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  • Debilitating Sinus-like Migraines

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    Old 02-04-2016, 08:42 AM   #1
    Scoobaru
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    Debilitating Sinus-like Migraines

    I live very modestly and quite frankly, I've lived in poverty for the last 7 years while trying to provide for my family. I've not had insurance, nor money to see specialists. I've pretty much suffered and dealt with my migraines. I first started getting migraines when I was 12-years-old and went to a neurologist at a young age. Sinus symptoms did not appear (or went unnoticed) until my late teens.

    I've finally landed my dream IT job and I've signed up with the best insurance offered to me in attempts to finally figure out my migraines.

    So far, I've been to 2 different ENTs and a Neurologist. The ENTs have told me there's nothing wrong with my sinuses - period. I've tried convincing them to do a balloon sinuplasty but they are against it. The Neurologist saw me for less than 5 minutes and told me "I'll never find the cause and it's time to take preventative medications."

    I cannot help but deny the fact that it's unrelated to my sinuses. My symptoms are almost entirely sinus-related. I cannot keep throwing money towards co-pays and I'm not quite ready to hear that there's nothing that can be done besides anti-seizure/depressants.

    My symptoms:

    -Severe face pressure especially under & around my right eye
    -Horrible migraine that leaves me vomiting and debilitated
    -Clear (sometimes thick) nasal discharge usually spotted with blood
    -Sinus congestion
    -post nasal drip
    -very loud and constant clicking and popping

    Also, I can tell you if it's going to rain..if it rains for a couple days, I'm miserable. There's a direct correlation between the weather and my migraines, which makes me suspect sinuses even more. The clicking/popping are directly connected to the migraines. For example, if there's no pressure anywhere around my face then there's no clicking and I usually feel good/energized. When I do have a migraine, I can make my face click by opening my mouth/throat and causing the air to "purge" out of my sinuses..You can watch the flap at the roof of my mouth open/close rhythmically, as if air is being forced out of my sinus cavities. When my migraine and face pressure finally starts to relieve, then the clicking becomes much louder and consistent until headache/face pressure is gone - and I'm almost always left with a sore throat and burning face. Typically the only thing that will help with my migraines (besides lying in a dark quiet room) is taking a very hot shower. As soon as the hot water hits my face, it's almost instant relief, but only in the moment typically.

    The migraine/headache is ALWAYS on the right-side of my face. All the face pressure and congestion is on the same side. I have to lay on the opposite side of my face in order to get relief. If I accidentally roll over and sleep on the right-side of my face, I will wake up with my sinuses burning and with a headache....

    I'm just absolutely baffled that I'm being told by numerous professionals that this is non-sinus and that my sinuses are perfect...It just seems ludicrous to me!!!

    IThank you so much.

    Last edited by Administrator; 02-21-2016 at 01:08 PM.

     
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    Old 04-21-2016, 10:22 PM   #2
    Katana
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    Re: Debilitating Sinus-like Migraines

    Sounds familiar.. I had my right frontal blocked, for literally years. Amazing headaches, worse pain during high fever episodes. Even after a couple of FESS surgeries, because they don't do an immediate follow up CT it was still blocked. (Then a Modified Endoscopic Lothrop, then a full frontal obliteration). Plenty to my story, but I would bet you have an ongoing infection. Have they done a CT when your symptoms are bad? I can recommend taking plain guaifenesin, or Mucinex/Robitussin to thin out the mucus so it can drain easier. Also humidify if you have dry air..it makes a huge difference, and drink tons of water. Avoid antihistamines as they will thicken the membranes eventually.

     
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