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  • New here and very scared. Myelomalacia.

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    Old 05-16-2015, 04:06 PM   #1
    faithforever72
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    New here and very scared. Myelomalacia.

    I just signed up and don't really know my way around yet. Thank you for reading my post.

    I've been diagnosed with the following -

    (1) Multilevel spondylosis with most pronounced findings at C5-6 and C6-7 levels.

    (2) Minimally effaced cord with increased signal consistent with myelomalacia at the C5 - 6 and C6 - 7 level.

    I'm petrified! No one I know has ever heard of this disease or whatever it is. I'm hoping someone here with some knowledge can enlighten me a bit. I really don't know what the dx means other than what I've googled and that's really upsetting.

    Thank you so much for reading this. I hope to hear from someone.

    Faith

     
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    Old 05-17-2015, 06:01 PM   #2
    ChuckStr
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    Re: New here and very scared. Myelomalacia.

    Hi Faith, welcome to the board!

    For some reason, radiologists seem to call myelomalacia when they see a white spot around the spinal cord on mri. There are several things to know about this. 1) it isnt a diagnosis. Radiologists generally don't diagnose anything, they just read and interpret the images they see. They do not have the clinical picture, exam results etc to make an accurate diagnosis. 2) it's difficult to distinguish diffuse signal change due to some physiological issue vs motion artifact. Did they mention motion in your mri in general? I had this exact thing happen where one radiologist said myelomalacia and others as well as spine specialists said more likely motion artifact. 3) even if the signal change indicates an issue with your spinal cord, that doesn't mean that you necessarily have a progressive disease as talked about online. In that case you would probably want to correct whatever caused the damage, but the condition is unlikely to progress without further damage.

    I would get in to see a spine specialist for evaluation and treatment. They are neuro or Ortho surgeons with specialized training in the spine that limit their practices to spine conditions only. Don't be scared by the fact they are surgeons because they also specialize in non-surgical treatments.

    Good luck and let us know how you get on...

     
    Old 05-18-2015, 07:27 PM   #3
    faithforever72
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    Re: New here and very scared. Myelomalacia.

    Thank you so much for replying to my post. My PCP is sending me to a neurosurgeon this coming Friday. He isn't a spine specialist but since I trust my PCP, I will see this neuro doc. I would really like to find a spine specialist but don't know how to go about it. I live in the New Orleans area so there must be some nearby. Only thing is, if I do locate one, how would I know if he/she is good?!

    My spine is really messed up. I've had vertebra fractures in the past and think this might be what caused my problem. Needless to say, I'm scared since so much bad stuff is on the net regarding myelomalacia.

    Again thank you so very much. You are the only one to reply and I really needed to hear from someone.

    Blessings

     
    Old 05-19-2015, 03:03 PM   #4
    faithforever72
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    Re: New here and very scared. Myelomalacia.

    Another problem...I had an abdominal ultrasound done and I have a 75% blockage of the R common iliac artery! I have to see a cardiovascular surgeon Thursday. Which surgery is most important?! Guess they will flip a coin!

    Please say a prayer for me.

    Thank you

     
    Old 05-28-2015, 12:56 PM   #5
    Hillcrest
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    Re: New here and very scared. Myelomalacia.

    Chuck is right, you definitely need to see a Neurosurgeon for further evaluation. If it is "only" a two level problem you can get it fixed with an
    ACDF. But you need to talk to a specialist first.

     
    Old 05-29-2015, 12:05 PM   #6
    faithforever72
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    Re: New here and very scared. Myelomalacia.

    Thank you very much for the replies.

    I did see a neurosurgeon and the problem can be remedied fairly easily.

    Thanks again!

     
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