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  • My daughter has Spondylolthesis and I'm afraid for her.

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    Old 01-24-2006, 06:51 AM   #1
    HEE
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    My daughter has Spondylolthesis and I'm afraid for her.

    I've been researching all I can on Spondylolthesis, and that is how I stumbled across this website. I've been reading the testimonials etc, but I haven't heard of anyone with this disorder. My daughter is a competitive basketball player, and it is her life. She is 12 years old. Does anyone have Spondylolthesis, and if they do... are they able to play sports? What can you tell me about the limitations of this? My daughter is meeting with the surgeon on Monday.

     
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    Old 01-28-2006, 09:03 AM   #2
    caszyman
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    Re: My daughter has Spondylolthesis and I'm afraid for her.

    Hee,
    I missed this thread, but posted a reply about this under another spondy thread. You are right there are not many of our kids out there. So here is my daughter's story in case you missed the other post.

    My daughter was diagnosed with congenital spondy when she was 11 years old, grade I slip. She was also very active in sports, soccer, dancing, snow and water skiing, volleyball, hurdles and high jump. She contiuned to be actively involved in sports for three or four more years before we ever heard that dreaded "S" word - surgery. Her surgery was performed by her pediatric orthopaedist and his adult spine specialist. When she made dance team and danced daily her slip progressed quicker and the pain never stopped. So unless your daughter's slip is a grade III, I would be really surprised that surgery would be the first thing suggested?

    Since your daughter is young, are you seeing a pediatric orthopaedist? This means that the dr has a specialty in the pediatric patient since they are different than an adult. Our dr has a pediatric fellowship with a specialty in scolisis so he dealt a lot with the spine. One thing that I have learned from our dr is he continually stressed that kids are different than adults. I really believe him now. Many of the stories on the boards relate to adults and things that are done for kids are different and they recover so much quicker!!!

    The first treatments were rest from sports, three months of physical therapy, continued home exercises, medication, bracing for three months, two more months of therapy, and lastly surgery. So we tried non-surgical treatments for two years before she had surgery. Her mri later revealed that she was also born with stenosis. She has recently been diagnosed with a major gyn issue. Those drs feel the back problems may be related to the new diagnosis, but the orthos don't think they're related.

    Now if your daughter is slipped a lot and surgery is suggested, go and seek out a second and even third opinion. When surgery was first suggested to us my daughter was only 15 and I freaked out. Luckily I have a relative who is a pediatric ortho and I sought a third opinion from a pediatric ortho and all three felt surgery was the next step for us. I still put it off a year having our surgeon try one more non-surgical treatment of bracing. Once that didn't work I knew we would be booking surgery.

    This was in Feb. 05 and luckily her dr felt she could wait until school was out in June. She had a half of day of vacation and surgery was the next day. She is doing fabulous. I don't know if she'll ever dance or water ski or dance again (her two passions), but she is 7 1/2 mo post op and is ice skating, light swimming in the pool, using the treadmill and eliptical. Some of the drs we saw said no restrictions after a few years. Her dr is pretty conservative so we'll see what he says when we go in Feb. But she now has her smile back.

    Another suggestion. Search the web and you will find a few things about spondy in children. Read what you can and write out a list of question before you go to the dr. That always keeps me focused and then I don't forget to ask something. Our dr is just fabulous and finishes each appt reminding me that if I have any questions to call him. He always returns his calls which is great.

    Hee, I'm sorry that I've turned this into a book, but there aren't many kids in our children's shoes. It is a terribly hard decision to make as a parent. Try everything you can first. My niece also has this diagnosis, grade I, and is still playing travel volleyball. So this may not be the end of your daughter's athletics. Please feel free to ask any questions and let us know what you find out at your appt on Monday. cas

    Last edited by caszyman; 01-28-2006 at 10:31 AM.

     
    Old 02-01-2006, 02:46 AM   #3
    simby
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    Re: My daughter has Spondylolthesis and I'm afraid for her.

    hi,
    i developed spondy after a micro-d at l4/5. The pain was an "in your face" every waking moment. Sleep is the only relief i got, and that was fleeting.

    Bone on bone, with grinding of the nerve between them, left me with uncontrolable pain.
    I opted to have fusion done at that level rather than go on pain management. That would only have postponed the inevitable.

    However, i am 53, so age wasn't an issue. I believe with younger people, the docs prefer pain management. This is because, after a fusion, the discs above and below the site take the whole load and can also herniate or collapse totally.

    hope this helps some. Good, healing thoughts and tons o hugs to your daughter.

     
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