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  • Curious if you think this is Lyme

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    Old 04-03-2016, 11:30 AM   #1
    kbp
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    Question Curious if you think this is Lyme

    Hi everyone, I'm new here and thought I might post my 'story' and get your opinion on if I'm in the right place or not.

    I had lyme when I was 4 years old (I complained of my knees hurting a lot), did a course of antibiotics (didn't work), and then did 10 days of colloidal silver and I stopped complaining about my knees so my mom assumed I was better. I didn't have any problems until about puberty time, when I started complaining of being tired all the time - I attributed this to not eating properly. I also complained of body aches, but was a pre-professional ballet dancer, and still think that is the cause.

    Various things I can remember - lymph nodes in armpits swollen on and off throughout teen years. Depression. Bad skin. Multiple bouts of strep throat.

    Around 21/22 I moved to NYC and was working a lot and I got a mysterious infection - never figured out what it was, but it seemed like chronic tonsilitis. A month or two of a raw food diet seemed to keep symptoms at bay.

    Got my wisdom teeth out a few years ago and I feel like that time could be the onset of more symptoms.

    More and more pain, but attributed it to "old age" (in the dance world). Developed inguinal hernia Christmas 2014, got surgery Feb. 2015 and haven't been the same since. I have not been able to bounce back at all. I've had chronic back pain and have been to physical therapy and chiropracters twice a week for over a year now with very little improvement. There isn't one day that goes by that I'm not in pain and I am 26. I know some of this is damage from years of dance but this is overkill.

    Summer of 2015 before the hernia issue - I had these crazy cramps/pains in my abdomen/pelvis. Couldn't find the source of them. Just remember staying in bed a lot, miserable. Also right side of my neck will not be pain free. Lots of rib pain on right side. Cannot inhale deeply (I think because of tightness in rib cage/diaphragm, but whyyyy) and I've had that air hunger for over 2 years now. Have also had floaters in my eyes for around 2 years now, pretty much constantly now. Had a few bad migraines around puberty and again this year. Anxiety has been awful the past 2 years and I wake up every night at 2:30 unable to go back to sleep but I am so tired. I am always tired and always unable to sleep. If I do sleep I am wide awake very early. Also lately have had a tight jaw? I have the urge to push my jaw forward to stretch it. Oh, I also have very low adrenal function. I see a naturopath and we were treating that before my mom wanted her to look into the lyme thing. Thyroid is lowish. Vitamin D was quite low. I am very health conscious and was active up until recently. Also have a red rash, sometimes bulls eye shape, under my left pit that is itchy and will come and go over the past 5 or so years.

    I see what everyone is going through on here and my symptoms don't seem bad at all compared to everyone and I feel like I'm being a hypochondriac and just not doing my exercises or stretching enough but even so I don't think I should be this uncomfortable?? I look totally normal and I still try to be active, I just can't workout like I used to (I can walk on the treadmill for 10 minutes before my back starts to kill me).

    Does this just sound like something structural or am I on the right path? I don't really want to spend all that money for the Igenix test. I'm definitely going to get tested for coinfections at my local hospital though.

     
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    Old 04-04-2016, 04:04 AM   #2
    tess201
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    Re: Curious if you think this is Lyme

    This is nothing to fool around with trying to cut corners and cost. From what you've posted and your symptoms I do not think you were treated properly or long enough when you were a child. Lyme easily proliferates without proper treatment! A hospital is the last place to go for tests for lyme and any doc, other than an LLMD, will not be able to help you either.

    Lyme is diagnosed first by clinical symptoms, which you have. I can't stress strongly enough how imperative it is that you seek care with a lyme literate medical doctor. If you are still in NYC there are a number of them here. Also, read the stickies at the top of this board for more information.

    You need to act now. Lyme is a serious infection. It needs serious treatment.
    I hope you find the help you need soon.

    Tess

     
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    Old 04-09-2016, 06:40 AM   #3
    kbp
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    Re: Curious if you think this is Lyme

    (double post)

    Last edited by kbp; 04-10-2016 at 01:13 PM. Reason: double post

     
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    Old 04-09-2016, 06:41 AM   #4
    kbp
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    Re: Curious if you think this is Lyme

    Quote:
    Originally Posted by tess201 View Post
    This is nothing to fool around with trying to cut corners and cost. From what you've posted and your symptoms I do not think you were treated properly or long enough when you were a child. Lyme easily proliferates without proper treatment! A hospital is the last place to go for tests for lyme and any doc, other than an LLMD, will not be able to help you either.

    Lyme is diagnosed first by clinical symptoms, which you have. I can't stress strongly enough how imperative it is that you seek care with a lyme literate medical doctor. If you are still in NYC there are a number of them here. Also, read the stickies at the top of this board for more information.

    You need to act now. Lyme is a serious infection. It needs serious treatment.
    I hope you find the help you need soon.

    Tess

    Thank you for your response. I will look into finding an LLMD near me (I am in CT/NYC area if you have any suggestions/know of how I may go about finding a good fit). In the meantime I am feeling better with what my naturopath has given me so far, as I am FINALLY able to sleep.

    Question for you: Since I have had a positive Western Blot (many years ago), is it necessary to spend the money to have another done? And it seems like it might be pointless to try to do it through Quest? Or is that better than nothing? I do think I should follow through with a co-infections test. I don't have insurance so all of this is a little overwhelming as I'm not sure how I can afford any of this, but I recognize it is something I need to take care of.

     
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