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  • do you have diastematomyelia

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    Old 01-08-2009, 04:28 AM   #1
    Join Date: Jan 2009
    Location: west midlands
    Posts: 2
    severebackpain HB User
    Smile do you have diastematomyelia

    hi is there anyone who is suffering with diastematomyelia, syringomyelia, spina bifida cervical spondilitus and i am in severe pain have you had any good treatments as i would like to know which way to go as i am on opoids painrelief and want to try other treatments

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    Old 01-12-2009, 12:00 AM   #2
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    Join Date: Dec 2008
    Location: Boca Raton, FL, USA
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    PittyPatty5 HB User
    Re: do you have diastematomyelia


    I'm a 53 year old woman who was diagnosed with diastematomyelia, spina bifida occulta, syringomyelia, and tethered cord just about a year ago. Also have cervical stenosis and arthritis that is congenital, as well as other problems in lumbar region such as degenerative disc disease, herniated/bulging discs, etc.

    Had detethering surgery this past May and now it looks like I may need a fusion to address the still ongoing sciatic pain. Some repair of the split cord was also done during the surgery. Lower back pain has improved after surgery. Was also having some bladder issues that have improved. It is believed that my syrinx is caused by the tethered cord, but so far the syrinx is unchanged after surgery.

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