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  • Klippel-Feil Syndrome

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    Old 03-15-2019, 05:33 PM   #1
    Nennie
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    Klippel-Feil Syndrome

    Hi,

    Does anyone else on this board have Klippel-Feil Syndrome? I was born with a really messed up spine but only recently noticed on my patient portal that it has a name. I never knew about Klippel-Feil.
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    Congenital spinal deformity with 2 Hemi-Vertebra
    Spinal Stenosis and Myleomalacia DX 6-29-06
    Posterior Cervical Laminectomy C-5 C-6 7-12-06 No hardware installed
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    Old 03-15-2019, 07:00 PM   #2
    MSNik
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    Re: Klippel-Feil Syndrome

    Klippel Feil is a birth defect where the bones in the neck do not fuse properly...if you have had this all your life and have had no issues you probably have nothing to worry about...does your doctor seem concerned?
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    Old 03-17-2019, 10:45 AM   #3
    teteri66
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    Re: Klippel-Feil Syndrome

    How are you currently? Do your doctors keep an eye on the myelomalacia?

     
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    Old 03-20-2019, 08:10 AM   #4
    Nennie
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    Re: Klippel-Feil Syndrome

    Hi. Iíve had a lot of problems all my life. I have MRIís once a yr. This time he only went 6 months because of a spur at C2-4. I go in April for another one and to see the neurosurgeon. Iím going to need a laminectomy on it. I just never knew there was a name for what was wrong with me.
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    Congenital spinal deformity with 2 Hemi-Vertebra
    Spinal Stenosis and Myleomalacia DX 6-29-06
    Posterior Cervical Laminectomy C-5 C-6 7-12-06 No hardware installed
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    Old 03-21-2019, 06:56 AM   #5
    Nennie
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    Re: Klippel-Feil Syndrome

    Nervous about having surgery that high up. Anybody else had decompression surgery on C2-4???
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    Congenital spinal deformity with 2 Hemi-Vertebra
    Spinal Stenosis and Myleomalacia DX 6-29-06
    Posterior Cervical Laminectomy C-5 C-6 7-12-06 No hardware installed
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