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-   -   "Restless" feeling-anyone else have this? (https://www.healthboards.com/boards/spinal-cord-disorders/652674-restless-feeling-anyone-else-have.html)

Bryansmom 11-28-2008 08:18 PM

"Restless" feeling-anyone else have this?
 
Hi everyone. Below is a brief synopsis of what's going on:

significant DDD from C4-C6-7
C5-6: spinal canal stenosis from broad based posterior disc osteophyte complex
C6-C7: spinal canal stenosis present secondary to broad based posterior disc bulge. left neural foramen stenosis is seen.

Impression:
spinal canal stenosis at c5-c6 and c6-c7 levls with kyphotic angulation of the cervical spine, resulting in ventral compression of the spinal canal and spinal cord.



I am experiencing 2 things that are quite disturbing: 1) mild urinary incontinence (I'm 38 years old....arrghhhhh!) and 2) a very uncomfortable feeling of "restlessness", kind of like my skin is crawling, like I HAVE to get up and move or I'm going to go nuts. That feeling seems to come on when i'm trying to relax, like right before bed or when I'm still enough to notice. I'm on my feet all day teaching. It's really an unpleasant feeling.

Anyone else know what this might be? I'd love to hear your thoughts.

Thanks in advance!

Michelle in CA

feelbad 11-29-2008 07:58 AM

Re: "Restless" feeling-anyone else have this?
 
one quick test i would like you to try just to see how your reflexes are? take the heavy end of a butter knife and tap just below your kneecap on both knees. see how brisk your reflex is. if it appears to be somewhat "hyper" or very quick "kick like" ,strong movements,your cord IS probably being impacted by the compression. it should 'move" somewhat but it should not be very 'quick' let me know how this goes,K? marcia

Bryansmom 11-29-2008 08:31 AM

Re: "Restless" feeling-anyone else have this?
 
Hi, feelbad

I recently saw the pain dr in prep for a radio frequency ablation procedure. I mentioned my new symptoms to her and she checked my reflexes and found that they are somewhat exaggerated. She was concerned enough to send me back to the ortho for a recheck. I have a follow up appointment with the ortho surgeon on Tuesday (now a month later!) and hopefully I'll get some answers.

Thanks for the response! I appreciate the information.

Michelle

sunshine221 11-30-2008 08:02 AM

Re: "Restless" feeling-anyone else have this?
 
I agree with Marcia - don't be surprised if the NS recommends surgery. I was close to incontinence before my surgery and when the stenosis that wasn't fully resolved acts up the doc asks me about this.
Gloria

Bryansmom 11-30-2008 05:35 PM

Re: "Restless" feeling-anyone else have this?
 
Gloria-
What surgery did you have? Prior to these symptoms showing up, the ortho said I wasn't a candidate for surgery because I'm 38 (is that relatively young?) and I have sytemic lupus. It sounds like you only had partial relief from your surgery. How are you doing?

sunshine221 12-01-2008 12:32 PM

Re: "Restless" feeling-anyone else have this?
 
Michelle

I had a cervical laminectomy C4-C7 - this is where they decompress the central spine from the rear. I'm lots better than before surgery but still have some compression C5-C6. I also have a (very mild) case of parkinsons and some symptoms are similar. I generally feel great except that I have a "permanent" limp from the spine and a lack of arm swing from the parkinsons. I'm seeing a different physiatrist next week for the limp but at some point I may go to Cleveland Clinic or some other Center of Excellence for another opinion.

To "fight" all this I do lots of exercise - swim, walk, Curves. My reflexes are still exaggerated or brisk but not as bad as they were.

I'll look to see what your ortho says. (I don't get on the boards as often as I used to)

Gloria

SpineAZ 12-08-2008 08:50 PM

Re: "Restless" feeling-anyone else have this?
 
Are you on any medications? Vicodin and anything similar make me very restless (I only wished the stuff knocked me out but it doesn't).

opticsguy 09-24-2009 10:49 PM

Re: "Restless" feeling-anyone else have this?
 
[QUOTE=Bryansmom;3807223]Hi everyone. Below is a brief synopsis of what's going on:

significant DDD from C4-C6-7
C5-6: spinal canal stenosis from broad based posterior disc osteophyte complex
C6-C7: spinal canal stenosis present secondary to broad based posterior disc bulge. left neural foramen stenosis is seen.

Impression:
spinal canal stenosis at c5-c6 and c6-c7 levls with kyphotic angulation of the cervical spine, resulting in ventral compression of the spinal canal and spinal cord.

I am experiencing 2 things that are quite disturbing: 1) mild urinary incontinence (I'm 38 years old....arrghhhhh!) and 2) a very uncomfortable feeling of "restlessness", kind of like my skin is crawling, like I HAVE to get up and move or I'm going to go nuts. That feeling seems to come on when i'm trying to relax, like right before bed or when I'm still enough to notice. I'm on my feet all day teaching. It's really an unpleasant feeling.

Anyone else know what this might be? I'd love to hear your thoughts.

Thanks in advance!

Michelle in CA[/QUOTE]

My reply will relate my similarities to your post and what I have found so far.

I had L4/L5/S1 surgery in Jan '07. A symptom like restless leg syndrome started almost immediately but since I had never had any restless symptoms in my prior 62 years I only felt uncomfortable and wrote it off to healing.Over the next two years I have dealt with associated low back and worse, sciatica pains in my legs.

A month or so ago, I woke up with a terrible feeling from head to toe running through my spine. The quieter I tried to rest, the worse it got. Vicoprofen and Gabapentin did not help. Being a life long nerd scientist, I tried to think about it and experience all of its details and realized it was the same feeling I had had just after surgery. I struggled up, drank about 24 oz of coffee and as the day passed, the creeps slowly went away except in my hips. It happened again four days ago. Same symptoms. I see a psychologist for depression and when I described it to him, he said it sounds medical not psychological.

Monday night I started an internet search. Several hours later I had a name for it: PARESTHESIA or PARESTHESIS.

I caught herpes HSV-1 kissing in 1968. Sometimes it causes cold sores, sometimes not but I always have a few days of PRODROME symptoms of being generally miserable all over like I'm getting the flue.

A year ago I was tested for a bunch of things at my request. I have anti-bodies for HSV-1, HSV-2, Epstien-Barr and I had Chicken Pox as a kid.

After what I found next, I made an appointment with my neurologist. I'm keeping a diary of daily symptoms. Why? The site that described paresthesia when it isn't localized was a Multiple Sclerosis site and I have enough of the other symptoms to get tested.

I also found that MS has been shown to be related to Herpes-1, -1 and -6. I would rather find out I have MS than not know what is doing this to me.

Out primitive ancestors might think they were cursed by the village witch or attacked by the devil or the target of a VODOO curse. That is about as bad for me as just not knowing or thinking I'm loosing my mind which my therapist assures me I'm not.

Local paresthesia can just be caused by nerve entrapment but when it runs from the skull to the toes it feels systemic.

I am having my doctors test me for autoimmune markers in my blood as when as anything they can think of because feeling like my spine is attached to a high frequency vibrator with electric shock is not something I'm really interested in living with.

I wish you and me luck.

joe7700 09-25-2009 08:57 AM

Re: "Restless" feeling-anyone else have this?
 
Hi!
I have recently undergone spinal surgery, here in Endland, to extend an already existing spinal implant stimulator. Since this operation I have suffered this hellish Paresthesia which keeps me awake and is even buzzing as I type this post.

I know it is physical rather than psychological (I am a psychologist) but I am not sure how to allieviate it. I have just left a message for my pain management nursing team and await their reply with regard to this horrible sensation.

I will leave a post as soon as I have any information.

Good luck to you all!

Joe

JClooking 10-08-2009 08:04 AM

Re: "Restless" feeling-anyone else have this?
 
OMG, you are the first person I've seen who described my symptom... the paresthesia. I assumed that was what the symptom was but wasn't exactly sure because it is described as pins and needles and it's more like skin crawling or bugs and becomes a big problem when I sit still or am trying to sleep. The first time it happened, it was only for a few days and went away but then my neck, back, and shoulder started hurting which thus began the doctor-go-round. I had a MRI to see if I might have MS spots but the only finding was a disc bulge. Since that diagnosis, I've been on MSContin and Norco and have epidurals, PT, acupuncture, massage, and IMS (Inter Muscular Stimulation, which is a lot like acupuncture. The drugs help the creepy crawlies most of the time but they barely touch the pain. The best way I can describe the pain I have in my neck and shoulder blade is as if I've been carrying around a huge boulder all day...that real tired muscle feeling. Luckily, I'm getting a second MRI soon so if it is MS the spots will show up this time. Not that I want it to be that (my mother had MS and eventually died from it) but at least they can treat it now...better than not really knowing what this is.

My prayers are with you!

feelbad 10-09-2009 10:14 AM

Re: "Restless" feeling-anyone else have this?
 
JC, just what areas of your spine were actually MRIed and do YOU yourself also have a copy of that MRI report? if not,get one and also request a copy of the new one too that you will be getting. we just really do need to make certain that we,as patients are actiually getting told EVERYTHING that is actually in any given rad report. many many docs,espescially specialists simply do NOT actually even tell the patient about every actual real hard finding that could be something very impactful but since that particular doc has no real clue about it, or its real significance either, they blow it off,and we do not get told about it. and we of course suffer for it. just make certain you just obtain everything from any testing done on you, always.

if you could post just what was actually found in the summary at the very end of your last MRI, and then when you get the new one too, it would be very helpful in trying to figure out pain generators and what can actually be casuing any level of real symptoms. it needs to also be word for word as the radiologist described a particular finding too. anything in that end of report summary simply IS a hard finding.

when it comes to any level of 'disc bulges" it is not so much that you have the bulge itself but what it could be impacting that matters most with this type of finding. the 'impact" would also be listed in that summary too. what you are describing just sounds alot more then 'just" the basic paresthesias. there can be other reasons for this feeling that can also be related to any level of actual cord contact too, or anything actually 'in' that cord as well. i would make certain that this next MRI is done from top to bottom an also uses a contrasting agent just so you know that whole spinal area has been fully looked at in the best possible way at this point. hopefully something will show that would at least give you good reasons for what you are experiencing as symptoms. please let us know what you find out. and DO make certain you have any and all copies of reports for yourself. marcia


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