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  • Hemangioma base of skull MRI Results

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    Old 12-03-2016, 10:01 AM   #1
    Faithsister
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    Hemangioma base of skull MRI Results

    Greetings, I am new to this board. I received a letter from my neurologist with evidence of a small hemangioma at the base of my skull with no other information. I am waiting on the copy of the MRI report.
    Please help me understand this. I am due to go overseas for one year, and my doctor said there is nothing to worry about. Here is her letter:
    The radiologists commented on a small change in the bones of the
    base of the skull which, looking back at your CT scans from
    April, was likely present at that time as well. This change seems
    consistent with a small bony growth called a hemangioma. These
    are benign and therefore the results are not worrisome. END LETTER

    I had recent terrible left eye pressure and went to an ophthalmologist and she ruled out everything and convinced no need to worry. I am starting to think that this eye pressure could be related to the hemangioma. Is that possible?

    My question: Should I be concern or is the kind of hemangioma that they speculate is not bad. I had a previous diagnosis of a disc bulge is C4-C5. Now, hemangioma has been added to this 8 months later. While doc says this is no concern, I am beginning to think symptoms of recent left Eye pressure, headaches, left face and arm tingling and numbness on and off for the past year, numb tongue twice this year with biting it, and on and off tiredness with weird sensations in my left side of the face could be attributed to this? Or would that be from the disc bulge? The doctor has tried reassuring me that my trip for one year should not be a concern for me but it has been boggling my mind. Please add input from those with experiences or a doctor would be so helpful. It would ease my mind. She told me she doesn't see the need to do a MRI or CT scan for a year, but I cannot imagine waiting that long. I will get my MRI results next week but would like any specific help now. I'm scared about tumors and skull base hemangiomas from what I've read online which I'm trying not to read too much. Thank you!

     
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    Old 12-03-2016, 03:35 PM   #2
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    Re: Hemangioma base of skull MRI Results

    Hello, and welcome to the board. Let me begin by saying that board members do not have formal medical training but are rather individuals who share experiences and information based on our own "history"...so keep that in mind as you read. Some boards have doctors that respond to specific health questions, but that is not the case here.

    Will you be in a country where sophisticated medical care is available to you?

    Did you see a spine specialist for the cervical spine issue?

    While I await your reply before offering more thoughts, go online and find a "dermatome map." This will show you which spinal nerves innervate which areas of the body. You can look at C4 and C5 specifically to see if your symptoms match up or appear unrelated to those dermatomes.

     
    Old 12-03-2016, 06:57 PM   #3
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    Re: Hemangioma base of skull MRI Results

    It's so great to receive your message. Thank you. Dermatone chart is an excellent reconnection. I will not have access to treatment where I'm going overseas unless it is an emergency because it is remote. My neurologist said with ease not to worry about my travels for a year. I would like to. However, honestly I am mostly concerned about the hemangioma because it is new to me. C4-C6 are what I'm used to by now for a year now. The idea of a tumor on the base of my skull sounds scare and all I can imagine is a brain tumor even though I received a message stating not to worry. I would really be grateful for any more insight you can offer about hemangioma and what else I wrote in my post. Thanks and many blessings.

     
    Old 12-04-2016, 09:59 AM   #4
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    Re: Hemangioma base of skull MRI Results

    Maybe we should wait to see what the new MRI report says. I want to know more about what is going on at C4-6.

    Generally speaking a hemangioma is usually not something that causes symptoms. I don't think of them as tumors but more of a lesion that is slow growing vascular neoplasms...in this case apparently located in the bone. Most are contained within the vertebral body but sometimes they can grow beyond that, Which is when, I would guess, they could begin to cause symptoms...the danger is in one growing so big that it presses into the spinal cord and causes myelopathy.

    Are the symptoms you experience now similar to what sent you to the doctor when the disc bulge was found? How was that treated?

     
    Old 12-04-2016, 10:02 AM   #5
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    Re: Hemangioma base of skull MRI Results

    Thanks so much. No, most of my issued now are eye pressure but not a headache or migraine. It is all on the left side only and I went to an opthalmologist who rules out eye conditions. That is why I think maybe a nerve is being compressed or something related to the hemangioma. For peace of mind, I would really like to get a brain CT scan to rule out anything. Have you had similar symptoms?

     
    Old 12-05-2016, 05:55 AM   #6
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    Re: Hemangioma base of skull MRI Results

    I have not had similar symptoms. My issues have usually been lumbar.

    Do you have a spine specialist that you have seen? Neurologists are not usually the best place to go for an accurate diagnosis of spinal issues. When I hear of something going on at the base of the skull, a Chiari malformation comes to mind. It is something that is often overlooked or mis-diagnosed.

    If I were in your shoes, I would want at least another opinion telling me the hemangioma is nothing to worry about, or I would be worrying about it the whole time I was abroad. I know with all the new rules governing healthcare these days, it is more difficult for doctors to justify ordering MRIs and ct scans.

     
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