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Sinus Problems Message Board

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    Old 05-05-2017, 05:07 PM   #1
    Join Date: May 2017
    Location: Aliso Viejo, CA USA
    Posts: 1
    ahorst HB User
    Unhappy No End In Sight

    Hello, all!

    I am desperate for some advice or suggestions on how to feel better...

    Since having a baby in March of 2015, I've had severe issues with my sinuses. I had sinus headaches and received shots as a child, but everything went away until a couple of years ago. I began having gunk in my throat, and have had to spit up in a tissue (sorry, gross) about every 20 min (more frequent if I eat/drink something).

    I have an incredible amount of pressure for about 75% of my day, and about 50% of that includes a headache. I was having them every day at one point. I've seen my ENT, primary physician, a headache/pain specialist, an ophthalmologist, and an allergist. I was on injections for allergies for about 8 months, but decided to move to proponolol (blood pressure med) in lieu of it since it seemed to be helping more (can't do both since pro. is an NSAID).

    I've done sinus rinses (with liquid steroid), nasal sprays (with and without steroid), congestion medication, claritan/allegra, naps in the dark with a washcloth, hot showers, surgeries (one to fix deviated septum, other to remove polyps), and botox. The blood pressure medication seems to have worked the best so far, which leads me to believe that perhaps it's /not/ allergies. But that also doesn't make sense... the pressure is exactly where my sinuses are, and my allergist says I'm allergic to nearly everything under the sun.

    Some weird things: nose is always dry, never stuffed. The only drainage I get is at the top of my throat. Nothing ever comes out with the sinus rinse (except with the rare, stuffed/runny nose that comes with a cold). Sprays have never seemed to help, and for the past week, after using them I started getting bloody noses. I'm getting more blood in the mucus in my nose and throat (though this is probably because it's rather dry here).

    I average a sinus infection ~once every two months. I've been on every antibiotic under the sun. I take vitamins and probiotics. Antibiotics don't seem to help entirely, though sometimes the symptoms lessen enough for me to still live life like normal.

    My ENT doesn't really know what to do anymore, though I do have an appointment to see him on Monday- maybe he'll have some advice. My primary physician said I need to see a headache specialist and gave me pain meds, but I take enough meds already, so I don't like having to resort to them. My headache doctor has complete faith that the botox his office provides will fix me, but I haven't noticed a difference (except REALLY intense pain and throbbing with the injections that I don't believe is normal...?).

    After seeing all the doctors a few times, I feel like I'm mostly waved away at appointments. Like there's nothing more they can do, so live with it. I have an amazing life, but the quality of it is at an all time low right now... I really don't know what to do.

    Does anyone have anything similar? Or know what it could be/how to attempt to fix it?

    Thank you so much for taking the time to read.

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