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  • agony and no diagnosis. need help

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    Old 07-08-2018, 03:06 PM   #1
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    agony and no diagnosis. need help

    i am 57 female. until feb i was really active but suddenly i woke up one day with pains in hand and arms. neck was tender too.
    i went to gp who said tablets and blood tests. now 5 months on i am in a wheelchair. mri showed degenerative disc and bulging from c3 to c7. i walk a few steps like a spaceman but more frequently i am unable to put one foot in front of other as i forget momentarily how to walk. my red leg has tremors and my son describes the action as though im having involuntary spasms but my brain doesnt seem to be telling my right leg what to do and my leg is looking for land but its not able to put down. my right hand is weaker as is right arm. it feels when i lift them that i have ten full carrier bags in each hand causing my arms to drop. from chest up it feels sometimes like it doesnt belong to me as someone pushing down on me and i havent got strength to resist. headaches are horrendous and im getting really scared because mri showed neck discs c3 to c7 with problems and whole spine got spurs on it especially lower back.
    im in agony this very moment. i am crying with the pain in my neck and head for thd past few hours and all the drugs they prescibe are not hitting the pain just putting me to sleep sometimes. im up all night with restless legs and pain in neck.
    the neurologist said no pressure on nerves so why am i like this. my life is ruined. i cant even wash dishes cos i cant stand long enough, have very limited movement in neck and hands so weak i drop things and cant hold small dish sponge cos it feels far too heavy.
    the neurologist suggested i get brain scan for my imbLance and my speech. as soon as i stand im with leg shakes and my eyes are spinning. my speech...i now stutter, mix words up and use wrong words. i have blank episodes and constantly im trying to focus as my head feels too heavy for my neck and my eyes feel like they rolling and im on the verge of pasdkng out. i dont pass out. but i can fall and my diabetes nurse says what i have got could be neuropathy but noone can give me answers apart from cervical spine degenerative issues with bulging discs and spurs.
    he said no op as too extensive area to do so pain management only which i cant get sppointment until sept.
    its noted by neurologist slight weakness on right side but days upper body strength good. i disagree totally. i have weakness far more than dlight and the dropping of my shoulders snd arms he says is through pain rTher than muscle weakness. onlt test he did was press on my knee snd saw ghe involuntary tremors in my lright leg. plus he asked me to hold out my arms in front of me but within seconds i had to drop them as my body made me.
    i feel im being pumped with meds thst dobg touch the pain. im getting about 3 hours sleep maybe 4 oncluding afternoon. im severe weak from chest up and my legs feel they arent getting messages from the brain when i stand and try to walk. i am out of breath after 5 metres with my partner supporting me. any more than that im knackered for the rest of the day.
    this cant be right. ive just taken a ton of meds prescribed at proper dosage to try ease pain but its not helping any. i feel a burden to my partner and my son who got a shock when he saw me yesterday.
    i am just so weak. im getting anxious as im getting scared. i would have gone to hospital a and e today but id be sitting like last time for 6 hours and i cant do it. i cant sit in one position. im fidgety and have mh head between my shoulders as maybe just pschological but it feels like my head is supported. my son said today that i can stand straight but as i move with someone supporting me my head is all over the place and im walking with hands ourstretched to keep balance. it doesnt help and i feel like as soon as i stand i am imbalanced and going to fall.
    any advice would be appreciated. ive had blood tests and xrays saying nothing wrong with my chest so why do i feel im choking and cant get my breath. this breathlessness and heavy breathing then exhaustion is not normal.
    can anyone suggest something. its not panic attacks as i know how they feel.
    thank you.

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    Old 07-08-2018, 03:49 PM   #2
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    Re: agony and no diagnosis. need help

    Do you have a copy of the written MRI report? If so does it mention any spinal cord compression or myelomalacia? There might not be any individual spinal nerve compression but your symptoms sound like there is something pressing into the spinal cord in the cervical area of the spine. This can result in things like headache, shortness of breath, etc., as well as difficulty standing, walking, hanging onto things without dropping, etc.

    Have you ever had a lumbar MRI? Are you able to see a spinal specialist like an orthopedic spine or neuro surgeon?

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    Old 07-09-2018, 12:28 AM   #3
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    Re: agony and no diagnosis. need help

    i have had normal mri for spine only. i relly dont think drs know what to do. im going back to gp if i can get appointment today. it feels like im being ignored as no one understands the pain im in. life is a huge struggle for me now. i am going to ask for 2nd opinion today. the mri says no cord compression . i was in neurologists room barely three minutes. i need a diagnosis because then they can help me then. i am also double incontinemt now although i had minor problems there before. theyve got worse. my diabetic nurse blames everything on diabetes even if its just a cough. my gps ask for blood tests but they comeback ok. my son suggested lewy dementia as hes a carer and says im exactly like one of his clients. i know its not normal to be like this but we are at thepoint of no hope.

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