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    Old 02-19-2004, 05:57 AM   #16
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    Re: parched eustachian tubes...

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    Originally Posted by TMJgirl
    One ear. the right. It is the worse of the two. They feel the fluid is originating from my sinus. Why???? I had a CT of the sinus a year ago and it was normal. Had balance tests done and nothing came out clear. Nonconclusive. All I know is that I have fluid in my freaking ears, I am dizzy and loosing my mind. I have tried decongestants and they screwed me up. Made me dehydrated. Dried up the tissues worse and I had mucous like strings going down my throat. Just trying Robitussin alone today with tylenol for some relief I pray. They want me on antibiotic but I am resisting that. Who knows, maybe it is an infection, but I dont have yellow or green junk just clear thick. Gross........No more specialists...........they are idiots.
    same here, the right ear is the one with the heartbeat, are you dizzy every day? what about tubes in the ears to drain them? can you feel your ear drums move when you talk? do they rattle a bit? i hate this! i am afraid i will lose my hearing. will see if the c.t. shows anything! are you noise sensitive? lib

     
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    Old 02-19-2004, 06:04 AM   #17
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    Re: parched eustachian tubes...

    Lib: Yes, yes yes!!! Same thing........from the sinuses! Mucous extreme. Dont know why but it is backing up into the eustachian tubes. You too???? I bet you have the same thing. How old are you? Is this menopause? I am 48 and menopausal now. The pressure in my head is enormouse and feels like glue. In fact the MD said I had "glue ear" or serus otitis media. Kids get it. Tubes were an option with two ENT's but 50-50 chance of success and high rate of infection. I have zithromax prescription but I wont take it because I dont think this is infection. No sign of it. Facial pain is negative and mucous is clear. Just stuck.................May be an allergy or something. I was tested for molds and was very positive for that but I am sensative to sinus medication too. Dont know what to do. Suffering is tremendous.

     
    Old 02-19-2004, 06:31 AM   #18
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    Re: parched eustachian tubes...

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    Originally Posted by TMJgirl
    Lib: Yes, yes yes!!! Same thing........from the sinuses! Mucous extreme. Dont know why but it is backing up into the eustachian tubes. You too???? I bet you have the same thing. How old are you? Is this menopause? I am 48 and menopausal now. The pressure in my head is enormouse and feels like glue. In fact the MD said I had "glue ear" or serus otitis media. Kids get it. Tubes were an option with two ENT's but 50-50 chance of success and high rate of infection. I have zithromax prescription but I wont take it because I dont think this is infection. No sign of it. Facial pain is negative and mucous is clear. Just stuck.................May be an allergy or something. I was tested for molds and was very positive for that but I am sensative to sinus medication too. Dont know what to do. Suffering is tremendous.
    hi,
    i think it is more pet sounding for us, these are all the symptoms, as we are not suppose to get air up in the ears, dont take the antibiotics if you dont have an infection. i am 33, just went off the depo shot. look up patulous eustachian tube and see what you think, they say it can mimic middle ear effusion. does it sound like there is mucous in your ears? does your hearing fade out sometimes?

     
    Old 02-19-2004, 06:51 AM   #19
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    Re: parched eustachian tubes...

    I already checked into patulous. I went to an ENT specifically to rule it in or out and he scoped me. Said they are acting normally, ventalating properly. The sensation is fluid. I can hear bubbles like a sponge in there. It makes me dizzy alot and most of the time. When one side of the sinus swells that eustachian tube gets worse too. I really think it is mucous causing this not patulous. Read alot of info on that one. It isnt stuck open. Two ENT's checked it out for me. One with a ridgid scope one with a flacid scope. SO I got over suspecting that.

     
    Old 02-19-2004, 06:57 AM   #20
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    Re: parched eustachian tubes...

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    Originally Posted by TMJgirl
    I already checked into patulous. I went to an ENT specifically to rule it in or out and he scoped me. Said they are acting normally, ventalating properly. The sensation is fluid. I can hear bubbles like a sponge in there. It makes me dizzy alot and most of the time. When one side of the sinus swells that eustachian tube gets worse too. I really think it is mucous causing this not patulous. Read alot of info on that one. It isnt stuck open. Two ENT's checked it out for me. One with a ridgid scope one with a flacid scope. SO I got over suspecting that.
    our symptoms are so identical, i had 2 ents tell me they thought it sounded like they were to open, i think mine might be, i am going for a scan, and have another appt with another guy, march 1. when you swallow is it really loud? do your ears pop while you are talking, like bubbles coming out of the e.tubes? we will find a solution!

     
    Old 02-19-2004, 07:30 AM   #21
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    Re: parched eustachian tubes...

    Yes.....the same. I am very dizzy right now. Tried to pay bills online and feel faint right now. This is killing me.........I have a very strong and healthy body. I am in great shape.............everyone tells me I look great, not my age at all. I am a mom of two grown kids, I have a life, but not anymore. I am dizzy, my ears are clogged and i have major anxiety. It has ruined my marriage, on and on. I dont know where to turn anymore. I have taken robitussin this morning and it just makes more mucous. My head sounds like i have echos in it. constantly. My ears feel like sponges are in the tubes. That is how I describe it. Bubbles and fullness and junk in there. Are you dizzy with it???? Vertigo is horrible for me.

     
    Old 02-19-2004, 06:20 PM   #22
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    Re: parched eustachian tubes...

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    Originally Posted by TMJgirl
    Yes.....the same. I am very dizzy right now. Tried to pay bills online and feel faint right now. This is killing me.........I have a very strong and healthy body. I am in great shape.............everyone tells me I look great, not my age at all. I am a mom of two grown kids, I have a life, but not anymore. I am dizzy, my ears are clogged and i have major anxiety. It has ruined my marriage, on and on. I dont know where to turn anymore. I have taken robitussin this morning and it just makes more mucous. My head sounds like i have echos in it. constantly. My ears feel like sponges are in the tubes. That is how I describe it. Bubbles and fullness and junk in there. Are you dizzy with it???? Vertigo is horrible for me.
    i had some dizzy spells back at the end of sept, after that i just felt motion sick sometimes all night, i could feel fluid in my ears last fall but i dont feel it anymore, but still have the rest of the symptoms, i cant take the ear drums rattling when i talk, the popping while i am talking and on and on...i am sorry this has ruined your marriage, that sucks, its not right. did you have a cold before all thid started? are you on any hormones? my life is non existant now, i can stand noise, do your ears jump at noise? eardrums move to it? sorry its been bad for you, maybe i will learn something from one of these docs that will help us both. are you able to work through this?lib

     
    Old 02-21-2004, 05:18 AM   #23
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    Re: parched eustachian tubes...

    Hi Lib:
    How did your doctor appointment go? I went to an internist on the fly yesterday to have him look in my ears. He said there was nothing in there! Now that contradicts what the other guy said last week. This guy said and insisted that it is still my TMJ. He told me this a year ago and I didnt believe him. Sent me on a quest to ENT's over and over with nothing. My question is if this is TMJ then how can I have the fluid in there and the sinus pressure like it is a sinus problem instead! He said the feeling of fluid is from spasms. The muscles contract and tighten and then everything basically swells up inside and cant drain properly. This sucks........I have been given some xanax and am afraid to take it because I think it will make me more dizzy. I have to try tho. My ear drums feel wierd too. Sometimes I cant differentiate where sounds come from, which direction. Sometimes it feels like cotton in there and hearing gets muffled. Do you get panic attacks from this? I do.....Every morning when I get up I freak out like it is going to happen again and again for the rest of my life. Right now my eustachian tubes feel like they are stuck together when I swollow or yawn. It makes me clench and my muscles in my neck and shoulders get tight. The only relief is when I go to my gym and heft the weights that I do. I dont think about it as much. Maybe you have TMJ also. Has that been a question to rule out for you?
    Demi

     
    Old 02-21-2004, 06:58 AM   #24
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    Re: parched eustachian tubes...

    Quote:
    Originally Posted by TMJgirl
    Hi Lib:
    How did your doctor appointment go? I went to an internist on the fly yesterday to have him look in my ears. He said there was nothing in there! Now that contradicts what the other guy said last week. This guy said and insisted that it is still my TMJ. He told me this a year ago and I didnt believe him. Sent me on a quest to ENT's over and over with nothing. My question is if this is TMJ then how can I have the fluid in there and the sinus pressure like it is a sinus problem instead! He said the feeling of fluid is from spasms. The muscles contract and tighten and then everything basically swells up inside and cant drain properly. This sucks........I have been given some xanax and am afraid to take it because I think it will make me more dizzy. I have to try tho. My ear drums feel wierd too. Sometimes I cant differentiate where sounds come from, which direction. Sometimes it feels like cotton in there and hearing gets muffled. Do you get panic attacks from this? I do.....Every morning when I get up I freak out like it is going to happen again and again for the rest of my life. Right now my eustachian tubes feel like they are stuck together when I swollow or yawn. It makes me clench and my muscles in my neck and shoulders get tight. The only relief is when I go to my gym and heft the weights that I do. I dont think about it as much. Maybe you have TMJ also. Has that been a question to rule out for you?
    Demi
    hi, only got the scan done, i dont know the results yet. i have not been checked for tmj, i will. i cant tell you how many people did not see fluid in my ears either, only the p.a.. all the ents said they looked fine. i have been diagnosed with mieneres, migraine, you name it, how about you? are you on hormones if so i did read they can affect your eustachian tubes. yes i get very anxious over this, i cant sleep at night, wake up dreading the next day. do you get migraines? what kind of noise do you get when you yawn? do you get rattling waving ear drums when you talk? my ears pop with just movement of my body, i live in v.a. there is a specialist in boston, i made an appointment with him, first ava was july first! i am going to see what this scan says and i will see what the other dr. has to say, go get checked for tmj, and on. i get this strange clicking sound when i talk, it sounds like it is comeing from the roof of my mouth off to one side, do you get that? hope we are both out of this mess soon! libby

     
    Old 02-21-2004, 01:08 PM   #25
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    Re: parched eustachian tubes...

    [QUOTE=lib]hi, only got the scan done, i dont know the results yet. i have not been checked for tmj, i will. i cant tell you how many people did not see fluid in my ears either, only the p.a.. all the ents said they looked fine. i have been diagnosed with mieneres, migraine, you name it, how about you? are you on hormones if so i did read they can affect your eustachian tubes. yes i get very anxious over this, i cant sleep at night, wake up dreading the next day. do you get migraines? what kind of noise do you get when you yawn? do you get rattling waving ear drums when you talk? my ears pop with just movement of my body, i live in v.a. there is a specialist in boston, i made an appointment with him, first ava was july first! i am going to see what this scan says and i will see what the other dr. has to say, go get checked for tmj, and on. i get this strange clicking sound when i talk, it sounds like it is comeing from the roof of my mouth off to one side, do you get that? hope we are both out of this mess soon! libby[/QUOT



    No hormones. Only natural progesterone creams but this was there before that. No migraines either. Just clogged ears and vertigo driving me nuts. My jaw pops and dislocates. Mostly i hear my own voice in my ears when I talk how about you? I get where I hear my own breathing and heartbeat too. This is chinese water tortoure. I was told that muscle spasms are causing all of this crap. I do admit I feel the tension in my head and neck in the way of muscles like they cant rest. But I swear to God I have fluid in the ears. I can hear bubbles and it sounds like a sponge for lack of a better word, when I talk. Jst like there is a sponge in my ear that squishy sound, you know? The dizzy is the worst. Makes me real bad. I cant function. Kinda feels like my eustachian tubes are stuck together and are glued. Mostly on the right, but on the left too. I cant stand this anymore.....

     
    Old 02-21-2004, 01:57 PM   #26
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    Re: parched eustachian tubes...

    [QUOTE=TMJgirl]
    Quote:
    Originally Posted by lib
    hi, only got the scan done, i dont know the results yet. i have not been checked for tmj, i will. i cant tell you how many people did not see fluid in my ears either, only the p.a.. all the ents said they looked fine. i have been diagnosed with mieneres, migraine, you name it, how about you? are you on hormones if so i did read they can affect your eustachian tubes. yes i get very anxious over this, i cant sleep at night, wake up dreading the next day. do you get migraines? what kind of noise do you get when you yawn? do you get rattling waving ear drums when you talk? my ears pop with just movement of my body, i live in v.a. there is a specialist in boston, i made an appointment with him, first ava was july first! i am going to see what this scan says and i will see what the other dr. has to say, go get checked for tmj, and on. i get this strange clicking sound when i talk, it sounds like it is comeing from the roof of my mouth off to one side, do you get that? hope we are both out of this mess soon! libby[/QUOT



    No hormones. Only natural progesterone creams but this was there before that. No migraines either. Just clogged ears and vertigo driving me nuts. My jaw pops and dislocates. Mostly i hear my own voice in my ears when I talk how about you? I get where I hear my own breathing and heartbeat too. This is chinese water tortoure. I was told that muscle spasms are causing all of this crap. I do admit I feel the tension in my head and neck in the way of muscles like they cant rest. But I swear to God I have fluid in the ears. I can hear bubbles and it sounds like a sponge for lack of a better word, when I talk. Jst like there is a sponge in my ear that squishy sound, you know? The dizzy is the worst. Makes me real bad. I cant function. Kinda feels like my eustachian tubes are stuck together and are glued. Mostly on the right, but on the left too. I cant stand this anymore.....
    i know what you are saying, my voice bothers me, my ear drums rattle when i talk, sounds like something sticky when i open my mouth wide, like they are being pulled apart. do you really think this is tmj related? i dont want to waste my time if it wont help. my ears pop for no good frickin reason, just move my head or mouth and there you go, and i have a clicking sound i think from the roof of my mouth, wonder if thats the tube opening and shuting or if its something in my jaw, my friend heard it yesterday!
    i am so afraid i have pet, these symptoms match it, i wonder if it could be jaw related? when you talk do your ears vibrate also? i hate this and just want what ever it is to show up on the scan, i dont want to have to go all the way t boston to fix this, i cant believe what jack ups some doctors are.lib

     
    Old 02-21-2004, 04:32 PM   #27
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    Re: parched eustachian tubes...

    Quote:
    Originally Posted by lib
    i know what you are saying, my voice bothers me, my ear drums rattle when i talk, sounds like something sticky when i open my mouth wide, like they are being pulled apart. do you really think this is tmj related? i dont want to waste my time if it wont help. my ears pop for no good frickin reason, just move my head or mouth and there you go, and i have a clicking sound i think from the roof of my mouth, wonder if thats the tube opening and shuting or if its something in my jaw, my friend heard it yesterday!
    i am so afraid i have pet, these symptoms match it, i wonder if it could be jaw related? when you talk do your ears vibrate also? i hate this and just want what ever it is to show up on the scan, i dont want to have to go all the way t boston to fix this, i cant believe what jack ups some doctors are.lib

    Lib: Jack ups is a nice word for what I am thinking about these doctors! Haha. Yeah..............I think you have TMJ!! I am no doctor, but you have alllllll the symptoms. It is known as the great imposter. It can do anything to your head that it feels like. The pop sound (and you gave it away by saying your friend heard it) is your jaw! Mine pops and dislocates and makes crunching sounds and yes, it can be heard by others if they stand close enough. Like a bone going out of a socket. It hooks to the eustachian tubes by a little muscle that is the same one when you yawn and it is all connected together. also there are 30% of your nerves go thru the jaw socket I beleive the major one is called the trimenginal nerve (dont know if I spelled it right) but it is a major branch to the face and neck and head. You can have what they call referred pain, from one place and feels like it is somewhere else. The feeling in the back of your throat is probably your jaw popping and dislocating. I have had it for a year and still have the symptoms. I have done alot of research on it, lost 6 grand, and been to as many ENT's as I can stomach. So far, nothing has helped me. I am literally going nuts. I cannot take this sound in my head everytime I talk and swollow and my heartbeat. When I lay down it subsides then when I stand it is back. One MD tells me he sees fluid in my ear and another says none in the same week. What is up with that??? I live close to Philly and we have some major hospitals around here, but I am not going to them because I think they will give me something else! Maybe cut off an arm or something stupid like that! Ha. Wait for your Ct results. Where did they take them from? I had one of the sinus and it was negative. I had a panoramic done of the jaw joint and it was negative too. Mine, is supposed to be muscle, ligament and nerve stuff. Soft tissue stuff. The more I freak out the more the spasms set in and the swelling starts inside my head. Everyone tells me I look great. They cant see it. I work out, and am in tip top shape. I am going into a competition for body building in May and am very strong but my head is rediculous. sometimes I feel I cant even lift the weights anymore from the anxiety and vertigo. Who knows, maybe for me that is making it worse, the clenching while I lift. I wont stop doing what I love. So, I have this xanax stuff around here and am going to give it a try. Maybe for me at least, if I calm down maybe my jaw and muscles will calm down too. Maybe you are anxious also. I bet you a dollar to a donut that you have TMJ. Sounds just like it. Patulous is another story. TMJ can mimic that as well as clogged ears. It can do a host of things to you. Burt Reynolds ended up in a room for 2 years with it. He almost lost his marbles and he wrote a book on it called "My Life". I read the chapters 49-51 where he describes his hell and it is unreal. He got hit in the face with a chair on a movie set and ended up dizzy and clogged ears for 2 years. He went to specialists all over the country including Philly, and no one helped him. One day he found a little dentist from Georgia I think, and the guy fixed him by repositioning his teeth. I do grind and clench in my sleep. I wonder if you do too. This is an utter nightmare. How do they treat it you may ask.......a splint or a nightguard for your mouth, soft food diet, anxiety meds, and basically not to much else. Maybe some advil. Insurance doesnt even cover it because they think it is just and "ailment". Yeah right, I cant even work with this Hell. I have a paralegal degree and cant even do that. So tell me if this fits the bill for you. Forget about the idiot in Boston. Wasting your time, dear friend. Believe me. Look into TMJ. Go to a local dentist in your phone book and ask if they treat TMJ. Start there, and get an opinion. Then go from there after your CT comes back of course. See what that says first. But I pretty much will be surprised if anything shows up, but I dont know you of course. Hang in there. and let me know how you are doing. I am misreable everyday. My husband has been unsupportive and have had to go alone. My kids are grown and have their lives to lead. It is just up to me. Hold tight and take my advice........
    Demi

     
    Old 02-22-2004, 06:41 AM   #28
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    Re: parched eustachian tubes...

    Quote:
    Originally Posted by TMJgirl
    Lib: Jack ups is a nice word for what I am thinking about these doctors! Haha. Yeah..............I think you have TMJ!! I am no doctor, but you have alllllll the symptoms. It is known as the great imposter. It can do anything to your head that it feels like. The pop sound (and you gave it away by saying your friend heard it) is your jaw! Mine pops and dislocates and makes crunching sounds and yes, it can be heard by others if they stand close enough. Like a bone going out of a socket. It hooks to the eustachian tubes by a little muscle that is the same one when you yawn and it is all connected together. also there are 30% of your nerves go thru the jaw socket I beleive the major one is called the trimenginal nerve (dont know if I spelled it right) but it is a major branch to the face and neck and head. You can have what they call referred pain, from one place and feels like it is somewhere else. The feeling in the back of your throat is probably your jaw popping and dislocating. I have had it for a year and still have the symptoms. I have done alot of research on it, lost 6 grand, and been to as many ENT's as I can stomach. So far, nothing has helped me. I am literally going nuts. I cannot take this sound in my head everytime I talk and swollow and my heartbeat. When I lay down it subsides then when I stand it is back. One MD tells me he sees fluid in my ear and another says none in the same week. What is up with that??? I live close to Philly and we have some major hospitals around here, but I am not going to them because I think they will give me something else! Maybe cut off an arm or something stupid like that! Ha. Wait for your Ct results. Where did they take them from? I had one of the sinus and it was negative. I had a panoramic done of the jaw joint and it was negative too. Mine, is supposed to be muscle, ligament and nerve stuff. Soft tissue stuff. The more I freak out the more the spasms set in and the swelling starts inside my head. Everyone tells me I look great. They cant see it. I work out, and am in tip top shape. I am going into a competition for body building in May and am very strong but my head is rediculous. sometimes I feel I cant even lift the weights anymore from the anxiety and vertigo. Who knows, maybe for me that is making it worse, the clenching while I lift. I wont stop doing what I love. So, I have this xanax stuff around here and am going to give it a try. Maybe for me at least, if I calm down maybe my jaw and muscles will calm down too. Maybe you are anxious also. I bet you a dollar to a donut that you have TMJ. Sounds just like it. Patulous is another story. TMJ can mimic that as well as clogged ears. It can do a host of things to you. Burt Reynolds ended up in a room for 2 years with it. He almost lost his marbles and he wrote a book on it called "My Life". I read the chapters 49-51 where he describes his hell and it is unreal. He got hit in the face with a chair on a movie set and ended up dizzy and clogged ears for 2 years. He went to specialists all over the country including Philly, and no one helped him. One day he found a little dentist from Georgia I think, and the guy fixed him by repositioning his teeth. I do grind and clench in my sleep. I wonder if you do too. This is an utter nightmare. How do they treat it you may ask.......a splint or a nightguard for your mouth, soft food diet, anxiety meds, and basically not to much else. Maybe some advil. Insurance doesnt even cover it because they think it is just and "ailment". Yeah right, I cant even work with this Hell. I have a paralegal degree and cant even do that. So tell me if this fits the bill for you. Forget about the idiot in Boston. Wasting your time, dear friend. Believe me. Look into TMJ. Go to a local dentist in your phone book and ask if they treat TMJ. Start there, and get an opinion. Then go from there after your CT comes back of course. See what that says first. But I pretty much will be surprised if anything shows up, but I dont know you of course. Hang in there. and let me know how you are doing. I am misreable everyday. My husband has been unsupportive and have had to go alone. My kids are grown and have their lives to lead. It is just up to me. Hold tight and take my advice........
    Demi
    hi,
    well i am here for you, if your husband is not.
    i will check the tmj route, but the clicking sound is coming from the roof of my mouth, kinda in the sinus. i think it is the e. tube. i think mine are to open, 2 dr.s have said that. can you breath air up into your ears? i will try or do anything to get out of this hell, even boston, he specializes in eustachian tube problems. hope i can find out something on mon about the results. i pray if that is what it is it shows up. do your ears pop while you are laying down? everytime i swallow it is loud, how bout you? i saw on one of your posts you quit smoking, how did you do that? i am trying. hang in there, between the two of us we will get this figured out! lib

     
    Old 02-22-2004, 10:35 AM   #29
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    Re: parched eustachian tubes...

    Quote:
    Originally Posted by KC NM/TMJ
    The symptoms you describe are classic TMD Neuro Muscular symptoms.

    The connection? The muscles of the jaw are controlled by the Fifth cranial nerve - Trigeminal Nerve.

    One of the muscles that it controls is Tensor Veli palatini - this muscle controls the eustachian tube. Hence the symptoms you describe.

    Neuro Muscular approach to TMD may help alleviate your problems.
    hi, would that also cause you to feel your own breathing in your ears, and your eardrums to rattle while you are talking? any info would be greatly appricated! lib

     
    Old 02-22-2004, 11:13 AM   #30
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    Re: parched eustachian tubes...

    Quote:
    Originally Posted by lib
    hi, would that also cause you to feel your own breathing in your ears, and your eardrums to rattle while you are talking? any info would be greatly appricated! lib
    Yes!

    The purpose of the Eustachian tube - a small "tube" from the middle ear to the throat area is to equalize the pressure on either side of the ear drum.

    This is why we pop the ears when climbing in an airplane - to equalize the pressure.

    When this tube is blocked - for example, from swelling due to a cold - it sounds muffled. When this tube is kept open - from a spasm of the tiny muscle that controls it, then you may hear the rattling you describe

    Last edited by Administrator; 02-23-2004 at 09:55 PM.

     
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