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  • well ive had my biopsy

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    Old 12-26-2003, 05:37 AM   #1
    hamboney69
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    Cool well ive had my biopsy

    well ive had my biopsy and it wasnt as painful as i thought it would be the only thing painful was the numbing medication like when a dentist numbs your mouth for work on one of your teeth just a little scary. My results are in but i font have the whole picture for you yet i havent been to see the doc for all the results but i did get some stuff over the phone and am geno type 2b they have faxed all my info to the pharmisutical company and i am waiting on my meds now should be here in a week or so i will be on pegasus i have picked up a pegasist kit from my doc so now i am just waiting on the meds then i will take them to the docs and meet with him and my medicine coordinator and my nurse and they will go over all my test results and show me how to inject myself and to take care of my self during treatment i do have fatty liver but no hepatic masses in my liver or gallbladder once again when i get all the info on my test results i will post them for you all. I am not looking forward to this but i know it is something i have to do for myself and my family.
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    Old 12-26-2003, 09:22 AM   #2
    dianas
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    Re: well ive had my biopsy

    Wish it goes well for you, you have a good chance of clearing the virus with your genotype. Eat healthy, supplement with VitC and VitE, keep active, get plenty of exercise and rest, drink plenty of water and maintain a positive/winning attitude. AVOID alcohol, toxins, smoking, multi vitamin and mineral supplements (do take VitC and VitE). If you get down or anxious get a prescription for appropriate drugs. If you get nausea or muscle aches, drink water and if that doesn't help then take a tylenol. The side effects will build gradually, and may take up to six months to clear from your system after you stop taking them. They are tolerable if you keep Sustained Viral Response in sight as your goal.

    The best to you in 2004 !!!!

    Diana

     
    Old 12-27-2003, 10:34 AM   #3
    thanbey
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    Re: well ive had my biopsy

    Quote:
    Originally Posted by hamboney69
    well ive had my biopsy and it wasnt as painful as i thought it would be the only thing painful was the numbing medication like when a dentist numbs your mouth for work on one of your teeth just a little scary. My results are in but i font have the whole picture for you yet i havent been to see the doc for all the results but i did get some stuff over the phone and am geno type 2b they have faxed all my info to the pharmisutical company and i am waiting on my meds now should be here in a week or so i will be on pegasus i have picked up a pegasist kit from my doc so now i am just waiting on the meds then i will take them to the docs and meet with him and my medicine coordinator and my nurse and they will go over all my test results and show me how to inject myself and to take care of my self during treatment i do have fatty liver but no hepatic masses in my liver or gallbladder once again when i get all the info on my test results i will post them for you all. I am not looking forward to this but i know it is something i have to do for myself and my family.

    I don't understand why you are going to do treatment before you even know if you need to do it or not. That is the whole point of a biopsy.

    You very well may want to treat and it may very well be the right decision for you. I would encourage you to be much more educated about both your status medically (the specifics of the biopsy resport) and about hepatitis C in general before you decide to treat.

    There is time to do research, think over and decide.

    This seems very rushed to me and sometimes I wonder whether good health insurance is always a good thing (of course it is!), since decisions are made so hurredly when there is a payor ready to cover the high costs.

    What alternatives have been offered? If none, then the range of possibilities (and there are other possibilities) has not bee explored and that is a shame, in my opinion. I am especially concerned that you were not even in a fact to face meeting with a doctor to go over your results, the choices before you and to ask questions.

    A lot of decisions are made based on philosophy rather than scientific knowledge. Do you know what your doctor's philosophy is regarding hepatitis C?
    Will s/he fully support any side effects? Will they discontinue if there are serious side effects? Will they add more medications to support interferon? Did they discuss the risks of those strategies with you? What about any risks you personally have? What about loss of income, disability forms, etc? Will they help with those or do they believe that suffering while on treatment is all in your head?

    You also may wish to increase your chances of success by getting into shape for treatment. This include any lifestyle issues that you need to address and to stabilize prior to treatment. Being fit is great, but also getting fitter, leaner, quitting smoking, stabilizing the home, career and relationship isues can make a huge difference.

    You also have to decide whether this is the right timing for you. Do not assume you can work, run marathons or fully function personally or professionally while on treatment. Those stories are very rare. People do have limitations on them durting treatment. This may result in income loss, exacerbating troubles at home or in intimate relationships, with parenting. These are your personal factors and they are very important to consider. I know of no doctors who go over these issues with you and your family. You must assess these issues, along with those around you who are going to be affected. Six month is not a long time for an adult, but it can be an eternity for a child.

    These questions are just the beginning of what you need to know. You are entering into a long term relationship that requires trust, honesty and a sincere effort to achieve an end. ASK these and any other questions you have. But, first, do the research necessary to know what to ask.

    I hope this helps,

    thanbey

     
    Old 12-27-2003, 11:57 PM   #4
    dianas
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    Re: well ive had my biopsy

    Thanbey

    You raised very good points, medical professionals rarely address or support the effects of treatment, or alternative therapies, or even the effects of living with the symptoms of hepatitis C on interpersonal, sexual, health, fitness, financial, etc. relationships.

    This is largely due to very over-stressed, under-staffed, under-paid medical systems, working in an area that is not well understood, or with medications for which symptoms cannot be predicted. As such, one cannot expect medical staff to assist each and every patient with each and every side effect or cause/effect associated with no-tx, alternate-tx or with treatment.

    YOU ARE CORRECT lack of medical support must be understood and expected (unless a person is independently wealthy and has access to the best, personal medical attention, as might an actress or millionaire).

    On the other hand, if one is diligent to consider these deficiencies in our medical support systems, and prepares for or expects having various problems caused by viral symptoms or treatment side-effects, then a person has an opportunity to start researching treatment options.

    It is not recommended to make any major decisions while on treatment (financial, interpersonal). Well, I did not have an opportunity to even consider this when various symptoms of the virus itself had stressed me in the past (even when I did not know I had it) to the point where I made a number of irrational decisions and choices which caused negative influences in the outcome of my life. I considered this, too, when I decided to treat.

    There comes a point when a person may well just get plain fed up with decreased quality of life that the virus offers ... and the decision teeters in favor of the risks and side effects of treatment, whatever they might be.

    It is never an easy decision, and a person could wait forever. I hope that new, more tolerable treatments become available in my lifetime. However, I decided not to suffer any longer, waiting to find out. I accepted the limitations of our medical system, medical treatments, and my life style, made a decision that was informed enough for me to accept, despite having only a partial response to previous treatment with Rebotron as a 3A, which placed me in about the same success range as a 1A for Pegasys.

    The cooperation I got from an overtaxed medical institution was exceptional, because the nurses and doctors responded to my willingness to fight this virus, to improve my condition, because I am gungho, ambitious, determined. I suffered anxiety (which triggered some depression and interrelationship problems), eczema, sun sensitivity, increased tiredness, flu symptoms. I gained much respect for myself and found new inner strength, by getting out of bed despite the side effects. I took care of, fed and supported other people and tried to minimize being a burden on others. I took the high road, and worked hard to maintain a positive attitude. All that non-treatment offered me was a negative outlook. I gained control over the virus instead of being controlled by it.

    It is foolish to expect anyone to do exceptional tasks (a marathon?) while on treatment (or even not on treatment). It is not unreasonable to try alternate ways of dealing with side effects of treatment or symptoms of the virus (nurturing good health).

    I agree that it is very important to consider problems that treatment might bring when deciding to treat, and to weigh them against the problems that symptoms of the virus brings.

    "It is not the chances we take, but the choices we make, that determine our destiny."

    The best to all here in 2004!!!

    Thanks for your support and advice.

    Diana

     
    Old 12-29-2003, 05:24 PM   #5
    hamboney69
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    Re: well ive had my biopsy

    dear thanbey, you sound outraged by my decision but i have been thorouly informed on the side effects of the pegasis treatment and have spent the last 8 months getting the tests done on myself and have read countless hours of links from this site and others and followed many peoples therapy entries here not a day goes by that i dont think about it i have a great family and supporting wife and hope and pray i can make it through the struggle of therapy. I will not sit by and think that maybe if i take care of myself it will not advance i still smoke and drink coffee those are my two worst demons besides the hepatitis i am hoping i can quit smoking but am not going to postpone therapy till i do if i can. my specialist has advised me that i am a good candidate for the treatment and i will follow his advise no i havent gone over my biopsy with him yet but i will when i go in with my meds for them to show me and talk to me about self injecting and taking care of myself while on therapy. I will not ever be one to say i could have tried to get rid of it but i decided to wait. I am prepared mentally and hopefully psysically to overcome the sides. I have been warned by the doc and by all the literature i can find, about the side effects. I have talked to all in my family and at work they all know it will be a struggle, and they all know how dangerous it can be just to take the interfuron believe me i am not looking forward to it but i do firmly believe it has to be done or at least tried. im sorry i dont have all my biopsy info to give you but when i get it ill post it to you...sincerely...ANDY
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    Old 12-29-2003, 05:43 PM   #6
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    Re: well ive had my biopsy

    If you sensed outrage, it was at the idea that you would be prescribed treatment in advance of the biopsy results and not regarding your choice to treat. It had nothing to do with side effects at all except with regard to suffering them unecessarily.

    Perhaps I misread your post. If so, I beg your pardon.

    Smoking increases progression of liver disease in studies. This could hinder your treatment. People have argued that beer doesn't make a difference, either. I would argue that it does. Surely studies have indicated that, too.

    It's your liver and these are your choices.

    I hope you get the outcome you are hoping for.

    thanbey

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    Old 12-29-2003, 06:29 PM   #7
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    Re: well ive had my biopsy

    yes i know smoking does advance the disease and can hinder treatment and i will try to quit its just not as simple as some folks think regardless of the consequences its just that one last vice that i have to decide to do without, and it is the toughest one for sure. my doc did see the biopsy report before advising to treat i just didnt have a face to face with him like you said i talked to the nurse over the phone and cant remember all the info she told me about the results over the phone i was at work when they called and had limited time to talk to her. but she did say the doc wanted to start me on pegasus and then had the medicine coordinator call me. and they will all be there when i go in for my next visit to start treatment. I am hoping for the best and i will try my best to come out ahead in this.
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    Old 12-29-2003, 08:13 PM   #8
    dianas
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    Re: well ive had my biopsy

    Andy

    I hope your treatment goes well.

    Just QUIT SMOKING, like Thanbey recommends, you need all your eggs in one basket and smoking will make the side effects of TX that much worse because it will make your liver work harder.

    Remember that the treatment is like a toxin to your liver, which is already being stressed by the smoking, body wastes, the hepc, other viruses and toxins. I don't smoke so TX only caused a mild drip in my hemaglobin, red blood cell, platelet and white blood cell counts, yet I still noticed the effects of these reduced levels (they were below normal, but not so low that I had to cut back on Pegasys TX dosages). If you don't quit now you may see your levels drop so that you are given the mandate to quit smoking or quit treatment or reduce treatment dosage.

    Don't waste your (and everyone else's) time and effort on your treatment attempt. Make that committment to yourself and quit smoking. Coffee is okay, but if you associate smoking with coffee, then quit the coffee, too. When you crave a smoke drink a glass of cold water (rather than a bite to eat) and tell yourself the water is filling you inside the way the smoke does (imagery works). Tell yourself you hate every puff the next few days. Butt your cigs out earlier and earlier. Then on the last day smoke a few (or a whole pack) of whole cigarettes of a brand/flavor (menthol, cigarillo?) that you will gag on and make you HATE smoking. That's how I quit in 79. If you are quitting while smoking, don't worry about gaining weight, you will likely get a bit of nausea that will make you want to eat less (but keep on nibbling all day long, anyway, your metabolism will likely increase and you will burn it all off, just make sure it is good food).

    From what I hear, smokers who have advanced hepC eventually quit smoking anyways because it makes them more tired/lethargic.

    Thanbey is right, it is better to know the results of your biopsy prior to starting TX. Two years ago I started the old Rebotron TX because I was 3A and had a good chance of clearing, without having had a biopsy done, but other tests (blood, ultrasound, xrays) showed that TX was the way to go, the decision was mine. I hated the various hep symptoms I had. Other TX was not approved here yet and I missed the Peg trials (turns out Pegasys has worked for me, whereas the Rebotron only caused a good drop in levels, but I didn't clear it).

    Once you have made your mind up, go for it. Don' t look back and keep that positive outlook. Keep your mind busy.

    And butt out!

    Diana

     
    Old 12-30-2003, 04:35 PM   #9
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    Re: well ive had my biopsy

    thank you diana for your reply i have decided to quit smoking and am going to try to start in the morning after a good nights rest. Ill keep you informed on how i do thanks again......Andy
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    Old 12-30-2003, 08:30 PM   #10
    dianas
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    Re: well ive had my biopsy

    Good for you, Andy!!!!

    Every time you crave a smoke, just think of how much more effective the treatment will be you if you resist the temptation.

    Carry a fresh bottle of good water with you every day and substitute a swig for every puff you want to take!

    Good luck! And the BEST in 2004!

    Diana

     
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