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  • Elevated Sjogren's B blood test

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    Old 11-14-2008, 12:47 PM   #1
    BarbS2187
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    Elevated Sjogren's B blood test

    Hi,

    I have had leg pain for over 3 years. After I had a nerve conduction study that showed nerve damage in my leg, my doctor ordered several blood tests. The Sjogren's B blood test came back with Moderatly Elevated levels.

    She asked about dry eyes..I don't have
    Dry mouth - I don't have

    I am now supposed to see a Rumatologist. (misspelled I know!) and I am freaking out. If I don't have dry eyes and/or dry mouth. Could I have this disease?

    Any advice would be appreciated!

     
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    Old 11-14-2008, 04:47 PM   #2
    trikirodger
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    Re: Elevated Sjogren's B blood test

    you may have dry eyes and mouth but are so used to it that you don't notice. I have sjogren's. It was several years after being diagnosed that I began to feel the effects of my eyes and mouth. An eye doctor can check for dryness in the eyes, as well as your dentist with the mouth. It's quick, easy and painless in both cases. Don't freak out. Just take it one step at a time. With sjogren's you are treated as symptoms present themselves. Because of the lack of moisture in the body a variety of situations can occur. Also, there is primary and secondary sjogren's. One effects only the eyes and mouth, the other the entire body. Stay informed and take one little step at a time. You'll be fine..

     
    Old 11-15-2008, 07:58 AM   #3
    BarbS2187
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    Re: Elevated Sjogren's B blood test

    So I could have this and not know it? How weird. Thank you so much for your input. I know I need to stop worrying, what will be will be and I can't stop it.

     
    Old 11-16-2008, 07:06 AM   #4
    trikirodger
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    Re: Elevated Sjogren's B blood test

    Definantly, stop worrying. But it is important to stay on top of the disease. The more you know, the more you can do to prevent. I didn't know that I had dry eyes until my cornea, I don't what to say ulcerated because it was more like a crack. The way your fingers crack from dry skin. I was sent to a specialist who said I may require a corneal transplant. Thankfully, after using prednisone drops, the cornea healed and the scar was out of my line of vison, so no other treatment was required. If I had known my eyes were so dry I would have been using lubricant drops. Which is what I would suggest you do. You can use the drops during the day and, or at night use the eye lubricant that comes in the small tube. It feels a little like putting petroleum jelly in your eyes, but that's much better than a potential eye injury. One last thing, stay as active as possible. As I'm sure you know, sjogren's mimicks rhematoid arthritis. The more you move, the better you will feel. I teach fitness classes and thought I would have to give it up, and I may at some point. It gets harder and harder to do now what I used to do with ease. Several years ago, I could not hold my arms up I had so much shoulder pain. At that time we were implementing yoga classes where I work. I had to brush up on my skills. I began doing yoga at home so I would be ready to begin teaching. It hurt so bad to move and stretch. I would do about 2 or 3 minutes and then I would lay on the floor and cry, do a few more minutes and lay back down and cry again. It was excruciating. But...I continued on. I've been teaching those classes and more for over 5 years and it still hurts everyday. But nothing like it did 5 years ago. The more you do the better you will feel. I cannot say it enough. One day I was driving home and the thought came to me, "aren't you thankful that the disease you have requires movement." Now initially that may sound odd, but; the body is designed to break down and eventually die. That's the normal walk through life. If it were not, there would be a lot more people around. As long as we are still on this earth, each of us will face some kind of illness or disease. So instead of worrying and feeling scared, educate yourself. Face "your" situation with knowledge. Knowledge is power. I, myself would prefer quality of life regardless of my circumstances. So if I had to choose an illness, I would choose one that requires movement. Far too many (out of no fault of their own) have diseases that render them bedridden. Begin now to have some control over the future, rather than it controlling you.. What will be, in some degree will be determined by you. We may not have control over all things, but we do have control over some things. Exercise your right to have control over "some things." I'll be happy to share with you any information I have at any time. Take care.

     
    Old 06-02-2009, 08:26 PM   #5
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    Re: Elevated Sjogren's B blood test

    I have the same thing; elevated anti SSB and ANA but no symptoms - I saw a rheumatologist and he told me I do not have Sjogren's as I have no symptoms. What did your rheumatologist tell you??

     
    Old 06-03-2009, 02:14 PM   #6
    trikirodger
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    Thumbs up Re: Elevated Sjogren's B blood test

    The key to what your doctor told you was ,"no symptoms." Postive blood test can also mean a variety of things,i.e. infection, gastrointestional, hormone, blood, and skin disease. Hopefully, you will remain symptom free. How old are you?

     
    Old 06-03-2009, 09:40 PM   #7
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    Re: Elevated Sjogren's B blood test

    I will be 49 next month. Thanks for the reply!

     
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