm hoping he doesn't blow me off for the 4th time. If anyone can give me further advice it would be appreciated. Msjay..thanks for your assistance with my journey to diagnoses.

     
    Old 06-24-2015, 11:23 PM   #13
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    Re: Really Scared...

    VHDud78,

    All in all not a bad update.

    Prolonged difficulty with tightness of muscles can spread like a wave and affect additional muscle groups. It can require time for this muscles to be manipulated back into position. You certainly do not want to do weight training with neavy weights until your body has regained muscle balance.

    ALS has specific testing. I once questioned this as a possibility when my MS worsened in 2002. My MS Specialist told me that testing for ALS is always a primary screening because of the speed at which it can strike. Dehydration, calcium, magnesium, Vitamin D, or B12 deficiencies can certainly be factors and those can be monitored by a GP. Calcium and magnesium are needed in muscle cell communication. With any supplements, too much can be a bad thing and much of it can be handled with a balanced diet. If supplements are needed, work with your doctor on the type and amount.

    It sounds like anxiety is still chasing you too. I would encourage you to speak with a counselor or therapist. Anxiety can have varying causes and can be treated orally, with meds, or a combination of both. All in all, you appear to be on the mend. Do not allow anxiety to ruin it all for you. Stay strong.
    __________________
    MS diagnosed since October 3, 1982
    MS onset circa 1977
    Proud to be MED FREE!
    Eternally blessed and eternally optimistic!<><

    Last edited by MSJayhawk; 06-24-2015 at 11:24 PM. Reason: TYPO

     
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