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  • Maxial Sinuses still being weird.

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    Old 03-13-2004, 08:40 AM   #1
    Crossbow
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    Maxial Sinuses still being weird.

    I don't get to see the ENT doctor again for another week. I'm dying of curiosity.

    I went to my doctor because of eye swelling. He sent me to an opthamologist, who sent me to an allergist, who did at least 100 skin tests (50 for food and at least that many for respiratory) and some blood tests and ordered am X ray and then a CT scan. Neither he nor my regular doctor could makes sense out of the CT so they pumped my full of antibiotics. While I was on the antibiotics (Augmentin, 3 weeks) my symptoms subsided, but as soon as I was done with them the symptoms came fight back. Went to an ENT, who said my case was "pretty unusual," and ordered 2 more CT scans.

    The first scans showed my right maxilary sinus half-full of something, and a bit in the left too. The second set shows the gunk is still there in the right side but has moved around, and the left has less gunk. We don't know what this stuff is or why it causes my eyes to itch and swell. Or even if the gunk and the swelling are both symptoms of something else.

    None of my doctors has seen the second set of scans. I really hope they can tell something. I have no idea what they can do about it. I am guessing some kind of endoscopic surgery. This is all so dumb. If I have all this stuff in my face, why can't I feel it?
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    Old 03-13-2004, 10:02 AM   #2
    chigs489
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    Re: Maxial Sinuses still being weird.

    It's either bacteria or fungus, and it should be drained through surgery. The doctors should stop dilly-dallying with CT scans, X-Rays, medication, etc. and simply schedule you for sinus surgery. You are more patient than I am.

    I have bacteria in my maxillary sinus cavity as well. I can't really feel it. Most of my symptoms are around my nose and eyes.

    Did you find out why your case was "unusual." Your ENT should clarfiy.

     
    Old 03-14-2004, 02:16 PM   #3
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    Re: Maxial Sinuses still being weird.

    Thanks for your reply. It's helpful to know that your symptoms were also around your eyes and nose. I have been thinging the problem with my eyes could be separate. It would be good if cleaning out my maxials would also fix my eyes.

    My ENT said it was "unusual" because it was affecting my eyes, and the opposite eye of the one above the affected sinus, and because of the pattern - the symtoms should n't come and go, and shouldn't have been getting worse so gradually. I imagine it's also strange that while I was on antibitics, the symtoms subsided, even though the problem didn't go away. Patient? I'm ready to drive down to the Mayo clinic and set up camp and refus to leave until they fix me. If I weren't responsible for getting 5 other people to and from work, I'd really have a hard time restraining myself from doing just that, since my rommate is on vacation and could take care of the cats for me this week.

    My ENT is on vacation. I'll be seeing him as soon as he gets back. I'm not going to agree to any more tests - whatever is in my face, I want it out! They've shot QUITE enough Radiation into my head.
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    Last edited by Crossbow; 03-14-2004 at 02:19 PM.

     
    Old 03-14-2004, 04:43 PM   #4
    chigs489
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    Re: Maxial Sinuses still being weird.

    If I were you, I would insist on surgery. It really isn't that major -they go in there and clean out the garbage.

    I'm going to one of the best specialists in the country tomorrow afternoon. He'll most likely do an endoscopy, look at my CT scan and radiologist's report, and then we will talk about options. I'm not going to mess around. If there is any chance of a repeat episode, I'm going under the knife.

    Every person I've talked to that has had this condition, has made it worse by trying to solve it using antibiotics. The infection penetrates the bone within the sinus cavities, and resists medication. Long term use of antibiotics simply isn't healthy.

    I'll let you know what he says.

     
    Old 03-14-2004, 05:37 PM   #5
    Blondee15
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    Re: Maxial Sinuses still being weird.

    Quote:
    Originally Posted by chiggins1066
    If I were you, I would insist on surgery. It really isn't that major -they go in there and clean out the garbage.

    I'm going to one of the best specialists in the country tomorrow afternoon. He'll most likely do an endoscopy, look at my CT scan and radiologist's report, and then we will talk about options. I'm not going to mess around. If there is any chance of a repeat episode, I'm going under the knife.

    Every person I've talked to that has had this condition, has made it worse by trying to solve it using antibiotics. The infection penetrates the bone within the sinus cavities, and resists medication. Long term use of antibiotics simply isn't healthy.

    I'll let you know what he says.
    Chiggins you say you live in chicago..who are you seeing and where are they?
    I live in the suburbs and i'm thinking I should see a specialist-if I do, I want 2 see the best without messing around trying to find someone good.
    Is it an ENT? Does he have a strong allergy/immunology background?
    Thanks..

     
    Old 03-14-2004, 07:38 PM   #6
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    Re: Maxial Sinuses still being weird.

    Hi. I was reading your tread. I suffered from Frequent sinus infections, headaches right in the middle of my face. I have been on lots of different medication. I finally had sinus surgery, fixed a deviated septum, and had some turbinates reduced. If you want to know about the surgery, jsut let me know, Give you a few pointers on what to ask. Good luck

     
    Old 03-16-2004, 07:10 AM   #7
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    Re: Maxial Sinuses still being weird.

    OK, I do havequestions.

    I don't know if I'll need surgery, and if I do I'll see if I can have it done at the Mayo clinic, but what kind of surgery would it be? They don't actually need to cut me open, do they? Can't they just stick something in thought e sinus passages?

    And if I can't go to the Mayo, what questions should I ask about a surgeon? Obviously experience; anything else?

    Yes, I know these are questions for my ENT doctor, but he's on vacation until Monday.
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    Last edited by Crossbow; 03-16-2004 at 07:11 AM.

     
    Old 03-16-2004, 08:03 AM   #8
    chigs489
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    Re: Maxial Sinuses still being weird.

    If you have a deviated septum, or a nasal obstruction (or both), this will need to be surgically corrected. A bad infection that does not respond to antibiotics will need to be "cleared out."

    The surgery I'm having is a NAR,BESS,SMR Turbinate. I think the first thing stands for nasal air resistance, the second is bilateral endoscopic nasal surgery, and the third has to do with reducing the turbinates, which can cause obstruction (but I'm not a doctor).

    All of this is done through the nose, and I assume with laser. There are no incisions, and you can even do this on an outpatient basis. I'm staying overnight just in case.

    I'm told the recovery is tough the first few days because of the packing in the nose, but after that, you're back in action. You may have some discomfort for a few weeks afterwards -but if you've been as sick as I've been (4 months now), a few weeks more doesn't mean much.

    I'm not sure when you can go back to work. I asked Halls that question, since she had surgery a month ago.

    I'm sure the Mayo Clinic has an excellent program for this, just call them up.

     
    Old 03-16-2004, 08:52 AM   #9
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    Re: Maxial Sinuses still being weird.

    It's nothing structural. It's just some kind of gunk in there. I assume they just have to clean it out. They don't know if it's an infection or not - I have no symptoms of an infection (no pain or discharge). I've taken several courses of antibiotics, which I've read can actually make it worse if it's a fungal infection, which is what I think it is, which is why I am thinking Mayo clinic - they've done a lot of work with fungal infections.

    The allergist said I have "somewhat elevated" levels antibodies that are normally associated with allergies, but I test negative on all allergies. I read (in a paper published by the Mayo cinic, actually) that that kind of antibody is associated with fungal sinusitis.

    Having fungus in your sinuses is normal; having an allergic reaction to it isn't. So I wonder, if they clean it out, how will we stop it form happening again?
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    Last edited by Crossbow; 03-16-2004 at 08:54 AM.

     
    Old 03-16-2004, 10:34 AM   #10
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    Re: Maxial Sinuses still being weird.

    remember that there is always fungus in there. It just depends on how much, and if it is causing a problem. There may very well be bacteria present as well.

    These things cause problems when there is an obstruction, which prevents air from reaching the sinus cavities, and even restricts blood flow (and blood carries the antibiotic). The soft tissue within the sinuses can become inflammed, causing blockage. If it is bad enough, surgery is needed to reduce it. I would say that the fungus is not the problem, but the soft tissue certainly is.

    But remember, I'm not a doctor. Talk to an ENT over at the Mayo Clinic, and see what he or she says about the matter. Take your CT scans with you.

     
    Old 03-16-2004, 12:14 PM   #11
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    Re: Maxial Sinuses still being weird.

    The ENT will be seeing my CT scans Monday.

    See, that's another weird thing - the soft tissues AREN'T inflamed. They have no explanation for that.
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    Old 03-16-2004, 12:19 PM   #12
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    Re: Maxial Sinuses still being weird.

    How long has this been bothering you?

     
    Old 03-16-2004, 08:57 PM   #13
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    Re: Maxial Sinuses still being weird.

    I just had all that done. Apparently one of my turbinate was so big it pushed my septum over to one side. The doctor told me it was a simple procedure. They put you under, they do the procedure and you wake up and go home that same day. Well not quite. First, yes I woke up, But had the worst pain imaginable. I kept telling the doctor something was burning/ hurting. He said that was normal. I went home on a Thursday night and continued to have this pain. I also had pain in my teeth, palate and believe it or not the top of my hair hurt. By Saturday I could not stand the pain, went to the e.r. only to get more pain meds. By Tuesday the 5th day I had not stop crying. I went to see my ENT. He said some people tolerate the splints and some donít. he then proceeded to whip out the splints and I almost passed out. But I did find some relief. I did some research. The splints are used to prevent adhesions (scar tissue) In a controlled group they could not prove they were beneficial. So talk to your doc about the splints. Also, After the surgery, you have to irrigate your nose with a bottle of saline. Gross but it does feel good to get all that crap out. Itís been 14 days and I still have a lot of nasal congestion and pain. My scalp is not so sensitive anymore. The front teeth still feel sore. I have spoken with other people, What I went through is not all that uncommon. Good luck

     
    Old 03-19-2004, 01:00 PM   #14
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    Re: Maxial Sinuses still being weird.

    Quote:
    Originally Posted by chiggins1066
    How long has this been bothering you?
    Another good question. Possibly since 1990 - right after college - which is when I suddenly developed "hayfever," although the tests show I have no allergies. The actual symptoms I went in with, the severe eye swelling, started in March of 2002.

    The CT scans show no structural problems and no soft tissue inflamation. They also show no problems in any of my other sinuses other than the maxials. What it shows in the maxials is what the radiologist called "debris." The first scans showed it all in the bottom of the sinuses. The later ones show it sort of floating in the middle, and some clinging to the sides in the right, still stuck on the bottom in the left. There is definitely less debris in the left than there used to be. It's hard to tell with the right because it's all moved around. The passages leading into the maxials are completely blocked on both sides.
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    Old 03-20-2004, 12:02 PM   #15
    chigs489
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    Re: Maxial Sinuses still being weird.

    I might be fungal. Have you talked to the ENT about anti-fungal medication? For most people, this usually isn't a problem, but everyone is different.

     
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