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Transverse myelitis reoccurance? Multiple sclerosis? or misdiagnosis

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Old 11-14-2003, 01:11 PM   #1
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Join Date: Nov 2003
Location: Missouri
Posts: 15
frantickat HB User
Transverse myelitis reoccurance? Multiple sclerosis? or misdiagnosis

I've posted very few times, but now really need some advice.
I was diagnosed with TM january 2003, which got somewhat better with
steroids, and i was able to get on with life somewhat. Except for
symptoms flaring up, like weakness etc, and constant bladder infections.
Just this month i noticed that the symtpoms were getting stronger, so i
decided to see a neurologist, because i was having difficulty walking
and had a lot of weakness, and arm/leg/neck pain like at the onset of
january. I didn't know if this was a reoccurance or just something left
over from the TM i had in january. Anyway he put me in the hospital and
i had 5 days of steroid treatment. Over which my pain and weakness
worsened, i also had a brain mri and mris of the neck and spine.
Everything showed that i was okay. And the *new* neurologist i had just
gotten said that in january while reading my mri of spine, the TM could
have been an *artifact* meaning not truly being TM, though i had all the
symptoms. Now i'm really confused, the steroids helped my bladder a lot,
i can!
finally pee peacefully, it's been such a long time. But the neuro said
that had nothing to do with anything, he was sure i had MS. I don't
think he was a very good doctor, he didn't want to put any of the
symptoms together. So anyway, Nobody knows what's wrong with me now, my
mri of january may have been a misdiagnosis, though i'm not sure how
they culd have overlooked that. And my mri now turns out fine. IS this a
reoccurance of myelitis? Or residual effects? I feel horrible again,
dizziness, constant pain, migraines, weakness. I don't know what to do........

Please respond if you have any info whatsoever

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Old 06-02-2004, 03:06 AM   #2
Junior Member
Join Date: Apr 2003
Location: Pakistan
Posts: 43
Cheeti HB User
Re: Transverse myelitis reoccurance? Multiple sclerosis? or misdiagnosis

I was trying to find out some answers for my friends undiagnosed disease when i read your post. My friend is paralyzed waste down from the last three years but nothinghas been diagnosed yet in his case. We live in Pakistan, so my friend travelled all the way to USA(John hopkins, WD,and kansas), Uk and canada but doctors were unable to diagnose anything. They did plasma exchange on experimental basis.....................
Most of his symptoms were like your except he never had to face sever pain.............. but the same bladder and bowel problems, leg weakness etc.
He had all mylograms, X-rays, MRi's and other blood test but nothing was found in them. Just few spots in brain (whit matter) but its not MS than what it could be???? still struggling to find anything which can be treated.
What about You? did you get any diagnosis? really want to hear from you?
please do write soon.

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