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Lupus and Sickle Cell Disease

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Old 05-21-2005, 06:30 AM   #1
Join Date: Aug 2004
Posts: 5
wiswat HB User
Cool Lupus and Sickle Cell Disease

Hello to All:

I am new to the board and wanted to get some input from some of the Senior Members.

I was diagnosed with Hemoglobin SC Disease when I was 8 years old; and, I was just diagnosed with SLE last year. Before the SLE diagnosis, I attributed all my symptons to the SC Disease. I had aches that felt like my bone marrow was hurting. It was almost unbearable pain. I just recently began having slight swelling in my right hand, and some numbness and tingling in my right leg. This just comes and goes. All these symptoms are magnified during my menstrual cycle. My labs show a positive ANA and a positive Anti DS-DNA. I have always had an elevated WBC count and have always been anemic because of the sickle cell.

I'm currently taking 200 mg of Plaquenil each day. I read the other post about flaxseed oil. Does anyone know if it interferes with Plaquenil? Does anyone else have another hematological disorder along with SLE? Thanks for any responses.

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Old 05-21-2005, 05:33 PM   #2
Senior Veteran
Join Date: Nov 2004
Location: UK
Posts: 1,558
goldenwings HB User
Re: Lupus and Sickle Cell Disease

Hello wiswat,

Welcome. I must say you have come to a superb place for help and information. Emotional support here is the best ever.

Firstly, sickle cell disease is something I can't comment on other than to say my friend has it, and he goes through so much pain. I do know the basics of it, but wouldn't dream of even trying to dicuss it with you, as I am completely in the dark regarding what you must go through with this. I do know that it an extremely painful condition, and I really feel for you with this.

Secondly, I am not a medical doctor but only speak from my own personal experience of being a patient with SLE for most of my life, over 30 years.

Rightyho, flax seed oil I believe is safe to take. I started to use this after my 2 heart attacks and triple bypass. It is a rich source of Alpha-Linolenic Acid -ALA, which is a member of the Omega 3 essential fatty acid family. I was advised to use the Omega 3's, but the fishy taste and so on put me right off. There is no taste at all with the flax oil I use.

It has been researched and shown to be especially helpful for protecting heart and artery health. With this information I am entirely comfortable taking it with my history of heart issues. The capusles I use have a vegetable origin and are competely free of gelatin. As you know at one time the actual capsule that contained the oil or liquid was made from gelatin, a substance of animal origin.

Although flax seed oil is widely used, I would ask your doctor before using any type of health store or herbal product, or indeed any OTC medicines. He/she is the best person to advise you on this. What does one patient good does not necessarily mean it will be ok for you personally. Please take care with this.

I have a haematological disorder alongside SLE. It is APS, Anti Phospholipid Syndrome, or sticky blood. Not all lupus patients have this, and not all people who have it have lupus.

Hope this has helped a llittle.

I am not a medical doctor, I only speak from my own experience of the illnesses I discuss here.

Last edited by goldenwings; 05-22-2005 at 05:24 AM.

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