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    Old 12-31-2013, 08:05 PM   #1
    sassysar
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    Unhappy Any other Sinus sufferers out there?

    Hi everyone.

    I have just joined this forum today in the hope for some empathetic ears as to my symptoms. I'll be 32 in 2 months, and also a mother to a 3 year old.

    Before I had my daughter, I had no 'allergy' or 'sinus' problems. When I had my daughter, she was born at 34 weeks due to me having severe Preeclampsia and HELLP Syndrome.

    I first started noticing horrible sinus problems when I first moved to the town I am currently living in. I was pregnant when I moved here, so my Doctors and I just put the sinus problems down to the pregnancy, which can be fairly common.

    I saw a few different ENT's, all of whom advised me that they often see a myriad of people who move here and start complaining of unknown sinus problems. They explained "there is a geographical component that is a contributing factor to unresolved sinus issues in people." Add on top of that my mother had surgery to drain sinuses in 2008. (I am estranged from her therefore cannot probe for whether she had similar symptoms). But there is obviously a genetic link.

    Anyway, three years post having my daughter, and the sinus problems haven't subsided. I keep getting told by every Doctor it is sinus related. I had a CT scan done in June 2011 which revealed a thickening of the mucus membrane and a polyp on the left sinus cavity. Nothing further was discussed. I had a sinus x-ray in May 2012 which revealed my Maxillary sinuses were 'slightly inflamed', to only be put on Antibiotics again. I am frequently put on antibiotics (which I hate) for 'chronic sinus infections'. I find they do nothing. I tried Nasonex, which had no relief. I was recently put on Avamys, which initially, it was great, my headaches decreased, I didn't feel as 'fuzzy' in the head. I am on my second months' treatment with Avamys and it isn't working as well.

    My symptoms range from the constant sinus pressure band across my forehead, pain in my temples, in my ears, PND (Post Nasal Drip), occasionally a sore throat. The bridge across my nose is always sore to the touch, and my face is usually always sensitive, ESPECIALLY over my Maxillary sinuses, more so my right one, with frequent ear pain. I also get sporadic quick, albeit sharp pains all in my head, it is never isolated (which the Doctors say this is a good thing, as if it's anything sinister, it will be isolated to one spot.) Just prior to Christmas, my GP did another examination and said my ears were both fine, and it would have been a build up of sinus pressure. I also get a slight 'tingling' feeling from time to time in my head, all over though, not isolated. It also occurs over my frontal sinuses, too.

    I am constantly tired, I mean, almost too tired to function most of the time, I hate it. I have always been a really fit and healthy person. I juice raw fruit and veggies every day, I stay away from bad sugar, eat a lot of fruit and veggies and only drink water. It is soooo very frustrating that something is 'not right' and it just keeps getting passed off as 'chronic sinus infections'. I lack so much energy, it makes me feel depressed.

    Right now, I have the stupid band across my forehead, pain and tingling in my temples and my right Maxillary sinus feels like it's about to explode. It does also occur to my left side, but predominantly on my right. I also have frequent neck pain. I was getting Chiro at the start of 2013 but this didn't offer any relief. I am so sick of getting told that it's sinus pressure and it's because of where I live. I have spoken to other people who aren't from here originally but have moved here, and they also experience this same, unknown pressure and constant headaches.

    I get prescribed Panadeine Forte for the pain and antibiotics. I am always reluctant to take the Panadeine Forte as I don't want to add any further damage to my liver (my liver started to shut down when I was pregnant, that's why they had to induce and do an emergency cesarean to deliver my daughter at 34 weeks). Given this, my GP is obviously aware of the complications, she gives me Endone for this severe sinus pain. It completely knocks me out and sometimes even causes rebound headaches. Them on top of the horrible 'sinus' pressure is just the most hideous pain, and it completely debilitates me.

    I have very little support here, no family and little friends to help out, so I just have to put up with it and keep going through this pain, which is sometimes so crippling, it brings me to tears. Just recently, I have also started getting the horrible referred pain down into my teeth, especially the roof of my mouth. I have been advised this is associated to sinus pressure. I have had 2 wisdom teeth removed. I have also had my tonsils removed in 2001 (9 years before all of this started).

    I will be going back to my GP for yet another referral to a ENT to see what else can be done. I am so over it, and I am sure you're the same, you can't help but to think that it's something more sinister going on? I have expressed my concern and fear to the myriad of Doctors and they all say it is "normal for me to inhibit fear after my traumatic experience when I delivered my daughter". They all continuously reassure me it is all sinus related. I even noticed the pressure in my eyes felt so bad that sometimes, things would appear blurry. I went to see a Ophthalmologist in December who assured me I do have some 'maturation-related' changes in vision, which I have had some prescription glasses ordered for, but the pressure and everything else associate to my eyes was 'perfect'. He also told me that sinus problems would be contributing to all of this pain. I am just so sick of the headaches and the constant 'fuzzy' feeling. It's like you can't help but to talk yourself into something being really wrong, despite the constant reassurance from Doctors that it's all sinus related. I often think "how can tiny, air-filled cavities cause this much grief?"

    Does anyone else feel the same as this? Does anyone else have similar symptoms that I have described above, what was your action taken and how do you alleviate it? What positive light do you have to shed? I use steam inhalation every day, use a Netipot, all to no real long-term relief. Even taking a decongestant doesn't offer a great deal of relief. When it does, it's certainly not sustainable past a few hours. I wake up every single morning with a blocked nose and continue most of the day with blocked nostrils, but not extremely blocked so as I can't breathe, but certainly noticeable.

    I appreciate any advice and assistance, and certainly any positive relief you may have to offer.

    Just to add in, I also get kinda like an 'itching' feeling over my sinus points and in my head. Nothing intense, but more annoying than anything.

    Happy New Year to you all, in good health

    Last edited by sassysar; 12-31-2013 at 08:11 PM. Reason: Add in

     
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    Old 12-31-2013, 08:40 PM   #2
    Titchou
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    Re: Any other Sinus sufferers out there?

    You may have just left it out but no where in your long post do you mention allergy testing or antihistamines. Why not?

     
    Old 12-31-2013, 08:51 PM   #3
    Jkirv80
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    Re: Any other Sinus sufferers out there?

    Like you, i never had sinus problems til pretty much after i had my son which was 10 yrs ago, they never went away, i got tubes in my ears, had chronic sinus infections, went to a few different ent's and also an allergy specialist. I got mri's and ct's though i can't tell you now what they found. I was on nasonex and claritin i think. It wasn't until i quit smoking that everything lifted for the most part. I got on e-cigs though and over time my symptoms came back. I quit those and though i am not getting sinus infections, i still have post nasal drip constantly, i get stuffy a lot, lot of mucus in my throat, sores on the back of my throat as well. I recently got a nasal spray, only been using it a few days though so don't know the effects of it yet. I also have tmj really bad which i think contributes to my sinus problems. I could very easily have food allergies too. One step at a time. Hope this helps a little. now back to reading you message...

    Last edited by moderator2; 01-01-2014 at 12:13 AM.

     
    Old 12-31-2013, 08:59 PM   #4
    Jkirv80
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    Re: Any other Sinus sufferers out there?

    ok, wow….you definitelty have a lot going on after reading all that. A lot worse than I have had to deal with. Good to hear you are doing all the natural stuff. The fact that you along with others struggle with major sinus issues after moving out there says there is definitely something crazy in the air out there, lol. Maybe try and find a holistic doc if there are any? You may be a candidate for sinus surgery, some of your symptoms sound like my dads, he was told he needed surgery but he hasn't gotten it yet. I know this is probably a stupid question but is moving elsewhere even an option? I'm trying to rack my brain as to what other kind of advice i could give you. I know what its like to go from one doc to another only to either be passed down to someone else or get worse in general with my condition. I don't have much support either, i am so glad i found this page recently, its so nice to be able to talk with others that can understand, keep searching these forums, i am sure you will be able to find someone that can direct you down the right path so u can get answers. I am hoping the same thing happens for me too soon with my tmj. Happy new year.

     
    Old 12-31-2013, 09:18 PM   #5
    sassysar
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    Re: Any other Sinus sufferers out there?

    Thank you so much. You sound similar to me, I definitely like a clean, natural approach to my health. I try and do everything naturally, and I have been considering whether it could also be exacerbated by an intolerance to Gluten. I know when i cut Gluten out of my food consumption for a few days, holistically I feel better. It's just these stupid sinus headaches that drive me nuts!!!

    Thank you so much for your support and very prompt response, I have so much gratitude to be connecting with people in a similar position.

    Sarah xx

    Last edited by moderator2; 01-01-2014 at 12:08 AM.

     
    Old 12-31-2013, 09:27 PM   #6
    sassysar
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    Re: Any other Sinus sufferers out there?

    I just read your second part. It's funny, before having the complicated pregnancy, I was fine. I suffered from chronic tonsillitis as a child but had them removed when I was in my early 20's (after much reluctance). My daughter, 3, she is also prone to chronic tonsillitis and is having hers removed shortly.

    I know that having the horrible pregnancy and the birth of my daughter and how lucky we both are to be alive does trigger some now health-related anxiety that normally, I would never have had.

    In regards to moving, I have been attempting since not long after my daughter was born. Even when I was pregnant, I said I wanted to move back to the city and go back to where my family and friends are. It's hard when you have an unmotivated partner. He is no support, he sees what I experience every day in my horrible sinus troubles and just brushes it off. He brushed off my PE too, until the Ob was on the phone to him saying he had to hurry up and get to the hospital as we may not make it. He has a very blase attitude to everything, and sometimes I just want someone to reassure me, or at least say "you're totally allowed to feel this way", let me have a big cry and then help me to be proactive and get to the bottom of it. He has even been with me in a consult with my GP when she has said that my only option is to move. He's heard it straight from the Doctor's mouth yet, he's still not motivated to move. He wants to, but just lacks motivation and initiative.

    I'm sorry you don't have much support either, it makes times like this really sad and frightening. I too am glad I have found this forum and hope you also get to the bottom of your problems.

    Keep in touch and let me know how you go. As will I. When my Doctor's office opens again on the 8th, I'll be going in and arranging a referral to the ENT i took my daughter to. He seems very proactive and didn't hesitate for a second in regards to warranting a tonsillectomy for my daughter.

    Thanks so much for your time xx

     
    Old 12-31-2013, 09:30 PM   #7
    sassysar
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    Re: Any other Sinus sufferers out there?

    I have brought up allergy testing with my GP but it was just brushed off. I use Demazin 6 hourly as needed. It may provide some initial relief, but certainly nothing ongoing.

    I have a known allergy to Ibuprofen, I had it once and had an immediate anaphylactic reaction. Therefore i stay away from NSAIDs, which would probably serve wonders in a case like mine.

     
    Old 12-31-2013, 09:39 PM   #8
    Jkirv80
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    Re: Any other Sinus sufferers out there?

    Like you i have also wondered about gluten, i went one month without it and minimal sugar and felt so much better but it was hard to stick with. Ideally i would love to be able to just go vegan but that would require more time, money and kitchen supplies than i have at this point, lol. Right now i just try to make better decisions when i go to the store, i read labels, look at ingredients and what not, price is always a factor too. I have yet to start juicing but it is definitely something i want to try. I borrowed my moms and need to get on it. I know there is so much healing properties in fruits and veggies and i need to start intaking them more than i do. Im so sorry you don't seem to have much of a supportive partner, i didn't either. It is really hard trying to do this on my own though, betw juggling work, weekly doc. appts, errands and having my son every 2 days, it doesn't leave a lot of time. Debt is slowly piling up. Like you, i just want answers and to feel better. You may have to take matters into your own hands soon if you can't get help out there. May be a sign things aren't meant to be as well, out there anyway, you never know. We gotta listen to our guts.

    Last edited by moderator2; 01-01-2014 at 12:11 AM.

     
    Old 01-01-2014, 09:29 AM   #9
    Spyder96
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    Re: Any other Sinus sufferers out there?

    There have been many people with Sinus Infections who have benefited from Apple Cider Vinegar. The best type to purchase is Raw, Unpasteurized, Unfiltered. It must also contain the 'Mother'. Braggs is a good brand. Take 2 Tbsp twice a day. Let me know if it works for you.

     
    Old 01-01-2014, 03:25 PM   #10
    Jkirv80
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    Re: Any other Sinus sufferers out there?

    i just had some of that to drink today actually. Used 1 tbsp of honey, 1 tbsp of braggs & a whole lemon's worth of juice in a glass of water, so good….

     
    Old 01-01-2014, 05:28 PM   #11
    sassysar
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    Re: Any other Sinus sufferers out there?

    Thanks. I was having a teaspoon of Apple Cider Vinegar daily for some time. Not for sinus-related issues, but to assist in metabolic kickstart. Perhaps I should start again and have 2 teaspoons as opposed to 1.

    In my daily juices I always use a lemon, unpeeled. My daily juices is organic cucumber, lemon, 2 apples, ginger, kale, spinach, broccoli and pineapple. I always add Vital Greens and Barley powder to my juices. I add the extracted juice, with the green supplements, half a avocado and ice to the blender. This is my daily ritual.

    My GP says that my diet shouldn't really be a contributing factor and she, along with all of my ENT consults I have had and my 2 pharmacists all believe it is environmental. I know the obvious answer is to move but it's not something I can do in a day. It's very frustrating when this is occurring daily, and today is an especially bad day. Heavy head 'fog' since I woke up.

    Last edited by Administrator; 02-04-2014 at 01:05 PM.

     
    Old 01-02-2014, 06:24 AM   #12
    Spyder96
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    Re: Any other Sinus sufferers out there?

    Yeah, ACV really does help, unfortunately not for me since I have Non-Allergic Rhinitis. But when it comes to Sinusitis, many people swear by it. Since you've had symptoms for a while, it wouldn't hurt to up the Dose to 2 Tablespoons.

     
    Old 01-04-2014, 03:49 PM   #13
    Spyder96
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    Re: Any other Sinus sufferers out there?

    I think that it may have helped.

     
    Old 01-07-2014, 07:56 AM   #14
    KelleyH
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    Re: Any other Sinus sufferers out there?

    U sound like me. I have all the same symptoms. Been on every antibiotic and have tried everything. I saw an ENT and am scheduling for surgery in 3 weeks. Im nervous about surgery but anxious to feel relief. Im tired of the pain. Of feeling tired every day. Feeling like im in a fog. I have 2 kids and its so hard!

     
    Old 01-09-2014, 10:02 AM   #15
    Spyder96
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    Re: Any other Sinus sufferers out there?

    What kind of Surgery are you supposed to have?

     
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