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Sjögren's Syndrome Message Board

Tongue sores

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Old 05-16-2013, 07:04 PM   #1
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Join Date: Feb 2012
Location: Peoria, I'll
Posts: 27
chillip1123 HB User
Tongue sores

Please help! Anyone have sores on both sides of tongue. Some are painful some not?

Last edited by chillip1123; 05-17-2013 at 06:47 AM. Reason: Spelling

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Old 05-17-2013, 01:48 PM   #2
Join Date: May 2013
Location: Staten Island, NY
Posts: 7
tiredteacher32 HB User
Re: Tongue sores

Yes, I get mouth sores from my Sjogren's Syndrome. My mouth is so dry, how could I not? You should get checked out by your doctor or dentist to make sure you don't have oral thrush, which is a common problem for people with dry mouth.

Old 06-15-2013, 01:59 AM   #3
Join Date: Jun 2013
Posts: 2
bellablot HB User
Re: Tongue sores

Hi. I've had Sjogren's for years. When I first got it, my tongue was so sore, and looked so strange with big red patches, that I put it on my scanner and took pictures to give the specialist for his research. He couldn't believe that I had actually scanned my mouth!! He called the condition geographic tongue.
Actually, I found regular use of Corsydil mouthwash cleared up the tongue soreness immediately. Since then, I keep gum in my mouth all the time if I need to talk, and I've learned to do it quite discreetly, tucking it up on the roof of my mouth etc. On a very sociable day, my mouth doesn't cope very well, but on a quiet day, with normal family conversation, I now barely notice how strange my mouth feels. My personal secret is that I keep a packet of gum tucked into my bra, in case I can't find any in my handbag!
On a really serious side.... I don't want to be a scaremonger, and please be warned that this only effects a VERY SMALL percentage of people with Sjorgrens, but one can develop lymphoma. This happened to me. I found a lump in my groin - diagnosed as Hodgkins. This seemed like a disaster, but I have had chemo and radiotherapy and have been told that , as near as they can say it, I am now cured of Hodgkins.
Sadly, all that chemical stuff did nothing to help the dry mouth, it is something we have to develop strategies to deal with. So, lots of luck, courage, and resourcefulness to readers with the same problem.

Old 07-08-2013, 11:21 PM   #4
Join Date: Jul 2013
Location: Iowa
Posts: 1
WreckTangle HB User
Re: Tongue sores

I find that my tongue is very sensitive to foods in general, and of course, anything with a bit of spice to it will send me through the roof.

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