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    Old 07-27-2015, 07:02 PM   #1
    ariel123
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    turbinate reduction

    Anyone had a turbinate reduction? I have stuffed nose, get bad at night and wake up in the morning with congested nose.
    ENT suggested inferior turbinate reduction. I already had a surgery a few years ago, it was for middle turbinates, but didn't help at all.
    Now I'm really scared that it might not help or even worse, ending up with ENS.
    If you had one I would like to hear from your experience
    thanks!

     
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    Old 08-13-2015, 01:29 PM   #2
    Teagan4
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    Re: turbinate reduction

    Quote:
    Originally Posted by ariel123 View Post
    Anyone had a turbinate reduction? I have stuffed nose, get bad at night and wake up in the morning with congested nose.
    ENT suggested inferior turbinate reduction. I already had a surgery a few years ago, it was for middle turbinates, but didn't help at all.
    Now I'm really scared that it might not help or even worse, ending up with ENS.
    If you had one I would like to hear from your experience
    thanks!
    I posted on your other thread where you talked about the possibility of having a turbinate reduction.

    I urge you to think long and hard about it. If you must, the method matters, as does the practitioner. For ex. maybe just an outfracture could help. For me, I had the "safe" method - submucosal resection. But, the surgeon then cauterized me, causing a lot of damage. I have ENS and my life is so bad you can't even imagine!

    This is what I wrote in the other thread:

    I had a turbinate reduction and now have empty nose syndrome.

    Radiofrequency is not considered necessartily safe - so you risk this outcome. Empty nose syndrome occurs when the nasal physiology is damaged or destroyed following a turbinate reduction. No one knows how much turbinate can be taken or destroyed.

    Or what is you end up with a dry nose that is not as severe as ENS? That is not good either and that is fairly common.

    Any turbinate surgery aims to removed and or destroy tissue. This is how they "shrink" it.

    I suggest you really research and think about this, especially since you have had a procedure on your middle turbinates.

    The American Rhinologic Association has a section on Empty Nose Syndrome. There is a lot of info on the web about the dangers of these procedures - including a Forum, ******** pages and a website.

     
    Old 08-14-2015, 05:24 AM   #3
    ariel123
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    Re: turbinate reduction

    Quote:
    Originally Posted by Teagan4 View Post
    I posted on your other thread where you talked about the possibility of having a turbinate reduction.

    For ex. maybe just an outfracture could help. For me, I had the "safe" method - submucosal resection. But, the surgeon then cauterized me, causing a lot of damage. I have ENS and my life is so bad you can't even imagine!

    [/I]
    Can you explain what you mean by cauterised? Is it worse now than before the surgery?

    I know exactly what you going through, I had horribly blocked nose for maybe a year or so. I couldn't breath at all through my nose, not before and not after the surgery. Now it's better, because I moved very far away from that hot tropical climate. Now I had good days, almost perfect and not so good days, but it never got back to that awful 100% blockage.
    It still bothers me, every morning, sometime I wake up in the middle of the night, stuffed, sometimes more sometimes less.

    So the risk could be just too high for a surgery?
    For you did you ended up with ENS because the surgeon too to much out?

    thanks for sharing your experience

     
    Old 08-17-2015, 12:14 PM   #4
    ksio89
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    Re: turbinate reduction

    I underwent a partial turbinectomy exactly 3 years ago, along with a septoplasty to correct a septum deviation, both which were preventing me from breathing properly through the nose. Fortunately, they did the job. I believe I had what Teagan4 called the safest procedure, submucosal resection.

    As Teagan4 suggested, and according to the EMT surgeon who did the procedure on, ENS usually appears after too much tissue from turbinates, especially the inferior one, are damaged in a turbinoplasty, like in a total turbinectomy. Damage to the inferior turbinates are the most likely cause of ENS, even though it's possible to happen with superior or middle turbinates.

    There are sensing cells and structures in the mucosa of nasal conchae, and that's why one the symptoms of ENS, a stuffy nose sensation occurs if too much tissue is destroyed. This is because you're not able to feel the air flow anymore, even if anatomically they're normal, leading to a paradoxical condition.

    You could ask your EMT to inspect for a

    -possible septum deviation if there's no obstruction caused by enlarged turbinates.

    -rinithis/sinusithis or any allergic condition etc, which can cause congestion.

    Teagan4 is also right when he/she says that another turbinectomy might indeed cause ENS, especially the inferior turbinate which seems to be the most important one. Research and talk a lot with your EMT physician if it's indeed the most recommended procedure.

    If it you can't really avoid undergoing a new turbinectomy, at least ask if the surgeon can employ the safest method with minimal tissue destruction to minimize a risk of developing an ENS condition, supposing that's possible. Hope you find help and answers you want, mate, good luck!

    Last edited by Administrator; 08-17-2015 at 04:03 PM.

     
    Old 08-26-2015, 02:27 PM   #5
    Teagan4
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    Re: turbinate reduction

    Thanks ksio89 for corroborating some of the information I presented.

    Unfortunately, my being well-read on ENS is a result of me having to get a diagnosis and understand what I was dealing with.

    ariel, I had 4 Drs confirm my diagnosis, and the last has an experimental treatment that I am considering. He said that although I have tissue, it is dysfunctional. He see damage, and suggested from my operative report, that it would likely have been the suction cautery. Cautery causes thermal damage.

    However, MAYBE too much tissue was removed FOR MY NASAL PHYSIOLOGY to compensate. That is the thing, no one knows how much tissue can be destroyed or removed before the nose's ability to warm and humidify the air is ruined.


    Besides warning against resecting too much tubinate - all the best literature says that surface destruction of the tubinate is very harmful. So when they did my submucosal resection, they go below the surface. YET, they cauterized the surface and other areas in addition. Thus, MORE tissue was destroyed or damaged.

    The lesson being, if an ENT does the "safe" procedure, they can still make a mess of it and destroy your nose.

    As I noted, the only procedure that does not involve cutting or destruction of turbinate is known as "outfracture". It may be an option for you. I do not recommend anything however. Why? Because there is very little literature on long term studies regarding safety of methods. Yes. that is correct. So, many decades later, you may get a very dry nose, whereas if you had never had intervention every thing would be great.

    If I had it to do all over again, I would try everything to avoid turb reduction. I would rather live with a stuffy nose I knew I could help, rather than with a nose that I cannot help.

    My sleep is ruined, exercise, eating, speaking, driving, socializing, focus, concentration. I have to care for my nose all day with emoillents, and humidifiers to get the mucus out and prevent my nose from drying out. I can't stand air conditioning, heating, or blowing fan or wind. In a store, the HVAC is unbearable. I can't be out in the cold; the heat dries me and swells my nose. I can't take a peaceful breath or relax. The pain is bad, the sensation or lack of sensation very distressing. Can you imagine how hard it is to ignore the fact that you really can't feel the air passing through your nose?

    I hope you will really give consideration to what I have said. Sadly, my surgeon did not tell me about the turbinate reduction. I never heard of them. But, he did it as part of my sinus surgery. At least you have the knowledge and a choice.

    Best wishes

     
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    ksio89 (08-26-2015)
    Old 08-26-2015, 03:52 PM   #6
    ksio89
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    Re: turbinate reduction

    Unfortunately, you're right: nobody knows how much turbinate tissue can be removed before an ENS appears, so it's indeed a last resort when every other method to disobstruct the nasal airways has failed to.

    And I also forgot to mention the main functions of turbinates, which are warming and humidyfing the air in the nostrils, thanks for pointing that. Maybe I was lucky, I believe most of the mechanical obstruction was caused by the deviated septum, so there was no need to have much turbinate tissue was destroyed.

    I hope you find the appropriate help, Teagan4. As I've said, there are some experimental treatment methods that might solve or at least minimize the condition, don't give up. I wish only the best for you and Arie123, hope you find the right doctor and right treatment.

     
    Old 09-25-2015, 01:17 PM   #7
    richard1971
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    Re: turbinate reduction

    Hi I have similar and to the user who said it's affected his/-her driving and social life,snap! I haven't been out socialising for 5 months and the furtherst I've drove is 2 miles. In any temperature warm or cold, my sinus completely block and the feeling my throats closing is horrible. Trying not to give up but it's running close .

     
    Old 09-27-2015, 09:25 PM   #8
    Teagan4
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    Re: turbinate reduction

    Did you have a turbinate reduction? This is a problem people get after a turbinate reduction. It sounds like you are dealing with sinus issues.

     
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