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    Old 08-09-2004, 09:30 PM   #1
    Angelace
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    Question Sleep Apnea & surgery, anyone?

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    Hello!

    I am new to this forum..........I have been living with Sleep Apnea for about 3 years. My doctor had me try the Cpap machine, with no luck.........I simply couldn't tolerate it and would take the mask off in my sleep without knowing it.

    I recently went to see specialist. He performed an upper airway examination and told me that my nasal airway is narrowed possibly from my tonsilectomy and adnoid removal when I was young and now it is crooked, which is why I have obstructive sleep apnea and he would like to perform surgery. The surgeries he wants to perform are Uvulopalatopharyngoplasty and nasal septoplasty. I am curious to know if there is anyone that has had either of these surgeries and if they were successful, as i don't know anyone who has. I would like to know how people have responded to these surgeries. I'm a bit scared to have either of them done. I would appreciate any comments or suggestions on this.

    Thank you so much,
    Angela E

     
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    Old 08-10-2004, 08:41 PM   #2
    dbakz98
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    Re: Sleep Apnea & surgery, anyone?

    I've had both surgeries and still need the CPAP. The UPPP surgery has created a new problem for me. When I eat, the food sometimes goes up my nose. That or it sits on the end of my soft pallate and causes a terrible cough. It a tough recovery from either surgery. If you want my advise, I'd say give CPAP another chance.

     
    Old 08-16-2004, 05:06 AM   #3
    clarkfarm
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    Re: Sleep Apnea & surgery, anyone?

    Hi. I am new at this too. I was diagnosed with sleep apnea 3 months ago. I tried the CPAP but had a terrible time with swallowing air causing severe abdominal pain. As it was a rental unit, I let it go back. Meanwhile I visited a ENT (ear, nose, throat specialist) to see if there was a sinus or throat problem that was causing me to swallow the air. I have had nasal congestion for 9 years. He claimed nothing was wrong with my sinuses and if I had discomfort I would have to live with it. So, between the sinus issue, sleep apnea, asthma (still in question), acid reflux, thousands of dollars spent and sitting with no hope, I heard of a prceedure called Neuro Cranial Restructuring (NCR) that sounds like it may help without surgery. In hoping I am not breaking the rules, all that I will say is research it. I talked with a 39 year old man with sleep apnea who had had 2 treatments and felt immediate results. I am still praying about whether it is the right route for me.

    Clarkfarm

     
    Old 08-16-2004, 06:14 PM   #4
    teady843
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    Thumbs up Re: Sleep Apnea & surgery, anyone?

    I have been wearing a CPAP for over two years but had many problems in the beginning. Luckily I had a very competent respiratory therapist who worked with me by finding the best system for me. I have had better results with the nasal pillows instead of the mask. I sometimes have to touch my face during the night to make sure it is still there. My point is-you will get used to it and will benefit greatly. It is not easy but is well worth the effort! Good Luck!

     
    Old 08-19-2004, 12:31 AM   #5
    analog2000
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    Re: Sleep Apnea & surgery, anyone?

    Hello,

    I am also new to this board. I have suffered with sleep apnea for over ten years, but was only properly diagnosed and put on C-PAP two years ago.

    My advice to you would be to give C-PAP another try. There are literally 100s of different masks out there. With a lot of patience, and the help of a good respiratory therapist, you can find the right one for you.

    My own story: when I first got my C-PAP, it was like torture to try and sleep with it. I would wake up in the night feeling like I was choking and half the time I would take it off in my sleep. Luckily, my respiratory therapist was wonderfully patient, and really worked with me to find the right machine and mask for me. It took over four months for me to be comfortable with my machine, but now you will pry it from my cold, dead hands.

    I honestly feel that C-PAP saved my life. I was so miserable, exhausted, and sick before I got it, and I can't believe the change now. Even after a year of being really "awake" I am still amazed at all the positive differences in my life. I just cannot find enough good things to say about my machine, I guess I am a true believer.

    Please consider giving C-PAP another chance. I know the initial adjustment period is long and torturous, but it is so worth it. Everyone I know who has been able to adjust to C-PAP would now never give it up. Surgery may at first seem like an easier option, but it's success rate is so much lower than C-PAP treatment, and it is much riskier.

    Talk with your doctor, there is a C-PAP plan out there that is right for you.

    Good luck,

    Lisa

     
    Old 08-22-2004, 02:09 PM   #6
    hry33
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    Re: Sleep Apnea & surgery, anyone?

    it can be a slow and difficult process gatting used to a CPAP machine, it took me 3 months to do it

    maybe get a second opinion re the surgery from the people who gave you the CPAP machine

     
    Old 08-22-2004, 04:32 PM   #7
    MayorG
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    Re: Sleep Apnea & surgery, anyone?

    I played football and got my nose rearranged several times. Deviated septum. I had the nose straightened and it worked untill it got broken again at work. I also have a problem with my nose getting stuffed. I had a somnoplasty about 11 months ago. The electrically zap the nose membranes and they shrink. Its worked for a while. But with allergy season Im a bit clogged again. As far as the cpap, find a mask that works and give it a while. It wont work overnight. remember the body has to readjust itself back! Good luck.....Greg

     
    Old 08-25-2004, 08:11 PM   #8
    puppers
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    Re: Sleep Apnea & surgery, anyone?

    For what it is worth, I had the septoplasty (I was hit in the face by a seventh grader while trying to break up a fight and got a more deviated septum from that). The septoplasty lasted well for about 5 years. Then scar tissue formed. Then I was told of a new surgery called turbinate reduction. They put in a local anesthetic in the nose along with adrenalin (adrenalin slows bleeding). I did not know I was allergic to adrenalin and it caused me to have heart fluttering, but he did finish the right side of the nose. I keep telling him to finish the left side as it is more congested, but he is afraid because of the adrenalin. He didn't use adrenalin on the right side and I was fine and it is the clearest of the two nasal passages.
    The latter surgery was well worth it, though swollen for awhile.
    I was using my cpap at the time. They got me two items which I use FAITHFULLY NOW!
    Actually, three items..........
    1. A RESPIRONICS MASK has a firmer thicker plastic that is on your face. They have tried the flimsy filmy plastic ones on me and because of my facial contours, they don't work.
    2. They gave me a FULL FACE RESPIRONICS MASK so that I could breath through my mouth for the several weeks after the surgery.
    3. They gave me a BROAD elastic (about two inches wide) CHIN STRAP and I use that faithfully because it keeps me from forcing my mouth open at night.
    Hope this helps.
    I'd try to check out the surgeries, but not until you have a sleep lab test done FIRST so you have your cpap machine or a bipap machine like I have to help you breathe well after the surgeries and would keep in constant touch with your breathing machine doctor until you get a restful nights sleep.
    You do get used to the machines, it just takes time. In fact, I know instantly if I have laid down and not put it on. I feel like I am missing part of my nighttime clothing for the night....it just feels awkward to not have it on...not trying to be nasty about that either.
    God bless,
    Puppers

     
    Old 08-26-2004, 06:20 PM   #9
    2tiredmom
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    Re: Sleep Apnea & surgery, anyone?

    Hi I had the UP3 and septoplasty surgery about 4 years ago. My insurance at that time would not pay for another sleep study so who knows if it worked. I also have a very expensive CPAP machine and a variety of masks sitting in my closet that are useless. I never was able to sleep through the night with it. I also suffer from CFS and Epstein Barr Virus. My doctor is scheduling me for a sleep study as I am with a new insurance company now and they should pay for one.

     
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