It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Sleep Disorders Message Board

Sick and TIRED (literally)

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 08-19-2011, 01:11 PM   #1
Join Date: Dec 2008
Location: Rochester, NY
Posts: 62
Juliel85 HB User
Sick and TIRED (literally)

I have been having sleep/pain issues for 10 years. It seems that no one really knows what is going on with me but they label it fibromyalgia. I've had tons of blood work done that didn't find anything too significant (slight hypothyroidism that is being treated, some vitamin deficiencies that have been corrected, blood sugar issues which I'm supposed to be working on through diet and exercise).

I also had a sleep study done in 2007. It showed that even in deeper sleep, I had awake-like brain waves that intruded . This happened hundreds of times during the night. Most were what they labeled "spontaneous arousals", as in they were not due to sleep apnea or restless legs. They said it seemed like chronic insomnia. No real suggestions were given on how to overcome this.

I also have pain. Not all the time but a lot. Especially in my calves, hands, arms, wrists, back. Since the sleep study, my sleep has also gotten worse. I am concious of being awake a lot. And the one thing that has happened everyday for 10 years is that I wake up not refreshed. I feel so exhausted that it is hard for me to get to work. Its a terrible fatigue and almost like a slow burn in my arms and legs.

Another thing: my bloodwork always shows elevated SED rate and C Reactive there is inflammation in my body but we don't know where.

Does this sound like fibro or some other chronic illness that Dr's are not finding? Is there anything else I should be getting tested for? I'm having a 2nd sleep study next month.

I have a theory that maybe anti depressant use since age 13 casued something to become mis wired in my brain and this is the result. I began on SSRI's so young due to severe OCD. They worked wonders for this but I do wonder the effect of such strong medications on a developing brain.

I am on Cymbalta 120 mg which works well for depression, but hasn't helped my aches or fatigue. Provigil/Nuvigil helped but the side effects were bad. I've tried Melatonin, Trazodone, Chinese Herbs, Acupuncture, Gluten Free Diet....nothing has made me feel less tired and achy. I also saw a naturopathic Dr. in town who is known for treating fibro. She had me on a ton of supplements that didn't do much. She also suggested the gluten free diet, which did not help.

Any insights would be helpful. Thanks.

Sponsors Lightbulb
Old 08-19-2011, 07:24 PM   #2
Join Date: Feb 2008
Location: anaheim
Posts: 83
phoebe368 HB Userphoebe368 HB User
Re: Sick and TIRED (literally)

Hi there,

Sorry to hear about all of your problems. I suffered from sleep problems, fatigue and brain fog for years. I had a sleep study which showed nothing but mild snoring and lots of spontaneous arousals. I convinced the sleep tech to loan me a cpap machine and mask for a one week trial. I felt much better so I knew I had a sleep breathing disorder. I requested another sleep study at a different sleep center - the study showed lots of spontaneous arousals and said my sleep was normal. I contacted a prominent sleep apnea surgeon on the internet who suggested I get my study done at Stanford Sleep Disorders clinic in Redwood City, CA as they score respiratory events more aggressively and have very sophisticated testing equipment. My study there - surprise - showed that I had obstructive sleep apnea and many flow limitations which disrupted my sleep. I am now on auto bipap and am feeling better. Moral of the story is - the test itself may be wrong, go to Stanford as they are THE best sleep clinic!

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Can't get tired Sayshell Sleep Disorders 0 07-17-2011 05:25 PM
Tired all the time. Matth3w Sleep Disorders 11 02-27-2010 08:28 PM
Vivid dreams...sick of them sh 08 Sleep Disorders 9 09-14-2009 04:31 AM
I'm always tired... mjguarino Sleep Disorders 3 08-06-2008 03:50 PM
Insomniac Theater...........literally Phoenix Sleep Disorders 2 10-02-2007 04:02 AM
Sleep 8 hrs but still TIRED ! ! gasandsleep Sleep Disorders 1 06-12-2006 05:57 PM
ALWAYS tired in the morning, not matter how much sleep I get - HELP pinkmeg Sleep Disorders 7 08-03-2005 09:23 AM
Cant Sleep And Sick Of It - Please Help snooter76 Sleep Disorders 2 11-21-2003 05:23 PM
wakeing up tired goatofthenever Sleep Disorders 1 08-06-2003 01:23 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 08:09 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!