It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

General Health Message Board

  • Kidney Issue and TTP

  • Post New Thread   Reply Reply
    Thread Tools Search this Thread
    Old 06-24-2019, 06:10 AM   #1
    Join Date: Jun 2019
    Posts: 1
    lovemytime HB User
    Unhappy Kidney Issue and TTP


    I was diagnosed with a rare blood disease, TTP in March of 2017. My kidneys did not fail and fully recovered. My creatine sat at 0.7 after recovery. Since August of last year my creatine has bounced from 0.7 to 0.9. Then sat at around 0.8. I drink a lot of water at work and my urine is consistently clear, like water even when I drink sodas. It will occasionally be a pale yellow. I am very concerned that my kidneys are in trouble. My BUN is not high nor is by albinum. They both sit in the normal range. I noticed on a test I had back in 2011 when they did my creatine it was at 0.8 back then. I never had it tested again, until I got sick. I also don't have diabetes. It is in the upper high to normal range. Just need some guidance. My PCP and hematologist say everything is normal and not to worry.

    Reply With Quote
    Sponsors Lightbulb
    Old 06-25-2019, 04:53 AM   #2
    Senior Veteran
    Join Date: Jun 2010
    Location: USA
    Posts: 2,400
    yayagirl HB Useryayagirl HB Useryayagirl HB Useryayagirl HB Useryayagirl HB Useryayagirl HB Useryayagirl HB Useryayagirl HB Useryayagirl HB Useryayagirl HB Useryayagirl HB User
    Re: Kidney Issue and TTP

    Dear lovemytime,

    Yes that is a rare, I'm so glad that you recovered. Is this being tracked by a urologist or someone that specializes in that disorder? You need to be taught what is normal and what is a danger sign. Constant worry is too much stress on your entire system. You need to be able to have peace of mind.

    I don't have experience with it myself. Here is some excellent information to get you started - https://www.ouhsc.***/platelets/TTP/future%20for%20patients%20who%20recover% 20from%20ttp%20hus.html
    Ask your doctors to find you an online or live support group. You can probably with some research find a good one online, or maybe even start one.
    ~ YaYa ~

    Reply With Quote
    Reply Reply

    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off

    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 06:00 PM.

    2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!