It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Anemia Message Board

  • Hematologists

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 10-27-2003, 11:15 AM   #16
    PaNik5717
    Senior Veteran
     
    PaNik5717's Avatar
     
    Join Date: May 2003
    Posts: 954
    PaNik5717 HB User
    Post

    Six is an ugly number! The gyn didn't say anything about doing anything and my PCP was on vacation last week. My dad called and yelled at a nurse and then we found out she was gone. No one bothered to return my calls. I guess they just took my messages and left them for her.

    She called today and said they don't like to transfuse people my age. And even less so since they haven't stoppped the bleeding. It has slowed on the Provera. Anyways, I finally got the referral to a hematologist. They are simply begging the ones in the city to see me even though the preferred one is on vacation. Maybe it will happen soon. But, I think it will be out of network which will cost more, but I guess it will be worth it.

    How is your referral to the special GI doc? I have been wondering. Is there any chance that there is permanent damage left behind from your eating disorder? That could be a tough question to answer, I know. I was just curious if that could be a possibility.

    I hope you are well. My mom is coming over for lunch to take me for a walk around the block!

    Nik
    __________________
    Total abdominal hysterectomy at age 26 due to abnormal bleeding. Kept ovaries.

     
    Sponsors Lightbulb
       
    Old 10-27-2003, 08:03 PM   #17
    amwood
    Senior Member
     
    amwood's Avatar
     
    Join Date: Jul 2003
    Location: California
    Posts: 143
    amwood HB User
    Post

    Hi Nik - I'm glad you were able to get a referral to a hematalogist...hopefully you'll be able to get in to see one soon! Have you heard back on the labwork you had done last week? Since your doc has been on vacation, I'm guessing you haven't heard yet - it can be so frustrating when they go out of town..it's almost like we're stuck in limbo in this awful anemic state (although I really can't even imagine what being at a 6 is like!).

    I haven't heard from the GI doc in SF yet, but he's supposed to be back in his office tomorrow so hopefully he'll call then or Wednesday to set something up. I was supposed to see my doctor this morning but she was stuck in LA (due to the fires) and couldn't fly back up north until later tonight. I did talk with her partner, who told me that my hemoglobin went down again (by 1.1 points!!)in a week, and wanted to know when I'm seeing the specialist in SF. I explained to her the situation, and mentioned that I was throwing up again on Saturday. I know she'll be talking with my doctor soon and hopefully they can get things moving in SF faster than I can. It's nice because although I live in the Bay Area, my doctor and her partner have a small practice and a small staff, which is good because they all know me and what's going on...I don't feel like I'm being passed around to the next available doctor or nurse.

    As for the anemia being related to the eating disorder....that was what my doctor had originally thought. The routine labwork she ran a year ago was done about 2 months after I had been home from treatment and was just to make sure things were still ok. My weight is fine right now, and was back then too (although honestly it's a little hard with this GI stuff going on), but she thought that I might have problems absorbing vitamins, iron, etc, so I took iron supplements for about 4-5 weeks and my hemoglobin still went down over that time. That was when they tested for occult bleeding (and I was positive 3 times in a row), so I began the GI testing. The GI doctor took several biopsies from my stomach to see if I did in fact have an absorption problem and it all came back negative. Actually, the GI doctor that's been doing the testing was the same one that treated me when I was in the hospital just before leaving for treatment so he knows my entire history as well. And, my primary proceeded pretty cautiously with all the testing since she wanted to be sure it wasn't related to the eating disorder. I've talked about this with her, and she said (along with my hematalogist) that the IV iron would have taken care of any absorption problems if that's what the cause was. I was hoping that was all it was and I could get on with my life, but unfortunately I guess it's not.

    So how was your walk today? Is the weather getting cold there yet? We're having one last heat wave and it's been in the lower 90's here since Friday...unfortunately it's supposed to cool down to normal fall weather by the end of the week. Speaking of walking - I was shopping this weekend with my mom, and I suddenly just felt exhausted (of course not from any physical activity, from this stupid anemia - I'm sure you know what I'm talking about), and I felt the urge to just sit down in the middle of the store and rest. I didn't though since for whatever reason there were millions of kids out at the mall and it was just too crowded...but that's so pathetic! I can barely make one lap around Macy's now....and as I type this I've got my yummy Ensure next to me to drink!

    Well I think this post turned out to be really long, but I hope they start finding some answers for you! Take care,
    Adrienne

     
    Old 10-28-2003, 03:05 PM   #18
    PaNik5717
    Senior Veteran
     
    PaNik5717's Avatar
     
    Join Date: May 2003
    Posts: 954
    PaNik5717 HB User
    Post

    Hi Adrienne (and QS and anyone else reading):

    You know, I had a college roommate named Adrienne. She was one of the sweetest, nicest women I have ever met, but I only got to live with her one semester because she got married and moved out of the dorm.

    I got a call from the hematologist's office today. The name of their office is New Mexico Oncology and Hematology. To hear the oncology part first was a little jarring. I was having trouble getting the bloodwork from last week sent to them, but then the nurse - at an office I had never had any contact with - said she called the hospital where I had it drawn and got it faxed over. A little shocking that it was that easy, but I wanted them to have it anyway. They looked it over and they are going to see my Nov. 4th.

    I think I am adjusting to being at 6. I don't think it is good for the body, but I am feeling a little better. I know exactly how you felt at Macy's I felt exactly the same way at Walgreen's last week. I had to get the Provera filled and they didn't say how long it would take. So, we went to the grocery store and came right back. An hour later, we were still sitting there. It was dinner time and that made it worse. We were walking out - without my meds - and I was just overwhelmed with fatigue and sorrow and and embarassment and that overall sense that something just isn't right. I just started to cry right there, but I kept on until I got to the car. I stood at the door crying - not enough energy to sob - while my mom yelled at my nephew for dawdling in the store.

    Imagine - two twenty something girls that can barely shop. Something must be wrong, as if you couldn't tell from the diapers and the ensure.

    That is when I realized that the headaches that I have been getting along with the photosensitivity are the same feelings you get after a good cry.

    I hope you hear from your new GI doc soon. I don't know a thing about occult bleeding, but if you tested positive three times, wouldn't they want to find the source? I sure hope your new doc can help you. Maybe we are both close to complete recovery thanks to our new docs!

    You know, I have always wanted to visit SF. I dated a guy in grad school who was dating a girl there. Ah, the life... Anyways, yes, it is getting cold here. Last week it was 80 during the day and 30 at night. This week it is a little cooler. I live in a high desert and we usually have snow on Halloween. I haven't seen any in the forecast this year, though. I have been watching the fires on the news - daytime TV, ick. I have a friend who drives water trucks and I keep thinking - he would only be twelve hours away. Why don't they mobilize people from other states? It looks like the pentagon sent some good help today, though.

    I'm going to call the neighbor to see if she has an egg I can borrow. I got all ready to make cookies and had no eggs. I made them once before without eggs - oops. Didn't work so well. So much for trying to do something fun during my time alone today.

    How do these messages get so long?

    Take care!
    Nik
    __________________
    Total abdominal hysterectomy at age 26 due to abnormal bleeding. Kept ovaries.

     
    Old 10-31-2003, 12:10 PM   #19
    amwood
    Senior Member
     
    amwood's Avatar
     
    Join Date: Jul 2003
    Location: California
    Posts: 143
    amwood HB User
    Post

    Hi ladies! How's everyone doing? Nik, how's the provera working? I hope your appointment next week is helpful. I heard from the GI doctor in SF today and he wants me to do the capsule endoscopy again. I had that test earlier this year and the results were inconclusive since the camera got "stuck" in area of my small intestine and that's where the battery died. Apparently in normal people the camera should be through your small intestine in about 4 hours....the camera died after about 7 hours and it was still trying to get through the same area. I'm glad that at least the doctors are moving forward, but I really hated this test! I know, there are worse tests out there and at least there was no prep for this like in the colonoscopy, but I was on a clear liquid diet the day before, no food after midnight, and I couldn't eat anything the next day until 4 hours after I swallowed the camera. Even after I was able to eat, it was from a very small list of foods that was essentially an expanded liquid diet with some soft foods. I had to stop taking my iron supplements 5 days before the test so I was exhausted by the day of the test, although that shouldn't be a problem this time since I've been getting IV iron instead. I remember being so exhausted that I didn't even want to walk to my car to sleep (which was only just over in the parking structure) so I found the closest chair in the downstairs lobby and slept. Ironically, before the test I was worried about whether or not I'd have enough time to do some shopping in Union Square and make it back in time to turn in the waistbelt...well, that wasn't an issue since I never left the hospital!

    Sorry for complaining so much...I think I'm just frustrated with all of this, especially repeating some of these tests again. But, I also saw my GP today and she showed me a chart she's been keeping of my hgb, hct, ferritin, and all the other iron values....it was actually a little scary to see the pattern of things over these past few months! I've known that things have gone up and down, but to see it on paper like that was different. I'm just hoping I can hold things together long enough to get through my trip to North Carolina next week and meetings with the Ph.D. faculty at UNC! I'm really excited about their program and the school, but you guys all know how tired you can feel sometimes with the anemia, and I would hate to appear as though I'm really not that interested or indifferent to what they have to say! Not to mention the possibility of having to make a "graceful" exit from the room at some point to throw up since that's still happening randomly each week

    Well have a happy Halloween everyone! Take care,
    Adrienne-

     
    Old 11-14-2003, 08:15 AM   #20
    motherw/four
    Junior Member
     
    motherw/four's Avatar
     
    Join Date: Oct 2003
    Location: Missouri
    Posts: 24
    motherw/four HB User
    Hi girls. I've been having the aniema thing for a while. Mine responds to iron supplements, when I take them. This may be something you've gotten WAY past...but I do the best when I avoid caffine (No Dr. Pepper kills me). I was told by my doc that caffine doesn't allow your body to absorb iron, and that it absorbs best if it's taken with vitamin C. I have 4 kids, am 32, and have had extremely heavy periods my whole life. It wasn't until after my last child that anyone notice the anemia problem. I stay so exausted all the time I have trouble keeping up with anything. My levels seem to stay between 6 and 9. I've been following your posts for a while, they've been a big help to me. Hope you find out what's going on. Definately be a pain in the Dr.'s butt, their job is to help you, if they won't help, suggest he/she change professions. Good luck to all of you.

     
    Old 11-14-2003, 09:09 AM   #21
    PaNik5717
    Senior Veteran
     
    PaNik5717's Avatar
     
    Join Date: May 2003
    Posts: 954
    PaNik5717 HB User
    It's good to hear from you.

    Staying between six and nine and taking care of kids sounds like no fun at all! Have they offered you anything to slow down your periods? I really think most women respond to treatment. That is why they can't figure me out.

    I am going to try to be strong. I have two appointments in the next two weeks and I am going to beg for an ablation or a hysterectomy. I am going to start the search for a doctor that will help.

    I saw the hematologist and he was wonderful. Nothing hematologically wrong with me, though, still. He wanted to put me on IV iron, but his office is two hours away and it would need to be done three times a week. Turns out I was responding well to the iron all ready - I can make tons of blood, I just need to stop bleeding. So, he had me double my iron pills to six just to try to sustain me until the bleeding stops.

     
    Old 11-14-2003, 05:36 PM   #22
    amwood
    Senior Member
     
    amwood's Avatar
     
    Join Date: Jul 2003
    Location: California
    Posts: 143
    amwood HB User
    Hi girls, it's been awhile, how's everyone doing? Nik, how's the provera working? I just read your post about your upcoming appointments - I really hope you can find a doctor who has your best interests at heart, who really tried to HELP you, and who really looks at the "whole picture" and doesn't do anything unnecessarily...it sounds like a lot to hope for, but I know that doctor is out there somewhere! Just hang in there, and I'm glad that you at least found a hematalogist that you like, even if he is a couple hours away!

    I saw my GP today and that didn't go that great. I really haven't been feeling well the past couple of days, and I had to leave work early yesterday and missed class last night because I felt like I was about to pass out anytime I did anything...even sitting at my desk was hard! Our poor receptionist was the only one in yesterday and she was so worried I was going to pass out any second because I was so pale, and I kept having to sit down while I was talking to her! Anyway, my doctor checked my hemoglobin in her office today and it had dropped about 2 points in less than two weeks. Needless to say, I left her office today with a form for a disabled parking permit (because of parking on campus and work), and was told to be on "couchrest" whenever possible until the GI test on Wed - this is pathetic, 27 yrs old and parking in handicap b/c of this anemia! And I know the clear liquid diet is going to be exhausting for the capsule test, if that makes any sense to you guys. I'm tired enough as it is, and then to have to eat Jello all day doesn't help..and no coffee - yikes!

    But, on a more positive note, my trip to North Carolina went really well. I didn't get sick in any of the meetings and I loved Chapel Hill! I was really impressed with the faculty and directors I met in the doctoral programs I'm looking at, and I met some of the students and they were great too! Although, I couldn't tell you how to get to Chapel Hill or Charlotte since I slept the entire way there and back, but I'm glad I went even though it seems I'm paying the price for it this week! Well I hope everyone is doing well, and Nik, good luck with your upcoming appointments...let us know how it goes! Oh, and motherw4, thanks for your response...I've heard the same thing about caffeine, but I can't quite give up the Starbuck's yet - although I have cut back! Take care,
    Adrienne

    Last edited by amwood; 11-14-2003 at 05:38 PM.

     
    Old 11-17-2003, 06:50 PM   #23
    PaNik5717
    Senior Veteran
     
    PaNik5717's Avatar
     
    Join Date: May 2003
    Posts: 954
    PaNik5717 HB User
    Hi Adrienne,

    I can't believe you dropped two more points so fast. You had already dropped right before that, too, right? I guess this procedure couldn't come at a better time. I know the diet will make you weaker, but you have to get to the bottom of your blood loss very soon. Have you had any throwing up lately?

    I went to the doc today and told her I want my life back. It was a very tough conversation, but she finally consented to a hysterectomy. She has tried everything else, but she wanted me to have the provera shot even though the oral provera didn't work. Instead, I am going on Lupron for three months and then she will take it all out. The Lupron will slow the blood flow to my uterus so that I won't bleed as much during the surgery. She is very much against transfusing me, so she wants to slow th flow and give me time to make my own blood.

    I didn't get the Lupron today. I have an appointment with my regular doc next week and I just wanted one last chance at something else and soem reassurance from another doc. Then, I will get the shot and start getting ready for the surgery. It gives me three months to talk myself out of it, but I don't think that will happen.

    I didn't think she would consent, but she did. Now I really have to face it. I may or may not keep my cervix and I will keep my ovaries, unless she sees endometriosis.

    Have you had enough Jello yet? I used to be a jellophile and had lots of good recipes for jello shots. I have a great one for margarita jello and one for pina colada jello. I guess that doesn't help you, though, does it?

    I'm kinda tired from the trip to the city. I'll check back with you in a day or two.

     
    Old 11-18-2003, 10:09 AM   #24
    amwood
    Senior Member
     
    amwood's Avatar
     
    Join Date: Jul 2003
    Location: California
    Posts: 143
    amwood HB User
    Oh Nik, I don't know what to say...it sounds like the hysterectomy is what you want, given your current situation, and I can definitely understand feeling like you just want your life back. Even still, I can imagine this was a difficult decision for you and the next few months are going to be challenging. From what it sounds like, you've got a great family and they all seem supportive. Let me know how your next appointment goes and how everything is going. Have they at least slowed the bleeding a little since your last appointment?

    I'm definitely ready to get my life back also! My hemoglobin is now hanging out in the low 7's, and I'm having a REALLY hard time keeping up with school, work, group projects, my thesis, and finals coming up. I went into work for a little while yesterday and had to leave early because I was just too exhausted (um, yeah, and I work at a desk so this is pathetic!). Anyway, I'm am so lucky to have an amazing boss who told me just to come in when I can, and my schedule is up to me as far as when I come and go. It helps that I work on campus and I'm only part time (20 hrs/week) since I'm going to school full-time....so at least I know the office isn't going to come to a grinding halt if I'm not there. Although, I do send out a weekly newsletter so that won't be done for a little while, oh well. I called in today and told my boss I'm going to take the rest of the week off - I was going to take Wed and Thurs off anyway for the GI test. I really never take days off work (except for actual vacations of course!) so it's really hard for me to have to call in and take so much time off...but I've finally accepted that at least for this week, my body really isn't going to let me do much.

    My friend who's taking me into SF for the test tomorrow just told me that she got me a hotel room for the day so I can hang out there, work on my laptop, sleep, eat, do whatever I want....I think that's one of the most thoughtful things anyone's ever done for me! Last time I had this test I didn't realize I would be so tired that day, and all I could do was find the nearest chair and sleep all day! Well, that's the latest here....sorry it's not more positive right now, but hopefully things will turn around after this test. I hope everyone's doing well, and Nik I hope your appointments go ok, and that you get all the information and help you need.

    I'm off to have some jello - I used to be pretty good at making jello shots back in the day also! I should've thought of that when I was making a batch last night...hmm, that could be something to do today...anything to make couchrest more exciting! Take care ~
    Adrienne

    Last edited by amwood; 11-18-2003 at 10:11 AM.

     
    Old 11-19-2003, 06:45 AM   #25
    PaNik5717
    Senior Veteran
     
    PaNik5717's Avatar
     
    Join Date: May 2003
    Posts: 954
    PaNik5717 HB User
    Hey Adrienne, good luck today. I sure hope that little probe travels further this time. Tell them to put an extra strong battery in it! And, make sure you don't push too hard. Use that hotel room to rest and watch TV if you need to.

    Let me know how it goes.

     
    Old 11-20-2003, 11:09 AM   #26
    amwood
    Senior Member
     
    amwood's Avatar
     
    Join Date: Jul 2003
    Location: California
    Posts: 143
    amwood HB User
    Re: Hematologists

    Thanks for your post! Well the test went fine yesterday, uneventful, so that's good. The hotel room my friend got was great...I brought my laptop to do some school work, but I slept most of the day and watched a little bit of Days of Our Lives...I felt really out of it yesterday (probably from lack of food and the anemia, not a good combination) so anything I would've written for school probably wouldn't have been coherant anyway!

    I won't find out the results until next week - the doctor has to upload the info and then burn it onto a disk to view it...isn't technology great! But, I did talk with him for awhile yesterday. We went over everything that's been going on since I saw him last. He said that in a lot of cases with GI bleeding, it either eventually goes away and they really never find out what the cause was, or it happens every now and then (depending on what the problem is), but in my case it's been continuous and he said they need to find out what's going on. He said that if the results from the capsule test come back the same as last time (inconclusive, with the camera getting stuck in a "tumor-like" area in my small intestine), he would repeat the colonoscopy and endoscopy as standard procedure, and then he wants to do exploratory laproscopic surgery. I really feel like this is a no-win situation - if they find something on this test, I'll probably have to have surgery (from what I've read and heard about problems in the small intestine), and if they don't find anything on this test I'll still have to have surgery. But I guess anything is better then what's going on right now....with my hemoglobin going up and down all the time...I think I've forgotten what it feels like to be in the "normal" range and to have energy, which is probably good because I'm getting used to being at this point...it's amazing how your body can adapt to things...

    I really won't know anything until next week, hopefully before the Thanksgiving holiday. I'm going to call my primary today and talk about the options the GI gave me and get her thoughts on it. For now, I've taken the week off work but I'm going to try and make my classes this week since now is not the time to get behind! How are things going with you Nik? Have you had any appointments lately? You must be getting snow soon, if you haven't already...I'm much more of a summer/sun person and I really don't like the cold...fortunately it hasn't been too cold yet, but it's supposed to cool down a lot this weekend Oh well, I guess that just means more snow in the Sierras to ski on...hopefully I'll able to ski soon! Take care,
    Adrienne

     
    Old 11-22-2003, 11:27 AM   #27
    PaNik5717
    Senior Veteran
     
    PaNik5717's Avatar
     
    Join Date: May 2003
    Posts: 954
    PaNik5717 HB User
    Re: Hematologists

    "He said that in a lot of cases with GI bleeding, it either eventually goes away and they really never find out what the cause was, or it happens every now and then (depending on what the problem is), but in my case it's been continuous and he said they need to find out what's going on."

    That sounds exactly like me. We put so much hope and faith in doctors and their books and journals, but so much of it is just guessing and waiting. I guess you need your intestines, though, so they do have to figure it out. I am giving up simply because the medical community doesn't seem to have a good answer for me yet. Surgery seems to be the way to go.

    Hey, what happens to the camera once it is done filming inside of you?

    I understand how you feel with the up and down hemoglobin. Nine was so depressing and felt terrible about six weeks ago. But then I went down to six and came back to nine and it felt so good. I have been so productive, but probably a bit too productive. I haven't been resting enough and the increased activity usually means that I will bleed more.

    I guess I don't have any appointments for awhile. I was going to see my primary Monday, but we spoke on the phone and she said she doesn't have much to offer me. I coudl go in and see if she had anything more reassuring to say face-to-face, but it would cost me $25 I don't have and it is tough to get in with her, so I am sure someone else can fit in that slot. So, I went and got my shot yesterday. I didn't want to drive to ABQ to get it, so I asked a friend who is a mid-wife to order it for me. It was waiting for me at the clinic where my first gyn works. His nurse gave it to me and he saw me in the hall so he asked her what's up. He's the one who only did one ultrasound and tried one type of hormone and then sent me home with sleeping pills. He called me to tell me he thought the Lupron shot was a good idea. He wasnt so sure about the surgery, but he listened to me for awhile and offered to do it here. He is so sad that I won't be making babies - small town doc. His call was mostly just annoying. I really feel like the doctor that has agonized over this and tried hardest is the one who should get the procedure. It would be so nice not to have a two hour drive home and to have my parents stay at home, but I think I will stick with the doc that I have been seeing.

    Before I got the shot yesterday, I hadn't bled in about 30 hours or so. It made me want to second-guess myself, but then I got the shot and I was bleeding an hour later. I woke up soaked late last night. I think I will bleed more when I stop the Provera, but the Lupron should kick in within a few weeks. Then I can start making blood to use on the slopes, too.

    We did get snow, today. It's the first snow and it's about a month late. The ski areas got snow a few weeks ago which is good. It's also terribly cold and windy. Tomorrow our high is supposed to be 36. I'm not a huge fan of the cold, but Gallup is warm compared to Chicago. Most days, we are cold at night and cool during the day. You can tolerate it if it is only cold when you start the car in the morning and then it warms up by lunch.

    Let me know when you get your results. How is the school work going? Any big plans for Turkey Day. I'm going to keep baking. Whatever doesn't sell at our next craft fair can be given away. Come on over...

     
    Old 11-23-2003, 09:50 AM   #28
    amwood
    Senior Member
     
    amwood's Avatar
     
    Join Date: Jul 2003
    Location: California
    Posts: 143
    amwood HB User
    Re: Hematologists

    It definitely sounds like our cases our similar * in that we've just completely baffled the medical community. I've almost given up hope on anyone finding out where the bleeding is coming from (even though it seems like a reasonable thing to want), but my new GI doc in SF seems to be pretty good, and I really like his approach (although not the surgery part of it)...but at least he has a plan for each possible outcome and isn't taken the same "wait and see" approach the other GI doctor was. You know, I've always wondered what exactly they're waiting for when they say that * for me to fall over one day from lack of oxygen? Anyway, I could go on and on about how much this irritates me, and how frustrated I am with all of this, and how I just want my life back...but I won't because I'm sure you know how I feel!

    So what exactly does Lupron do? I'm really not familiar with the process you're going through right now, so if I ask questions that seem simple that's why. I think I mentioned this before at some point, but earlier this year my mom had a hysterectomy, but she had already gone through menopause so I'm sure the process is a little different for you. It sounds like you've found a good doctor outside of your town, although it's too bad it's so far away.

    I'm hoping to get the results from my test early this week, although I'm not really expecting anything very different from the last time (slightly pessimistic, I know!). The test itself is actually quite interesting....you have to swallow a camera that's a bit bigger then a vitamin and it's got flashing lights going as you swallow it (which just goes against everything I was taught as a kid...you know, to not swallow any strange objects, especially things that are flashing...). But anyway, the camera has a battery that lasts from 7*8 hours and films as it moves through your digestive system, mainly the small bowel. The battery eventually dies, and the camera just moves through your system even after the battery dies (just like food would). Then the camera exits through a normal bowel movement....I don't actually have to retrieve it (thank god) but I do have to confirm that it's left my system....and I'm still waiting. Last time I had this test, the camera was out the next day....this time it's been 4 days....they said there's a small chance it can get "stuck" and they'd have to go in and get it, either through endoscopy, colonoscopy, or laparoscopic surgery, depending on where it is. So we'll see....I have faith it'll come out on it's own.....

    I've had to change my T*day plans a little this year....last year my younger sister and I did the Run to Feed the Hungry in Sacramento and then made whatever we felt like eating for dinner, with some good wine We were going to do the Run again this year, then volunteer at a women's shelter in Sac and serve lunch, then go home and make our dinner, and sit around in our sweats and drink wine and listen to Christmas music! But, I think we'll just work at the shelter and then cook dinner...no 5K run this year It's interesting because last year around this time is when I found out I was anemic....I did the 5K run on T*day and was really winded/exhausted, even though I had been working out consistently before then, so of course I made myself work out a little harder after that, thinking I was just really out of shape. The week after T*day I had a regular appointment with my primary and she did labwork, and was really surprised to see that I was "severely anemic", as she put it....and here I am today, still anemic....

    Ok, well I just rambled on for while so I'll stop for now What are your plans for the holiday? It sounds like you're a pretty good cook so I'm sure you've got something planned for the holiday! How often does your mom have bead shows? My older sister loves to shop at the bead stores in Berkeley, although I've never actually seen her make anything with the stuff she buys! I hope everything's going ok...and try not to use up those new red blood cells all in one day!!

    Adrienne~

     
    Old 11-23-2003, 03:31 PM   #29
    PaNik5717
    Senior Veteran
     
    PaNik5717's Avatar
     
    Join Date: May 2003
    Posts: 954
    PaNik5717 HB User
    Re: Hematologists

    Hey girl,

    I am so sorry about your T-Day plans. It really sounds like volunteering and cooking will be a very full plate for you, without the run. I used to spring, but running has never been for me. Our plans aren't too big. My mom has had extra to deal with since I have been sick, so the motivation around here is a little low. We did a huge mexican dinner for my grandfather's 75th birthday last month (wow was that only a month ago when I bled all over his couch after my surgery?). Anyway, we usually have that stuff plus turkey for Thanksgiving. This year, we are just doing the turkey and a few pies. My mom is so funny, she always does a huge turkey. We have a 22 pound turkey for just four people. Of course, we will have guests later in the day for pie, but only four for the meal. I have seen cool things to do on the food channel, but Thanksgiving is about tradition. I'd hate to change anything from the way I have always had it.

    The next day is our big local craft show, so I will be saving my energy for that. I am also going to sell some baked goods. I'm just making everything we give out anyways and putting it for sale so that maybe it will all pay for itself. It's one little thing I can do to contribute, in addition to making a few beaded items. I also made some cool gingerbread houses that look like adobes. I used caramels to make luminarias which are the local style of Christmas lights made out of paper bags and candles and I used tootsie rolls to make vigas which are the big wooden beams that stick out on the edges of adobe buildings. I even added a little bread oven on the outside.

    We are doing six shows this season. We did two last year before Easter, but the Christmas ones are the big ones...especially the one on the biggest shopping day of the year. We make some cute angel earrings and pins that people like to buy as gifts.

    Lupron is a drug most people don't know about. It will block my natural estrogen and send me into menopause...sounds fun, right. Hopefully, my bleeding will stop eventually and I can make enough blood for the surgery. Plus, it will help draw out some of the blood in the uterus so that she doesn't have a bloody mess in the OR. I guess the odds of getting hepatitis are pretty high and she doesn't want to take my uterus and give me that in exchange.

    I started to realize I was anemic about a year ago, too. I broke my leg in October and then I started PT. I thought I was so out of shape when I started the therapy. I was shocked at how fast it all goes when you spend a few weeks stuck in bed with your leg elevated and iced. I started putting things together - like my pathological ice craving - and figured something else must be wrong with me. So, I asked for a test when I had my pap in February and my hemoglobin was at 8. It started to climb so quick after I got on the iron. Who would've ever imagined it would get this far?

    I sure hope that little camera found something. Then, maybe you can skip straight to the corrective procedure and skip all of those other diagnostic ones. If that happens, you will probably be in the OR before me. I guess you will have to travel for yours, too. Maybe they can fix you and find the camera at the same time. How long do you wait before they go in after it? How about your throwing up - has it gotten any better?

    Wow, another epic post. It is just so nice to have someone who can feel the fatigue to share it all with.

    Let me know when you get your results.

    Nik

     
    Old 11-24-2003, 06:39 PM   #30
    amwood
    Senior Member
     
    amwood's Avatar
     
    Join Date: Jul 2003
    Location: California
    Posts: 143
    amwood HB User
    Re: Hematologists

    Well I'm completely procrastinating on doing some homework right now so I'm on the internet instead! I'm building a gingerbread house right now too! But it's really not all that creative - it's the one from Costco that's essentially already laid out for you...but it's still fun and festive.

    So did they ever find out why/how you broke your leg? Have you ever had a bone density test? That's another health issue I've dealt with this year, although that one is directly related to the eating disorder. I had a bone density test earlier this year and found out I have osteopenia...not quite osteoporosis, but basically decreased bone density. I take calcium every day now, and should be able to stop it from getting worse, but I'm still at a higher risk for breaks and fractures, although I've never broken anything in my life. Anyway, I was just curious if they were ever able to tie together what happened last year with what's going on now?

    I don't have the test results yet, but I really don't think I'll hear anything until Wednesday, I hope...I really don't want to have to dwell on this over the holiday. But, still no sign of that little capsule yet.....
    But, I'm feeling better then I was last week. I haven't had my hemoglobin checked since the last time it was in the low 7's, but I'm sure it's gone up since then Either that or I'm just delerious from lack of oxygen....
    I haven't been throwing up as frequently as I was before, but it still happens about once a week or so, and it usually lasts for a few hours (once it was all night), and then it goes away. I have no idea what's causing that (but I'm guessing it's related to whatever's going on in my GI system). I've tried to make any connection between foods I've eaten, my level of activities that day, anything at all, but I can't really find anything that would cause this. Oh well, hopefully the SF doctor will have more to offer....I'd be happy if he can just stop the bleeding - I can learn to live with the throwing up!

    Well good luck at your upcoming shows! That sounds like fun and a good way to get into the holiday spirit! It's so nice to have someone who understands the frustration, exhaustion, and frustration (oh, did I already mention that?!) about all of this. We've got a lot coming up over the next couple of months, but who knows, we may both be on the slopes in time for some good spring skiing! Take care,
    Adrienne ~

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Hematologist??? krazy2day Blood and Blood Vessel 7 04-04-2009 09:32 AM
    Downward Trend in Platelet Count midwest1 Blood and Blood Vessel 67 01-27-2009 07:05 PM
    Hemolytic Anemia Calloway83 Blood and Blood Vessel 6 09-10-2008 06:48 PM
    interveous Iron side effects dorri Anemia 63 01-26-2008 06:22 PM
    High Platelet Count Barb390 Blood and Blood Vessel 198 02-23-2006 08:24 AM
    Large blood clots in period (no associated pain) kllym Women's Health 24 08-26-2005 09:04 PM
    Elevated white blood count lg Blood and Blood Vessel 4 08-06-2004 07:47 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 02:18 PM.





    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!