It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Sjögren's Syndrome Message Board

newly diagnosed - mouth sores/throat irritation

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 05-30-2012, 04:33 PM   #1
Join Date: May 2012
Location: bath, nc USA
Posts: 1
bellak HB User
newly diagnosed - mouth sores/throat irritation

Just recently dx with Sjorgrens. Going for 2nd opinion end of June. I would have never thought I had Sjorgrens, but possibly Lupus or Fibromyalgia the way I hurt and I suppose it's a possibility for another type of autoimmune disorder. Recently, I have sores in my mouth, primarily on my tongue and sometimes it feels like I am getting a sore throat, but it's so mild and it seems to be that way only in the evenings. Sometimes, it feels a little difficult to swallow; almost like it's a lump in my throat. That's what I hate about this autoimmune stuff...I seem to have all the weird things and sometimes hard to explain symptoms. So frustrating!!!! Would love to chat with someone that experiences these same things. Thanks!

Sponsors Lightbulb
Old 05-31-2012, 07:11 AM   #2
Junior Member
Sleepwalk's Avatar
Join Date: Oct 2011
Location: Oklahoma
Posts: 29
Sleepwalk HB User
Re: newly diagnosed - mouth sores/throat irritation

I'm waiting for the results of a salivary glad biopsy to rule out Sjogren's since all the other tests for it have been negative. I had the test yesterday (30th) and should hear something Monday.

I'm miserable. Have been for the last 3 years but have noticed strange symptoms for the last 12 years. I've had several surgeries to fix what turned out to be symptoms or side effects of Sjogren's and if anything I feel worse.

The dryness is not just in my mouth and eyes any longer - it's my whole body. I have a lot of pain and don't sleep well without medication and then it's not good. So many medications have the opposite effect on me than what they are intended to do. I have no energy and can't taste my food and have little appetite.

I just started seeing a doctor at Baylor Medical Center who is running new tests and I'm hoping he can find out what's really going on. This stuff must run in my family whatever it is because my father had a problem of some kind, my sister fits all the symptoms of Celiac (undiagnosed) and now me. My sister is 14 years older and her symptoms started about the same age mine did. Odd but interesting.

I went from a very active and positive person to someone who has a hard time walking some days due to the muscle and joint pain. My mood has been affected as well as the joy I used to have just to be alive.

I'm here and hopeful and hoping to get better if you care to communicate. I'm actually waiting on a prescription to be filled so I'll be here for a little while.

I hope you're doing better today!

Closed Thread

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 09:38 PM.

Site owned and operated by™
© 1998-2018™ All rights reserved.
Do not copy or redistribute in any form!