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  • Falling apart when do you stop ? ( cervical domino)

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    Old 04-24-2005, 07:55 AM   #1
    Booann
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    Falling apart when do you stop ? ( cervical domino)

    Hello I am new here too was told to post here as alot have cervical neck problems on this board. I am a walking talking cervical mess.. and I am scared.... in 2002 I had a 3 level fusion 4-7 with a corpectomy at 5/6.. its been a nightmare ever since... within 6 month the levels above and below went.. then they notice 6/7 didnt fused.. and I was having major problems with a forward bend in my neck ( kyphosis) It was very painful for me to lift my head to look straight... In Aug of 2004.. I had a 360 done in 2 parts a week apart.. first anterior to extend the fusion above and below..then a posterior done a week later where they added robs and such from 3-8.. that was "very" painful the incision ran from the base of my skull to down between my shoulders..Well I was just informed after the pain increasing to even a worse level then before that I have again dominoed. it is now involving the upper thorasic as well as at c2/3.. My Doctor and me had a long talk.. what do I do now.. well he said I would in time need more surgery he told me I could try to hold off till the pain was just too much to bare..ok well I guess I am willing to try PM as Ive never really had proper PM..I dont really want anymore surgery I fear my spine will just keep marching down .. tho we know it wont do much of that in the cervical as there isnt much more that can be fused..But since the thorasic started acting up.. wow is that painful...All this Dxing so far has been done threw plain x-ray.. he is sending me for a MRI to see how extensive the collapse then he said he will tell me if he feels I can hold off abit..I dont know what to do anymore.. I just cant keep having these surgeries ... I am just really venting here.. and I am so scared..
    Teresa

     
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    Old 04-24-2005, 08:34 AM   #2
    spineless50
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    Re: Falling apart when do you stop ? ( cervical domino)

    Boo...SOOOOOOOOOOOOOO glad you found this place...It's Melinda...I found it yesterday, Thank the Lord..

    Where did BT go???? I've been a mess for 2 weeks since the "crash"..All my contacts were there...I know better now...I will keep my "special" contacts in my own e-mail from now on...Can't figure out how the PM works here If you do please send me one...

    I remember you were having your Dr. appt. on the 22nd..

    MORE surgery....you poor thing..Does this ever end for us????

    I didn't fuse at c6/7 plus I now have bony tubercles at c/7..I think my spine has a green thumb for growing junk... See the NS in May..a long time for me to wait on what he has to say about all of this...

    Keep venting...you do it a lot more "ladylike" than I do...

    AGAIN.....soooooooo very glad to have you here...

    Melinda Aka Spineless



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    Old 04-25-2005, 04:22 PM   #3
    wimpette
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    Re: Falling apart when do you stop ? ( cervical domino)

    Booann,
    You seem to have been thru a lot in a short period of time without relief. Is this the same surgeon or have you got several opinions as to what is going on before the additional surgery? Before you contemplate any more procedures please consult with other specialists in neuro/pain/physical therapy/ortho spine and get an overall view as to what is going on and what all the alternatives are in your particular case. If the same surgeon was involved in all your procedures try to get other surgeon opinions outside the area where your original surgery was performed. From what I understand from your message things get worse with each procedure rather than better, surgery is not necessarily the answer and you should really look at all alternatives.
    I speak as someone who learnt the hard way and after two cervical procedures, the second one after many opinions and research, finally am going in the right direction...

    Hang in there, I might not be giving you the answers you want but having been there know that surgery is not always the answer as you already seem to have discovered the hard way. Believe me, I've been there myself..
    W

     
    Old 04-25-2005, 05:18 PM   #4
    Booann
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    Re: Falling apart when do you stop ? ( cervical domino)

    Hi wimpette the surgeries where all done by the same Doctor but I did go to other and they all were basically the same options for all surgeries.. So I went to the one that I felt the most comfortable with and could talk to openly. My Doctor is a OSS...My original problems was spinal cord compression causing problems from head to toe.. it is now just causing a rapid degeneration of my spine. So I dont know if I did use another Doctor if the outcome would have been any different really and I wasn't a candidate for minimal invasive. This all started a month shy of turning 40 and I am now 44.. wondering what I will be like by the time I am 60 sometimes I already feel like I am 60..or even older.

     
    Old 04-27-2005, 06:33 AM   #5
    wimpette
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    Re: Falling apart when do you stop ? ( cervical domino)

    Booann,
    Glad you have an OSS you can talk to, even if things are going badly that's half the battle. I'm finally seeing daylight after a long haul - I was petrified when I needed more surgery (a posterior C4-7 fusion) and felt that my life was out of control. This time I ignored pleas to get back to work, accusations that I was taking too much time off and really took things slowly. Although in the past I'd had poor experiences with physical therapy I went to a new therapist who took things very slowly, kept the curbs on and, as off last week I found I have almost normal neck rotation!! Have even gone back to the gym, still under the guidance of my PT who tells me what I can and can't do. The gym has a system called FitLinxx so any exercise is computerised to my range of motion and I can't injure myself.

    Although several on this board have considered PM to be a sign of giving up I went to a PM doc between my surgeries. His nerve blocks and my response helped my surgeon figure out exactly what was causing the most problem and how to deal with it.

    Unfortunately, it's a long battle in which the patient has to actively participate and the doctors coordinate and communicate with one another. However, as I get ready for another session at the gym, I can say that, one year ago I wouldn't have believed I could come this far. So, hang in and take things one day at a time, progress can only be looked at in retrospect over a long period of time,

    Take care,
    W

     
    Old 04-27-2005, 06:49 AM   #6
    EmtShirl
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    Smile Re: Falling apart when do you stop ? ( cervical domino)

    Teresa ~

    Just thought I would say Hi! It's me Shirl. I sure hope you will find more help here.

    Shirl
    __________________
    Love,
    Shirl
    History:

    1980- Transaxillary resection of 1st rib and division of band (left side)
    1982- Diagnostic Laparoscopy
    1985- Transaxillary excision of cervical rib (right side)
    1991- Laser stapedectomy (right side)
    1992- Fractional D&C
    1992- Diagnostic Laparoscopy
    1996- Lumbar hemilaminectomy
    1999- Left knee arthoscopic surgery
    2001- Laparoscopic assisted vaginal hysterectomy
    2002- L5-S1 Microdiscectomy
    2002- L4-L5, L5-S1 Anterior inter-body lumbar fusion with cages and my own bone from left hip for bone graft
    2002- Neck problems Surgery??????
    2002 DEC 21- C4-5, C5-C6 Anterior Cervical Corpectomy with Fusion and Internal Fixation (Bone from the bone bank)

     
    Old 04-28-2005, 05:50 AM   #7
    Booann
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    Re: Falling apart when do you stop ? ( cervical domino)

    Wimpette have you ever done water PT.. I am going to try that next since I did so horrible in the other. I see my OSS again on June 2nd.. if I can get this MRI approved..and I will go from there.. really I like to try some PM to aviod surgery as long as I can since like you Ive already been threw the mill with that. its just been too many too fast for me.. and any sign of more makes me feel like running to the hills.
    Teresa
    P.S. Hey shirl how are you ?

     
    Old 04-28-2005, 06:03 AM   #8
    EmtShirl
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    Wink Re: Falling apart when do you stop ? ( cervical domino)

    Teresa ~

    Hi dear! I am doing OK. I am ready to get this next surgery over with and move on to having a great summer this year. I am sorry I have not replied back to you in a few days. I have been trying to get the last mintue stuff done and when I am done doing that I hurt too much to sit and type.

    The last I read from you, you were not doing well at all. Did you call your doctor or go in to see him? Has your pain gotten any better? I feel so bad that you have to wait until June 2 to see your doctor.

    I thought water pt was the best help for me. I sure hope it helps you. I am looking forward to summer and getting in our pool to work on pt again on my own. For me it was relaxing as well.

    Love Ya!
    Shirl
    __________________
    Love,
    Shirl
    History:

    1980- Transaxillary resection of 1st rib and division of band (left side)
    1982- Diagnostic Laparoscopy
    1985- Transaxillary excision of cervical rib (right side)
    1991- Laser stapedectomy (right side)
    1992- Fractional D&C
    1992- Diagnostic Laparoscopy
    1996- Lumbar hemilaminectomy
    1999- Left knee arthoscopic surgery
    2001- Laparoscopic assisted vaginal hysterectomy
    2002- L5-S1 Microdiscectomy
    2002- L4-L5, L5-S1 Anterior inter-body lumbar fusion with cages and my own bone from left hip for bone graft
    2002- Neck problems Surgery??????
    2002 DEC 21- C4-5, C5-C6 Anterior Cervical Corpectomy with Fusion and Internal Fixation (Bone from the bone bank)

     
    Old 04-28-2005, 04:03 PM   #9
    wimpette
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    Posts: 167
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    Re: Falling apart when do you stop ? ( cervical domino)

    Teresa,
    never did water pt, to me the hassle of having to get in and out of a warm pool, change, shower and then go out in the cold was too much..... However my current pt has been superb, very gentle, no major manipulations but gradually over several months things improved. He's very conservative, knows the limitations that spinal surgery causes and really, in my case, has helped to make a well executed surgical procedure into a successful outcome. Many good rehab gyms have individual water pt and also group pt classes and I know several people who have done well with that. I think part of it depends on what type of exercise can you do comfortably, and continue on a long term basis when formal pt stops.

    Have had to accept that going to the gym has become a mandatory way of life if I want to prevent more surgery. It's like a cardiac patient - rehab in one form or another is an integral part of the recovery and has to form part of the process. Many surgeons ignore this aspect - regardless of how great a job they do (or think they do), a major part of a recovery is being able to regain function which is a very longterm process and requires a lot of work from our (the patient's) point of view. If your surgeon doesn't suggest therapy post op, request it, it has really helped me a previous non believer!

    Teresa, hope water pt helps or you find someone who can help you more than before.

    Hang in there.
    W

     
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