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Brenda 79 09-23-2008 11:24 AM

Numbness after spinal surgery
I had spinal surgery 6/20/08 to remove a benign tumor from my spine. The doctor said that from the looks of it, it had formed from birth ( I am 47 years old) and it had just started giving me problems (sciatica). Since my surgery, my right foot is numb. I have been in physical therapy which is helping with my balance, strength. etc. I sometimes feel tingling, itching, and can feel fingernails on the bottom of my foot. They tell me this is the nerves regenerating. I hope and pray that the feeling comes back (the surgery was very tedious-appararently the tumor was entwined in the nerves, etc--they were able to remove 90% of the tumor--when they tried to remove the 10% of the remaining tumor, the electrodes showed no movement, so they left the 10%--the movement
came back in my toes and foot. It's just a really weird feeling--almost like the foot is dead--I have different sensations and movement every day--somedays I can move my toes-somedays not. It's been almost 3 months and I've come a very long way--I guess I'm getting impatient. I just want to be my old self again!!!! Has anyone out there experienced same or similar experience?

littlelady2852 09-23-2008 12:30 PM

Re: Numbness after spinal surgery
Brenda.. i have a Arachnoid cyst on my spine.They said mine has been there for a long time and it hurts so much. I have noticed that my legs get numb quite often.Can you tell me more about your surgery please ? I need surgery but i don't have any health insurance. I am appealing SSDI.
I don't see too many people with a tumor or cyst on the spine here.
Thanks so much..

kd66 09-28-2008 10:25 AM

Re: Numbness after spinal surgery
Brenda & Karen - it is amazing that it didn't give you problems sooner! I will tell you a little of my story. You are right, there arenít many spinal tumors out there.

I had a dermoid cyst in the cauda equina (lower end of the spinal cord). It was also congenital and struck when I was 19. It was full of teeth and hair and wound into the nerves. I had severe back pain radiating down my leg, muscle spasms in my back, and numbness in my foot. The neurosurgeon removed most of the tumor, also benign (a misnomer if there ever was one!). I ended up with weakness in my back, no movement in my ankle and a numb foot.

I thought it was all over, but ten years later the same symptoms came back. This time the surgeon was able to remove all of the tumor, which had grown back to the original size. Since then, my back has been weaker and my other foot has also been paralyzed. I have been able to walk only with two canes.

All this happened before CT was even invented. I have had a good life - family, career, now retirement Ė in spite of the physical problems.

I offer you both my encouragement. Brenda, keep with the PT; I hope you get back more function. Concentrate on what you can do, not what you canít. Karen, it is unconscionable that you cannot get the surgery. I hope the SSDI comes through for you.

Let me know how you are progressing.

littlelady2852 09-28-2008 11:52 AM

Re: Numbness after spinal surgery
Hello,The specialist about 3 years ago said i have a Arachnoid Cyst on my spine and also i also could have Meningocele ( some type of Spina Bifida ) which is scarey to me. They done a MRI back in 2005 and i have not been able to have anyone since then.
I know its getting worst because i used to not hurt near as bad as i do now and i am having numbess and tingling and weakness in my legs. Mostly the left one.
I am getting so worried, but there is nothing i can do. I have done all i can do and hopefully i will get approved for my SSDI so i can have my surgery.
Thanks kd66,

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