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  • Possible problems?

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    Old 08-09-2004, 06:52 AM   #1
    Kissa
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    Possible problems?

    I had my ACDF done in February and have been doing pretty good overall however this last week I started having numbness in my hands again and strong pain in my shoulders as well as my neck feeling very sore.
    I haven't really over done it as I can't lift much etc since my lumbar is also herniated. I am on some pretty strong medications for pain in my back and hip and even those meds aren't touching the pain at all.
    I'm in a bit of a sticky situation where as I will not go see the doctor who did the operation as he treated me terribly (he treats all patients this way according my rhuemy and pain doctor) and to get in to see a new doctor is going to take about 2 - 3 months.
    I'm not sure what to do or if I'm jumping the gun on this.
    Any advice or anyone else have a similar situation?

    Thanks
    Barbie

     
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    Old 08-09-2004, 01:32 PM   #2
    zoey1
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    Re: Possible problems?

    arrrg i am very sorry to hear this,

    question have you had a sed rate (tells of pain levels and active inflamtion )done on ra that maybe youre in an active flare up thats contrubting to the mucsle spams and aches and pains ??????

    i found at 2 months out i was in active flare up stage again with my remotologist i guess the surgery kind of messed everything up

    but at any rate i truely wish u feeling better and pain relief and answered questions

     
    Old 08-09-2004, 07:39 PM   #3
    Kissa
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    Re: Possible problems?

    Yes I get my SED rate tested often as I hve pretty severe arthritis in many of my joints. Funny thing is it is always at or below a 10 which indicates no imflamation even if I go into the doctors with my knee for example completely swelled up! They attribute the phenominon to a genetic disorder that I have called Ehlers Danlos Syndrome.

    That is a good point though as sometimes when I've had surgery it seems to have made other things out of wack for a while. I just saw my rheumy last week and he said all checked out fine, go figure.

    Mostly I'm concerned with the numbness and shoulder pains again as thats how it started originally.

    Thanks for you response!

     
    Old 08-10-2004, 05:30 AM   #4
    zoey1
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    Re: Possible problems?

    i thought some more about you hun my sed rate is still testing over 40 (which is high as u know )

    i found my surgon useless as well, last night i had such bad moments i took two of my super duper pain pills and first time since surgery slept through the night

    i plan on going in to see remotolgist this am, i'd like to ask her bout other types of pain managment (she doesnt mind doing different things) and she is much more up to hearing me and very conserned bout the high inflamation

    i was standing at the sink doing dishes put left foot down and had shooting pains and numbness ( yea it was scary like before surgery )

    i think when we are in pain everything is colored we forget simple things sometimes to remember our meds and even if we were never ever depressed before there is some anxiety when stuff hits

    and as you said doesnt matter if we "over did or did something stupid "sometimes it just sorta happens".................

     
    Old 08-10-2004, 06:42 AM   #5
    Kissa
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    Re: Possible problems?

    Yeah I'm not sure what's going on or triggering it.
    I do see a pain management specialist every month and am taking morphine for pain in my back, hip and knee (severe arthrtis, degeneration and herniations) and even it doesn't help with the neck pain as of recent. I've been having to take breakthrough medications just to be comfortable. I've had chronic pain since age 10 when I was first diagnosed with arthritis and it just got worse over the years.

    I'm considering seeing a different neuro surgeon just to get my back checked out again and maybe have him look at my cervical spine to be sure nothing is going on in there that shouldn't be.
    My former surgeon who did my ACDF said there's nothing wrong with me and if anyone says so they are stupid! I won't go to him ever again!

     
    Old 08-10-2004, 07:03 AM   #6
    feelbad
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    Re: Possible problems?

    I would not go back to this idiot again either.I had a somewhat similar situation with the first NS i had who did my first two surgeries.I needed to find the reason for this horrid pain underneath my R shoulder blade that never lessened in the pain intensity at all after my other surgeries so I knew that it was coming from something else.that NS didn't seem to have the slightest clue and was of no help whatsoever.i ended up asking for another referral from my primary doc to see another NS,and lo and behold,only about two minutes into that appt, this NS knew without a doubt that the pain was being caused by the cavernoma inside my spinal cord.I am not even going to go into what the nightmare was after that!but my point is that you need to see another NS.this one is just such a doorknob,you know?You deserve to know what is causing this and to not be harrassed by your doc in the process.Good luck,Marcia
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    Old 08-10-2004, 10:06 AM   #7
    Kissa
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    Re: Possible problems?

    Thanks Marcia, I think I will find a new one. Need one anyhow for the back.
    I'm not sure what's up with some of these surgeons, they have such an ego and tell you there's no way anything could be wrong with you as a result of a surgery they performed! But they are oftentimes quick to tell you when other doctors proceedures are problematic or have fail.
    Go figure.

     
    Old 08-18-2004, 07:09 PM   #8
    wastefulltick
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    Re: Possible problems?

    hi kissa i had acdf fusion w/plate on c56 c 67 on may 6th xrays still show no fusion and im in worse pain no than i was before the surgury and now have pain in both arms ,shoulders and numb hands and fingers i thought my pain could never get any worse than it was i would give anything to have the pain i had before the surgury yhe meds help but after 3 hrs pain comes roaring back i have not been able to work since the surgury and i am getting very depressed over the fusion not occuring yet go back to hosp sept 7 th for another xray and then take it to my neurosurgeon the same day it will be a long painfull ride as it took me 3 days to recover from the ride up here when we moved last week
    bob
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    Old 08-20-2004, 06:17 AM   #9
    Kissa
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    Re: Possible problems?

    Sometimes I wonder if mine is taking or not, the neuro who did the surgery won't look at it because he did such a perfect job there is no need to. Getting into a new nuero is begining to be a nightmare

     
    Old 08-20-2004, 06:40 AM   #10
    feelbad
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    Re: Possible problems?

    Hey Kissa, have they done a flexion and extension x-ray on you?I knew that my neck hadn't fused after my surgery as it was causing the same symptoms as you are having plus,i could hear this horrid crunching or scraping sound?like bone against bone?Despite the MRIs that i had that said I was fused, I knew that I was not.It took me many MONTHS of me calling his office and being a royal pain to his nurse (they kept telling me that the MRI said i was fine)i had a talk with my primary who i have been with for the past 12 years,and he knew that something was not right with me.He was sooo supportive.But FINALLY, i was sent for a simple flex and ext X-ray that very clearly showed that I was not fused.This is really the absolute best way to find out if you are really fused or not.The fused bones,when you bend your neck forward,should move as a unit if fusion has taken place, mine spread apart like a fan.BINGO!! then my NS is like well we need to get you into surgery as soon as possible and all of this lets do this ASAP crap.Where was all this urgency and enthusiasm when i had been suffering in agony for the past few months trying to tell you that this was the damn problem?god I hate neurosurgeons!!!I think you should ask your NS or your primary if the NS is being a dork,to have this simple x-ray done so at least you can rule it out and move onto the next step.This could very well be your problem.NSs do not enjoy having their surgeries deemed a failure so you might have to really push the x-ray,but it IS worth having done in your situation.Do you hear any type of crunching or any wierd type of other noises when you move your neck in certain ways?Good luck Kissa,I hope things get better for you soon.Keep me posted.K?Marcia
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    11-20-01,placement of hardware for failed fusion
    9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

     
    Old 08-21-2004, 09:36 AM   #11
    zoey1
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    Re: Possible problems?

    kissa,

    finaly saw my surgon friday he did a flex exray and did motion movemnts

    he said healing for me was going slowly but there was some fusion starting to take place

    he wanted me on some kind of pain treatment all the time even when driving but when i got home to take the "big guns stuff"

    i tried to get a hold of him monday when i had problems over last weekend he was out of office till wednesday!

    that was very frustating..........

    he did change the mix to include a strong anti inflmatory which was stronger then stuff remotologist gave me for the rhumtoid artiutus

    well see how it goes
    at least i knew why i was having probelms and they are being addressed........

    i hope u find someone that listens to you and is aviable when U need them hugals
    dona

     
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