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WHATS WRONG?Docs stumped

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Old 12-20-2004, 01:55 AM   #1
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Join Date: Dec 2004
Location: LasVegas/Oregon
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drginnypig HB User
Unhappy WHATS WRONG?Docs stumped

Hypothyroidism ? Liver/kidney disease? Cancer? WHATS WRONG WITH ME?

Up untill last year, I was healthy, happy & full of energy. I had a life!
A life that didnt revolve around constant suffering & continious dr. appts.
I have been a "Doctors ginnypig" for 12 months, this month!
I have seen six doctors,two ent's,and am seeing a dermatoligist.
I have spent thousands of dollars, missed alot of work & have had "NO RELIEF".
I have had numorus blood tests and have been on constant antibioctics of every type.
Last week the one of my doctors decitted to put me on hormone replacment therapy for my low thyroid, in hopes that ALL my symptoms will finally go away.
In a few days I'm having a Colonoscopy done by another dr.
The dermatologist has ordered a "Chest Xray". That one has me confused.
SYMPTOMS began as an outter ear infection. Then an inner ear infection. ear canal swelled shut, clear liquid drains from crease of outter ear. Extremly Itchy & painful.
FOLLOWED by raised hives that Itch at the base of my scalp.
FOLLOWED by red itchy raised welts on my face & neck.
FOLLOWED by red itchy blisters on my chest, then spread to my fingers, palms, elbows, outter pubic area to anus and lower buttox.
Sorry,This is gross!but Im constipated all the time & when i finally go, my poo is not it's usual size or color. It's pale & very skinny. Occational blood after painful bm.
I loose more hair everytime i shampoo or color. yet my hairdresser says my hair is healthy. I'm shaky & cold, I'm tired all of the time,have gained weight, have bad headaches, get dizzy easily & have trouble remembering even 'simple things'.
This has gone on for one year! My doctors have told me they "Don't know" whats wrong with me. I am hoping that they're latest guess (Low thyroid) is correct.
I have three children and a full time job and It's all i can do to get through the day
AND... The doctors ask me if one of my symptoms is "Depression". Dah!
IS ANYONE ELSE OUT THERE going through this?
I don't wanna be the doctor's ginny pig anymore.
(P.S.) Candida, Addison & Celiac disease have all been tested for & ruled out.

Last edited by drginnypig; 12-23-2004 at 07:48 AM. Reason: adding to text

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Old 12-20-2004, 07:03 AM   #2
Join Date: Oct 2004
Posts: 89
Terihe HB User
Re: WHATS WRONG?Docs stumped

I am sorry. I hope they find the problem. Good luck!

Old 12-20-2004, 07:36 AM   #3
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Join Date: Aug 2004
Location: Upstate NY
Posts: 579
AprilPow HB User
Re: WHATS WRONG?Docs stumped

sounds like low thyroid. make sure you get your actual results, don' let them say "you are normal".

Then you can join me in the thyroid group! :-)


Old 12-20-2004, 06:16 PM   #4
Join Date: Nov 2004
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kerry1 HB User
Re: WHATS WRONG?Docs stumped

I wouldn't rule out candida - check for info on candida or candidiasis.

Old 12-21-2004, 07:12 AM   #5
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alltaurus HB User
Re: WHATS WRONG?Docs stumped

?? Check out the Addison's board ??

Old 12-21-2004, 05:48 PM   #6
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drginnypig HB User
Re: WHATS WRONG?Docs stumped

I'll continue to do research.

Old 12-23-2004, 07:43 AM   #7
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drginnypig HB User
Re: WHATS WRONG?Docs stumped

Candida,Addison & Celiac disease have all been ruled out

Old 12-23-2004, 05:39 PM   #8
Join Date: Nov 2004
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kerry1 HB User
Re: WHATS WRONG?Docs stumped

Don't your doctors have specialists they can consult with?? They should be calling the Mayo Clinic for guidance. They should be [I]{removed}[/I] not you!! You're not feeling well - they're supposed to do the legwork for [I]you.[/I] If I were your doctor I would be up all night trying to figure out what's wrong.

Last edited by Modinatrix21; 12-23-2004 at 06:16 PM. Reason: Read posting rules. No websites.

Old 01-10-2005, 11:19 PM   #9
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drginnypig HB User
Unhappy Re: WHATS WRONG?Docs stumped

I hope everyone had a nice holiday.

I was hopeing to have news/better news to share, but...No reliable answers yet.
The doctor put me on thyroid meds (Synthroid) I've been on them a month now & will have my thyroid levels checked again next month(feb 05) Last month, (Dec 04) my TSH was at 11.56. I don't know much about all this, i assume thats low, or they wouldnt have put me on the meds.
I am learning as i go along...In addition, the doc put me on birth control pills (and said he is considering hormone replacment therapy for me) I guess the B.C. pills are a good idea. Just funny though, cos i had a tubal ligation many moons ago.

One thing refreshing has come about, I do have more energy lately.

However, my itchy hives throughout my body continue to be a real bothersome and it's been over a year now since i got them and now, nine doctors later.... One more to add to my growing list of doc's on wednesday.
I'm seeing another Dermatologist wed. This guy came highly recommended.
Pardon me if i'm not too excitted. But, I am hopefull

I've been given a different diagnoses by each MD i've seen!
and thus far, NONE of them have helped me.

Just in case there is another freeky, odd ball case out there like mine ??
I will keep this board informed.

Tah tah for now

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