It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Sjögren's Syndrome Message Board

Tummy problems, anyone?

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 02-22-2011, 06:02 AM   #1
Join Date: Jan 2004
Posts: 314
junglemonkey HB User
Tummy problems, anyone?

Hi there,

I've been having problems with tummy pain, nausea, significant weight loss, fullness and chronic diarrhea for about 2 years now. It has got so bad I can't work and I am terrified I'm not going to make it to my own wedding in 6 weeks.

A bit of background -

Was diagnosed with sjogren's by accident about 3 years ago. I am producing 0ml unstimulated saliva, and 0ml tears.

Unusual blood results --> elevated CK, elevated liver enzymes which have since resolved.

Had colonoscopy/endoscopy 3 years ago, since then flexible sigmoidoscopy, small bowel MRI, CT scan + chest xray (for lymphadenopathy), 2x ultrasound.

On prochlorperazine, hydroxychloroquine and loperamide.

Has anyone had any problems in a similar vein? My doctors are stumped and I am searching for an answer. I know that gastroparesis is associated with sjogren's. My doctor hasn't mentioned this but I am not vomiting.

Thanks very much for any help you can offer!
I'm not crazy, I'm just a little unwell.

Sponsors Lightbulb
Old 03-03-2011, 11:33 AM   #2
Join Date: Mar 2011
Location: UK
Posts: 1
melons79 HB User
Re: Tummy problems, anyone?

I have tummy issues sometimes, pain in my stomach, diarreha but not actually being sick, i was told this was down to the sjorgrens as it also has similar symptoms as IBS, i hope this helps you and know you arent alone

Old 03-12-2011, 06:19 AM   #3
trouble1968's Avatar
Join Date: Mar 2011
Location: Union, Ohio
Posts: 50
trouble1968 HB Usertrouble1968 HB Usertrouble1968 HB User
Re: Tummy problems, anyone?

I have tummy trouble all the time. It controls my life, I don't go out to eat for fear I won't make it to their bathroom or home to my own bathroom. I also have constipation that lasts any time from a few days to two weeks. It really sucks when I don't go for several days to a couple weeks.

There can be any combination of tummy trouble. I was told that the constipation is common in Sjorgrens Syndrome because the bowels don't have enough water and the intestines don't produce enough mucus to keep them moving. But with Irritable Bowel Syndrome it can be with Diarrhea or Constipation or with a combination. There are medications out to help treat IBS with Diarrhea. Maybe your doctor would be willing to let you try one of the medications.

Also have you tried taking Imodium or pepto to slow down the diarrhea?

Old 06-25-2011, 06:10 PM   #4
Junior Member
Join Date: Jun 2011
Location: Salina,KS USA
Posts: 29
cbg10 HB User
Thumbs up Re: Tummy problems, anyone?

I am new as of last night so I am not sure what I am doing here. lol Time will tell. I too, have major tummy problems. I have celiac disease as well as Sjogrens but it is totally in control. I was diagnosed with Gastroparesis and now read just a few days ago that Sjogrens has a "like" Gastropareses. I have had so many tests ran from bginning to end on digestion. I finally just have to not eat for a while. Bloating, constipation et al. When reading about the like condition it speaks to the immotility of the whole thing. I have had that thought on my own.Wow, it is a lot to figure out, isn't it??? I am sure I am going to like this site. Others don't have a clue about what this all is for us. I stay very upbeat and I can see that most of you all do but it is really super frustrating at times.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
dental problems 1Pancho Sjögren's Syndrome 2 06-14-2010 09:46 AM
eye problems sparkle16 Sjögren's Syndrome 10 04-15-2010 11:41 AM
sjogrens and thyroid problems kandiceann83 Sjögren's Syndrome 6 02-19-2010 12:45 PM
seizures anyone? surreygal Sjögren's Syndrome 8 01-16-2010 10:34 PM
ss and heart problems? surreygal Sjögren's Syndrome 4 08-22-2009 09:59 AM
Sjogren's and bone problems.. anyone else? shutterhappy Sjögren's Syndrome 3 07-28-2009 11:51 AM
Neuro problems with sjogrens or fibromyalgia VELVET121 Sjögren's Syndrome 2 11-09-2008 01:54 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 02:42 AM.

Site owned and operated by™
© 1998-2018™ All rights reserved.
Do not copy or redistribute in any form!