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PTTD Stage 2?


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Old 05-17-2018, 10:36 PM   #1
CherylL24
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Question PTTD Stage 2?

Hello All,

I posted quite a while ago about bilateral foot/ankle and leg pain that I was having that had begun over a year ago. It came on after a long and stubborn bout of diverticulitis in which I had 4 months of mostly bed rest and had begun to become active again. My legs were extremely atrophied so I attributed that to part of my problem at the time.

I was originally diagnosed with mild pttd and given custom orthotics. I wore them at 15 minute increments 3 times a day and by the third day, I was in tears from the pain. I was given Powersteps in which the Pod built up but the pain continued and worsened.

Over the past year, I've seen about 50+ specialists. Neuro's, Neuromuscular's, Rheumatologists, Vascular, certified Foot and Ankle Surgeons, additional Podiatrists, Spinal Surgeons, Neurosurgeons and the list goes on. I was MRI'd from head to toe, blood work, etc. I wouldn't be surprised if the total for all of those appt.'s and tests exceeded $300K. Nothing was ever found.

During the past year, my legs have atrophied even more. I'm about 115 lbs., 52 and am ashamed at how I look. I've tried PT on 3 occasions which always made my pain worse, so various physicians told me to discontinue therapy.

What's strange is this all presented as outer ankle pain (peroneal) and went up the side of my calf a few inches. Within a month, the other foot/ankle and leg had begun to hurt in the same places.

I'm only "on" my feet about 30 minutes a day. My pain is still bilateral causing both feet to hurt, my sinus tarsi, achilles, peroneals and calves. Oddly enough, I've never experienced pain in my Post Tib around my inner ankle nor have my arches hurt terribly.

I can't walk stairs, squat down to pick something off the floor and many other things that involve the feet and ankles. I find the best position when sitting is to have my feet flat on the floor, as this causes the least amount of pain.

I do have a pronation problem, more so on the left foot. My ankle also rolls in as I walk. I have flexible flatfeet and my ankle slides inward but in no way goes anywhere near the floor. My arches aren't like a pancake, either. I can slide my fingers under my inner arch while bearing weight. I've had 2 MRI's in which no tears or inflammation was found, as well as an ultrasound of both ankles to look at the integrity of the tendons, ligaments, etc. Both of those tests proved to be normal. I can do a single heel raise on both feet with no problems, either.

At this point, I don't understand how I managed to go from mild pttd to Stage 2 within a year's time while mostly being in bed.

My Podiatrist is in the process of making me a new pair of orthotics to help with the pain/stability. He used plaster instead of the foam foot boxes. He said these will stabilize my feet and not allow my ankle to pronate inward which he believes will help me. I truly hope so because the pair that I had last Summer brought me to tears within 15 minutes and I had much less pain back then.

I do apologize if this is all over the place, my mind is just going in all directions as I can't imagine having to have flatfoot reconstruction surgery on two feet. I've already lost over a year of my life due to this and can't imagine surgeries due to my mental state at the moment, which I'm sure that many can understand.

This problem has also caused my knee to pronate inward and I've also begun to experience extremely tight muscles around my hip that cause me some grief.

I see a Chiropractor for my hip which he adjusts, but unfortunately the relief is short-lived. It tightens back up within an hour. I have had luck with Massotherapy in which she works with my feet, calves and hips. The relief lasts the evening. I did try acupuncture, it did nothing for me except leave me with bruises on my legs.

Has anyone with Stage 2 pttd experienced all of this without any pain, swelling or tenderness along the course of the Post Tib or arches? I'm just so perplexed as to why all of my MRI's/ultrasounds have been clear, I can do single heel raises, yet have Stage 2 pttd.

Could atrophy be a contributing factor in all of this? (I have a very significant amount in my legs) Would gaining some muscle help my situation? I'd be willing to try just about anything but it's hard trying to find an exercise (or even strengthening) that can be done from a bed or while sitting without much foot/ankle movement.

If you've made it this far, I'm grateful. If you have any thoughts, no matter how insignificant you feel they may be, please feel free to tell me your thoughts.

My heart goes out to all of you that suffer from foot/ankle issues, as well as other medical problems.

Thank you.

Last edited by CherylL24; 05-17-2018 at 10:44 PM.

 
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