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  • Spinal Hemangioma and Pregnancy

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    Old 06-22-2004, 11:16 AM   #1
    JIngley
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    Spinal Hemangioma and Pregnancy

    Hi!

    Does anyone have any information, literature or even advice on the above topic?

    I have a spinal hemangioma which can't be operated on. I was told four years ago when it was diagnosed that I shouldn't have children as long as I have this hemangioma since it could enlarge during pregnancy and cause a paralysis which could not only endanger myself but also the baby.

    I was told a couple of months ago, however, that the hemangioma is stable (i.e. its not grown at all in the last four years) and of course I'm now wondering whether this may mean that I might be able to have children after all.

    I'd be really grateful for any information or tips whatsoever.

    Thanks,
    Jane

     
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    Old 06-24-2004, 05:41 AM   #2
    feelbad
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    Re: Spinal Hemangioma and Pregnancy

    I had a hemangioma in the C-7/T-1 area inside my spinal cord but didn't know it until the last few years.I had two very normal complication free pregnancies many years ago(my oldest is 21,the youngest,17).i know that having the hemangioma is scarey.Has it ever bled that you know of?If you had a bleed, it wouldn't really say so on your MRI, it would say something about a hemosiderin ring or staining.It is an iron deposit that is left over after a bleed.this would increase your risk for another bleed.If you have never had a bleed, your risk of having one during a pregnancy would be lower.The thing is, is that from the research that I have done on these little globs,no one seems to know just what will trigger a bleed.So there isn't really any precautions to take.all i was told by the first NS that I saw is that i need to keep my BPs in check.now since this is made up of venous vessels which are the low pressure vessels,I would really wonder if your BP would really have any kind of effect on whether or not you will have a bleed.

    You have a big decision to make here and I really am sorry that you have to deal with this,All I can tell you unfortunetly is to do as much research as possible before you decide what you want to do.good luck, marcia
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    3-22-01,herniated C-6-7
    11-20-01,placement of hardware for failed fusion
    9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

     
    Old 06-27-2004, 01:44 PM   #3
    JIngley
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    Re: Spinal Hemangioma and Pregnancy

    Hi Marcia,

    Thanks for your reply. You are quite right - I will be doing as much research as possible because I don't seem to be able to find a doctor who is willing to give me any decent advice. I think there is a definite lack of research in this specialised area and for this reason I'm more or less being told that its my choice. I don't really want to spend half my pregnancy worrying about whether we're doing the right thing or not but it'll probably end up that way!

    As far as I'm aware my 'glob' has never bled. I don't believe that BP would have a major effect because, like you say, it's low pressure and also low flow. I'm pretty sporty so I don't have any problems with my BP anyway.

    When did you find out about yours? Do the docs reckon it was there the whole time or did it grow at some time? You say you had a heamangioma - have you had it operated on? Did you have any problems because of the heamangioma? I, fortunately don't have any problems at all. I only found out that I have the one in my spine because I had a very large one in my back which wasn't easy to miss. This wasn't creating any problems either but I had it operated on a couple of years ago because I was getting to look like the hunchback of Notre Dame! It was at that point that they 'found' the other one lurking in my spine but I'm sure I wouldn't have noticed it otherwise.

    These things are sent to try us.... :-)

    Thanks again for your reply.
    Jane

     
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