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  • Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

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    Old 12-08-2004, 02:17 PM   #1
    Halls
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    Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    Well folks, that is it, I'm officially one of the worst patients my ENT has ever seen! Ends up my sinus/nose surgery I had 2 months ago was a complete failure. He did not do the tubes in my ear(will explain why down below) and ended up deciding to look up into my sinuses to remove any scar tissue that was forming. The left side looked ok, but the right side was a total mess. He could not break through any of it. He tried so hard and it hurt so bad. The nurse held my hand and when he broek through a tiny bit it felt like he was braiking my nose and then a big pop sound happend. I freaked and the nurse jumped and made a sound. My ENT just looked at us both and said it was fine, he didn't do anything to me that would hurt me. He did say the infection looks better, but that unfortunately scar tissue has formed so badly that there is another blockage. He said he could do another surgery to open it up, but than more scar tissue would form and we'd be back to square one. He says that my sinuses will not cooperate and that he does feel all the dizziness I have is from my sinuses and the blockage. I could tell him exactly where my dizziness comes from and it is the exact place the scar tisse and blockage is(figures). He says that at this point he feels that I need sinus obliteration! He says he only does this about once or twice a month, and feels I need it to finally be done with all of this. I have the best ENT down and totally trust his opinion and judgement. I am done w/sinus issues folks and I'm fed up with the dizziness. It is time and it is over.

    So, my surgery is in January. He wants me to wait so that my sinuses can heal up and the infection will clear out completely. Than he wants to do another CTscan to take a good look one more time so he can say he did everything he could. So, an obliteration is when fat is taken out of my tummy and my ENT will make a big incision on the top of my head and pull my face down. He will then take all the mucous membranes out of the frontal sinuses and strip everything out. He will than inject the fat into the space where the sinuses were and than close me up. I will be in the hospital overnight as this is a major surgery. I will have the top of my head shaved, so either I will be wearing a wig for some time, or wear hats for a while. What can I say, I'm shocked, but this is it guys, I can't take this anymore and I need peace back. My ENT says one this is done no more problems!! He is doing my frontal and ethnoid sinuses on both side. I will still have my maxillary's, but thankfully I have never had any problems with them getting badly blocked.

    I did get my hearing test today and I passed with flying colors. So, I did not get the tube in my ear, cause I found out that my ear problems are TMJ related, but that the dizziness is not from the TMJ for sure. He made me do a bunch of different things to see if I had TMJ and sure enough I do. I do have a night gaurd already so I don't really need to go see a specialist for this. He said all I need to do is take an anitinflammitory to fix it up. He said for me to take 3 Advil every 6 hrs every day for 2 weeks and that shou8ld fiz up the ear popping and other ear issues I have. The hearing test I had I also has the pressure in my ear checked and it came out great, so obviously my ears are fine, and I thought all along my ears had something to do with this. So, the good news, no tubes in my ear, and i can fix the other issues on my own by wearing my night gaurd and taking Advil, LOL!

    So, I'm having majory surgery. I am ok with this. It is scary and I really hate to lose my hair, but I think in the end it will all be worth it!

    Halls

     
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    Old 12-08-2004, 04:23 PM   #2
    reader1
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    Wow. I have never heard of such a thing. However, that sounds exactly like what I have always wished for - that someone would take out all my sinus innards and start over. Good luck, please keep us posted as to how you do with it.

     
    Old 12-08-2004, 06:52 PM   #3
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    Good Luck. Did this condition stem from allergies? Keep us posted!
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    Old 12-08-2004, 07:46 PM   #4
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    Yes, all of this stemmed from bad allergies and damage done to my sinuses through the years. One can only take so much abuse before your body decides enough is enough!

    Halls

     
    Old 12-09-2004, 09:09 AM   #5
    acoustic370
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    Oh my goodness!!!!! GOOD LUCK!!!!

     
    Old 12-09-2004, 12:43 PM   #6
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    NOW WAIT A MINUTE! I'm no doctor, but this sounds waayyyy extreme!

    After your first surgery, did the doctor perform an endoscopic scar tissue removal? Were you given IV antibiotics? Have you been irrigating with Zyletol and Hydrogen Peroxide?

    At the very worst, I think the scar tissue could be removed through a revision BFESS (bilateral endoscopic nasal surgery), and a NAR (nasal airway reconstruction) could open the air passages.

    I would get a second opinion for sure. I had the procedure you list above, twice! It hurt like the devil, but there isn't anything unusual about it.

    Before going through with this major surgery (which I've never even heard of), you may want to contact the Center for Advanced Care in Chicago, where one of the best sinus surgeons in the world works, a guy who has pioneered some of the most advanced techniques, and handles the worst patients -myself included.

     
    Old 12-09-2004, 01:01 PM   #7
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    O.K., I did some research, and I have seen what this procedure entails.

    If I were you, I would be getting a second and third opinion before even considering something like this. It is MAJOR surgery, and there is lots of scarring, etc.

    I would also do some research. Look up "alternatives to frontal sinus obliteration surgery." There are surgeons who have been using lasers and other tools to get effectiveness.

    Did you have one surgery or two? I thought you originally went in earlier this year?

     
    Old 12-09-2004, 01:23 PM   #8
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    OMG! This sounds extreme. Even if you love your doctor, and trust him completely, I would get a second opinion.

    I also needed sinus surgery (though not nearly as invasive) because my stupid primary doctor let my allergies get out of control. It took 2 years before I was finally referred to a wonderful allergist. He has helped me immensly, but he obviously couldn't undo the damge that had already been done. I still needed surgery. But it makes me so angry that people everyday are getting sinus surgery, and that most of them could've been prevented.

    If you do have the surgery, I hope it goes well. I will keep you in my prayers.

    Last edited by sneezydiva; 12-09-2004 at 01:24 PM.

     
    Old 12-09-2004, 01:29 PM   #9
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    Definitely, I'd get a second, third, fourth opinion.

    Do some research on the side effects of this surgery. Will your body reject the fat from your tummy? Even though it's from your own body, your body will know it's "in the wrong place". Will you need to take immune suppressants? Those are dangerous. Worth it for a kidney or heart transplant, but for sinuses?

    What will happen if you don't have normal sinus tissue? Isn't there a good reason we were born with it? Doesn't sinus tissue produce mucus? We need mucus to cleanse. We really, really need it!!!! It's supposed to keep us from getting infections. Obviously, you're getting infections, but what will happen without the mucous membranes?

    Have you tried food elimination? If you have allergies to both foods and enrivonmental allergens, your overall symptoms will be lessened if you cut down on the food culprits, even if the environmental culprits are still there.

    Isn't there a way to minimize scar tissue? Cortisone? You need to get the old scar tissue removed, but there should be a way to prevent it from overgrowing again.

    Last edited by kerry1; 12-09-2004 at 01:35 PM.

     
    Old 12-09-2004, 02:50 PM   #10
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    WOW, I came back from getting my boys hair cuts and I got so many messages, LOL! Ok, Ok, I do plan on going ahead and seeing another ENT to get his opinion on my sinuses. I may be able to do it without even telling my current ENT(just going to make the appt and go). I do love my ENT and trust him completely.

    Chiggans, yes he did remove all the scar tissue w/an endoscopy 3 weeks after surgery. I was on antibiotics and did not get an infection. At 5 weeks he removed the stints and everything appeared open. Yesterday at 8 weeks I go back and he decides to try and take a look and sees there is a blockage. He numbs me up and tries to open it right there with no luck. And believe me he tried so hard cause he dug and dug w/the device and it hurt so bad. I thought I was getting my nose broken. After it was over he just lookes at me in disbelief and said the scar tissue had made a blockage so bad that there is no way to get it open and even if he did it would likely do it again. He said that my sinus passages are so small to my frontal sinuses that they will not cooperate at all. He said the only thing that will fix this completely is to have the obliteration. He says he only does this surgery 1 to 2 times a year, so obviously it is not something he just does out of the blue. I obviously have issues way beyond anything else that will help it.

    I have a month to go before this is all set into stone so I do plan to see another ENT pretty quickly.

    By the way Chiggans, I asked my ENT about the SInuNeb system, and he said in his opinion it wasn't that great and he was not ompressed with it at all. I was like wow! So, funny how some ENT's love something and other's don't.

    ANhhow, I know I am in good hands, but i am concerned and have questions and will not let them go by with out asking.

    Halls

     
    Old 12-09-2004, 02:52 PM   #11
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    oh, by the way, this was my second surgery.

     
    Old 12-09-2004, 04:36 PM   #12
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    Quote:
    Originally Posted by Halls
    ANhhow, I know I am in good hands, but i am concerned and have questions and will not let them go by with out asking.
    Halls
    Do you know your ENT's success rate with frontal sinus obliteration? He does one or two a month. It would be reassuring to know that most of his surgical patients NEVER have problems with their frontal sinus area again. I would imagine that, if your ENT can successfully obliterate your frontal sinuses, your frontal sinus misery could be gone FOREVER! Wouldn't that be great! It has to be possible. My frontal sinuses never developed, and I have never missed them or had a health problem because I didn't have frontal sinuses.

    You said that he is also going to do your ethmoid sinuses at the same time? Does he also plug the ethmoid sinus area with stomach fat, or just leave the area open?

    Sorry that you have gone through so much sinus misery. Best of luck in ending your sinus misery.

    Last edited by Machaon; 12-09-2004 at 04:37 PM.

     
    Old 12-09-2004, 06:13 PM   #13
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    thanks Beerzoids, I do I feel confident this will end my misery. I did ask my ENT about his success rate and he said there is always the change it doesn't work out, but that he has never had anyone w/issues one the surgery was done. So, I feel very confidant he knows what he is doing.

    As far as my Ethmoid sinuses I'm actually not sure what exactly he will do with them. My main issue is the frontal sinus so if he leaves the ethmoids alone that will be fine with me. I still will have my maxillaries so I will still have allergy issues even when the surgery is over, but just won't have any more pressure/pain/dizziness inbetween my eyes and forhead area. Wowo, that just sounds to good to be true. But so far the people I have heard that have had this say it was the best thing they have ever done!

    Halls

     
    Old 12-09-2004, 07:55 PM   #14
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    Are you sure about this? If I were you, I would seek out numerous opinions & consider a teaching hospital, if you could, try an intensive inpatient program at National Jewish or Mayo Clinic. I have problems with my teeth & the best thing I ever did was get involved with a wonderful teaching program & my problems are no more & I have a fresh start. No dentist could tell me what to do- but now I work with the #3 dentist in the country & I can't tell you what a difference it makes to see someone who is top of the top. I don't know about the place here in Chicago Chiggans talks about but I would try there also. Though it is nasty up here right now for sinus problems. Also, has testing been done to rule out other conditions like mucous production problems & immune disorders? I really would see a host of different specialists & get a bunch of opinions before doing something so drastic. See multiple ENT's if you can. This is a huge decision & a major surgery & you can't really go back so I would really make sure this is what youw ant to do, don't rush into it. It sounds a bit odd that you have such problems in just your sinuses though, I really would investigate more... just my opinion though! Like I said go to a teaching hospital and have them test you for every possible thing before you make such a decision. well good luck.

     
    Old 12-10-2004, 06:27 AM   #15
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    Re: Bad, Bad news from the ENT-it is over guys, time for sinus obliteration

    The frontal sinuses are very tricky to treat. I was fortunate that my problems were confined to the Ethmoid and Maxillary regions.

    There is a new technique called Image Guided Sinus Surgery, which uses lasers and computer topography to perform very delicate sinus surgery, and correct severe problems. Here is a description

    "The technique works as follows:

    Initially, axial CT images are obtained of the sinuses with the patient wearing a special headset. The CT images are then processed and then downloaded onto the InstaTrak System where the coronal and sagittal view are reconstructed and displayed simultaneously on a monitor in the operating room along with the endoscopic view.

    At the time of surgery, the system is taken to the OR and the CT scan is visualized on the monitor while the surgeon inserts a special probe into the nose. The position of the probe can thus be visualized on the monitor using standard surgical endoscopic instruments. Thus, the position of the probe inside the nose can be pin-pointed exactly and visualized precisely on the InstaTrak system as cross-hairs. As a result the surgeon can precisely orient himself or herself to the anatomy both on the CT scan and with the endoscopic view and can dramatically reduce potential complications during the surgery. In addition, the InstaTrak system is very helpful in teaching cases with residents who may need additional navigational tools.

    This exciting new concept has made a dramatic difference in endoscopic sinus surgery, especially in more difficult cases by helping reduce complications. It also may very well become the standard of practice in endoscopic sinus surgery. "

    Dr. James Atkins in Texas uses this technique. here is a bio

    James Atkins, M.D. of the Texas Sinus Center is a board certified otolaryngologist specializing in treating patients with recurrent and chronic sinus disorders, with a particular interest in those who have failed prior medical or surgical management. With over 17 years experience, Dr. Atkins has treated thousands of patients with sinus problems, many who thought they would have to, “live with their sinus problems.”

    Halls, I highly suggest you go talk to this guy, or at least look into more advanced sinus surgery techniques. There are other options out there, and I would hate to see you jump into the most extreme surgery, with a long recovery, when another, less invasive option could work better.

     
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